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Has anyone come off or cut down Omaprazole, what’s your experiences.

(138 Posts)
Itsnell Tue 30-Nov-21 19:59:24

Hello. Has anyone cut out or reduced omeprazole? Why did you come off or reduce them? How did you feel and how long did it take you? What do you take now for acid reflux.

I’ve been on 20 mg daily omaprazole for acid reflux and a hiatus hernia since mid 2019. The pandemic has meant I’ve continued to get repeat prescriptions and haven’t had a medication review with my GP during this time, however,
I’m thinking I should try to cut them down or cut out altogether as I’m getting all sorts of symptoms which could be side effects of long term use of omeprazole (PPI) use eg nausea and stomach cramps, my IBS is worse, leg cramps and restless legs twitches. I’ve read reports of the long term effects of PPIs and it’s concerning. Ok I know you need to weigh up the benefits of taking ppis against the non benefits.
Look forward to hearing your stories

SillyNanny321 Sat 11-Dec-21 12:08:07

Took Ranitidine till it was taken off the market & put on Lansoprazole for several years! Then a young doctor who I had not seen before or since decided I should leave Lansoprazole & take Omeprazole instead! A few months later I was so sick I couldnt keep just water down! Took two weeks in Hospital with many tests to find it was Omprazole causing my kidneys to fail! So had to use Gaviscon for years till another Doctor gave me Famotidine a few weeks ago! So far so good hopefully this will work without causing any problems! I think it just depends on each persons system how they adapt to medications!

Shinamae Sat 11-Dec-21 12:02:23

Famotidine…… that is what my doctor has prescribed me instead of the ”ozoles”… anybody had any experience of this medication?

Trisham Sat 11-Dec-21 11:49:01

Omeprazole reduces the acid so much that it can cause B12 deficiency which can cause cognitive issues. (Look up symptoms if B12 deficiency) Whilst its a good idea to discuss with GP when I read in the package it should be taken for