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Anyone received a letter regarding steroids

(15 Posts)
TrendyNannie6 Fri 28-May-21 10:46:40

Just that basically! Friend in London has had a letter NHS one, advising her to pick up an emergency steroid card, she has asthma, I hadn’t heard of this being rolled out, but as I’m on continuous pred ( Steroids) and have been for many years just wondered if anyone here has also had a letter about this, I’m not in the London area so I will be waiting patiently for mine

Barmeyoldbat Fri 28-May-21 11:01:23

Yes I am on a very low dose of steroids but have carried a a card for about 20 years. I think I got mine from the chemist.

Silvergirl Fri 28-May-21 11:07:04

When I was on steroids for four years following a pituitary operation I had to carry a blue card to show I was steroid dependent. Got one from my doctor with my first prescription.

TrendyNannie6 Fri 28-May-21 11:12:04

I’ve got a rather dog eared well worn blue card I was given by the pharmacist over ten years ago I will keep it obviously even though it’s full up inside as i was changing doses, over the years, I think have to look up what she actually has to pick up

annodomini Fri 28-May-21 11:22:51

I had pred for six years (on gradually decreasing dosage) for polymyalgia rheumatica and did ask my GP about the card. But he said not to bother about it. So I didn't.

lostmyspecs Fri 28-May-21 16:19:28

I was given a blue steroid card two years ago by my GP, giving proposed reducing dosage. I have it in my purse but have since purchased a steroid notifying bracelet to alert anyone who may have to deal with a medical emergency involving me! I have PMR.

GrannyGravy13 Fri 28-May-21 16:39:34

I had my first steroid card at 15 yrs old, many moons ago.

Marydoll Fri 28-May-21 17:06:47

I carried my first one over forty years ago, after being in ICU with late onset asthma.

My five year old granddaughter carries one too.

shysal Fri 28-May-21 18:01:52

When I was on steroids I wore a silicone wristband, sold for the purpose on Ebay. Easier than carrying a card.

Boogaloo Fri 28-May-21 19:08:01

I'm not in the UK but very interested in this. I have been taking steroids (prednisone) for 12 - 13 years. I'm on 5mgs/day.

What is the purpose of the card and what daily doses do others here take.

I want to lower my dose and one day stop taking this medication completely.

Marydoll Fri 28-May-21 19:15:52

The purpose is to to help healthcare staff identify patients on steroids and provide information on emergency treatment if the patient is acutely ill, experiences trauma, surgery or other major stressors.

Liz46 Fri 28-May-21 19:30:51

I've been on an inhaled steroid (Fostair) for years but have not heard of the card.

Marydoll Fri 28-May-21 19:34:26

LIZ, from the NHS website: If a patient is using nasal corticosteroids and an ICS, they should be assessed individually. For example, for a patient taking nasal corticosteroids and 800-1000 micrograms of BDP equivalent/day, a corticosteroid safety card is recommended.

tidyskatemum Fri 28-May-21 20:16:22

DH got an email with one last year. He had no idea he needed it and has never printed a copy. We assumed it was for his asthma inhaler, which he’s been using for years.

Liz46 Fri 28-May-21 20:26:21

Thanks Marydoll.