My sympathies to all of you suffering this terrible condition. My son was diagnosed with it a few years ago after a very frightening hospital admission during which he underwent tests for a brain tumour, meningitis, amongst others. By a process of elimination they settled on trigeminal neuralgia. When his partner took him to A&E he was in so much pain he was banging his head on the wall. While he was in hospital not even morphine touched his pain. He was eventually prescribed amytriptyline which did help and he has recently been able to come off this. He still has to be very careful about cold weather, cold water and other possible triggers.
His first experience followed a difficult wisdom tooth extraction, but there’s no clear link with that. It could have been cause or effect. I believe people have had several teeth extracted in looking for a cure for the pain they experience, only to realise there is nothing wrong with their teeth. It’s a dreadful condition, but if my son is anything to go by there can be some hope.
