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Advice on taking Statins

(107 Posts)
susytish Wed 25-Aug-21 11:18:27

I was prescribed statins nearly 3 months ago. Didn’t have a problem until 2 weeks ago with cramping pains in my calf muscles, sleep problems. I feel it is due to the statins, doctor has halved my dose this week but still having same problems.

Stella14 Sun 29-Aug-21 14:56:28

Bear in mind that there is no research that shows a benefit in women. There are benefits in men at high risk of a cardiac even. Women’s and men’s physiology is different in many ways. I wouldn’t take such a powerful drug until/unless they are shown to have a significant benefit to women.

springishere Sun 29-Aug-21 14:53:50

I resisted them for years, despite a cholesterol level of 6.5. Then it rose slowly: 7.5, 7.8. At 8.6 I became frightened and gave in. It's now 4.5, so they worked. Whether my aches and pains are due to them or to old age, I don't know.

Cosmo14 Sun 29-Aug-21 14:43:55

Tried 3 different stations, each had side effects. From severe muscle ache, nausea, vomiting, and worst sending my heart into atrial fibrillation. Doctors advised me to just watch my diet now, they acknowledged that the symptoms I had were due to the statins.

MaggsMcG Sun 29-Aug-21 14:34:39

I'm not on statins, been threatened with them. I have cramp in my feet mostly, very painful. Wish I knew what causes it. Wonder if its a certain brand of my blood pressure tablet?

JenJenT Sun 29-Aug-21 14:08:25

My husband was prescribed Atorvastin because his cholesterol was a bit high and it made him very bad tempered, so he came off them. A few years later, he suffered a minor stroke and was put back on them, but was quickly changed to Rosavastatin and he has been okay on that one. The consultant explained that, after a stroke, they like to keep the cholesterol extra low. He also suffers from Type 2 Diabetes, but the statins do not seem to have had any adverse effect on his blood sugar levels. My brother also had bad side effects from statins, but eventually went back onto a different, more gentle one and he seems okay on that, so it may pay to be persistent and try different kinds until you do find one you can tolerate if you really need them

SingleGram Sun 29-Aug-21 14:08:16

I am a diabetic and have been on statins for over 45 years. I started to have a lot of muscle stiffness and cramps but almost everything that I have could be attributed to something else if they try. However my family doctor wondered if the statins could be causing some of my symptoms and took me off it for a month. At the end of that period I had no more muscle spasms in my feet and the other issues were gone but my cholesterol is high again. I am in the position where there seems to be no good alternative. If I stop it my bad cholesterol goes back up and I eat very healthy or "clean" as my daughter calls it nowadays mostly due to being a diabetic as I doubt otherwise I would be so strict! We need a new drug.

seadragon Sun 29-Aug-21 14:02:40

I had significant discomfort in my legs - including a sensation like water trickling down them - when I started on statins following an angioplasty to insert 3 stents in 2016. I had read that Co-Enzyme Q10 could be effective in reducing side effects from taking Statins. From past experience, I knew they can also boost energy levels. Ordered them from Nature's Best and have remained comfortably on statins ever since...but with more energy. Cholesterol remains below 5. Don't care if these are placebonocebo effects. It works for me!!

RillaofIngleside Sun 29-Aug-21 13:36:26

I took them for 3 years. During that time I became more and more highly anxious and obsessive about my heath to the point where I could barely function and went to the nurse in tears. I also had terrible restless legs, unbearable every night. It was suggested I stop taking them, and sure enough my symptoms quickly faded although it took months to get back to normal. I have always been so well balanced and positive I couldn't understand what was happening to me.
I tried a different type and it started again.
I did some research and found that a lesser known side effect is that the lack of cholesterol can affect serotonin receptors in the brain and cause anxiety and depression.
It was the worst 3 years of my life, and I couldn't bear the thought of it happening again.
The restless legs have gone too.

1summer Sun 29-Aug-21 13:24:37

My Mum always had very high cholesterol despite being a very healthy weight and eating a low fat, low salt diet. By contrast my Dad had very low cholesterol he fried everything in lard, love beef dripping and fat from meats. My Mum was given statins that did nothing to reduce her cholesterol significantly but she suffered for a number of years with chronic joint pain and migraines. Her GP tried to tell her the advantages of taking it outweighed her suffering. This was until she decided herself to stop taking them, her quality of life improved. I would never take them.

Rosina Sun 29-Aug-21 13:21:52

Do read McNamara's 'The Cholesterol Conspiracy'. DH was prescribed statins, and beame like an old man within a month or so - he struggled to get in and out of bed, the car, and ached continually. After trying several brands the GP advised him to stop, and he needed a course of steroids to negate the effects of the statins. They are the most successful drug ever made, but financially, not for their medical effects. Statistics show that the majority of people having strokes and heart attacks do not have raised cholesterol.

Hollycat Sun 29-Aug-21 13:00:44

20 years ago my husband suddenly found he had all kinds of weird symptoms and was sent to a neurologist who ran tests, concluded it wasn’t genetic and it was his medication. He asked to come off statins, but was told he would have a heart attack if he did. He was frightened into staying on them. After a couple of years his symptoms became much worse, but was STILL told he must take them. We did a lot of research, went back to the doctor yet again who this time said “Well you could take Benecol instead”. So he stopped the medication. His cholesterol levels are actually better now but he has Periphal Neuropathy and now can’t feel his feet and legs, uses a walker and has frequent falls.

Frizzywizzy Sun 29-Aug-21 12:55:25

I was prescribed atorvastatin 20mg and had terrible side affects. I now take pravastatin 10mg and no side affects whatsoever although it does not reduce my cholesterol by very much, but just enough to make a difference.
However, I’d suggest the best way forward is to see a nutritionist and let him/her make some basic changes to your diet. I did and it was money very well spent.
Let us know what the outcome is please. Any further information about statins is always welcome ?

songstress60 Sun 29-Aug-21 12:19:53

Advice. Don't! I am a size 8, work out at the gymn, do the garden and I became diabetic as a result, and was advised to attend a diabetic clinic. So furious about that when the people at the clinic were obese. Anyway I came off them and the diabetes disappeared. I was put on a different medication that has good results. My mother was put on statins and became disabled. They are a menace with more side effects than benefits. Cheap nasty trash.

millynm4 Sun 29-Aug-21 12:19:45

have been on 40mg statins for more years than I can remember, recently had a stroke due to a build up of cholesterol in the neck, have had painful swollen feet and legs for years, now not sure whether to continue taking them, trying to see a doctor is a laugh

Sadgrandma Sun 29-Aug-21 12:00:26

At the time I was prescribed I know that GPs were offered extra funding for all, I think, over 50s that they prescribed them to. I don't know if that is still the case.

Sadgrandma Sun 29-Aug-21 11:57:28

I was prescribed satins some years ago for no particular reason except my age. I started getting unexplained muscle pains and felt so weak that I struggled to walk. I had not heard that this could be a side effect of satins so didn't associate it. I then went on holiday abroad and forgot to take them with me. Within a few days I was a new woman. When I returned home I went to see my GP and said I didn't want to take them anymore and he agreed with me. Of course if anyone has been prescribed satins for a particular reason, such as having had a heart attack, they really must speak to their GP before stopping them as that could do more harm than good.

JANH Sun 29-Aug-21 11:55:47

I am a diabetic and was prescribed statins. I suffer from cramp on a regular basis, many nights sitting on the side of the bed trying to get rid of it. This was exacerbated by statins and I think I was prescribed every one on the market. The cramp got worse, I was barely sleeping, Dr agreed me coming off them. I still get cramp but not as badly as when I was taking statins. My cholesterol level is raised but not massively. I would never take them again.

Jens Sun 29-Aug-21 11:53:53

Some years ago I took statins for high cholesterol, two courses, cholesterol came down, doctor happy. However, three months after stopping them, cholesterol levels had returned to prior statin levels. I had put myself at risk for literally no gain. It was a different doctor who then told me a side effect is stroke! Now I have a practice nurse recommending I take them again despite the history. I have refused. He’s not happy pulls a face. Threatens me with heart attack if I don’t, there is a thirty year difference in these events.
Me no, oh hell no.
Question, have the drug companies offered incentives to peddle these dangerous medications? Food for thought.

Growing0ldDisgracefully Sun 29-Aug-21 11:53:47

I remember reading a few years ago that GPs were saying that EVERYONE over a certain age (50's?)should be prescribed statins, regardless. Why?!
I'm not on statins, but had a similar experience to TheoddBird in relation to blood pressure pills. I was prescribed them, and they made me feel absolutely awful, lethargic, tired, slow to react when driving, and I suddenly put on a lot of weight. I compared notes with a friend on the same brand of medication. Her blood pressure was much higher than mine, yet was on a much lower dose. I went home and gradually halved my dose and then left them off altogether and didn't bother renewing the prescription. On a visit to the GP in later years, it seems I suffer from white coat syndrome, so that subsequent readings at a single visit to the GP got higher and higher. The blood pressure pills episode was in my 30's, and now in my mid 60's it seems I am fine without a hastily prescribed unnecessary medication, or one at an inappropriately high dose.

BassGrammy Sun 29-Aug-21 11:52:41

I was prescribed statins, and although I was reluctant, I had no preconceived ideas about what the side effects would be. I took them for about a week and quickly developed muscle pain in my legs and a feeling of things moving about in my legs. On the advice of the doctor I stopped taking .them and the side effects lasted at least 3 months. He suggested trying a different type of statin, but that experience was enough for me to refuse that option!

Nanna58 Sun 29-Aug-21 11:47:54

Husband taken for years; once he took Co-enzyme Q10 no probs with pains and cramps. Good luck

bear1 Sun 29-Aug-21 11:29:52

i have been taking statins for a few years with no side effects my GP has this week said my cholesterol levels are up why ? have not changed diet etc, so has changed the statin i am taking, now have to wait and see if i start getting side effects if so will ask to go back onto current one

Janetashbolt Sun 29-Aug-21 11:27:45

I had to try different ones, I take mine in the morning only because it's the only pill I need to take at night and kept forgetting. Have you changed your diet as well, that might help reduce cholesterol and therefore reduce dependancy on statins? NOT A MEDICAL OPINION

Pammie1 Sun 29-Aug-21 11:26:59

@LovelyLady. I think you may be right. Some of the coatings used on the cheaper pills are more to blame than the drug itself. I remember receiving a box of generic tablets from the pharmacy instead of my usual branded ones. I had some unpleasant new side effects and as soon as they switched back to the usual branded packs, things went back to normal.

Pammie1 Sun 29-Aug-21 11:24:11

I started statins about 18 months ago and my cholesterol has dropped from 7.5 to under 5, but I’m not sure that’s entirely down to the medication because I modified my diet as well and followed the diet sheets supplied by the practice nurse. I had horrible symptoms after a couple of weeks but after discussion with my GP we found one that suits - they don’t all cause side effects and I think it’s a matter of searching until you find one right for you.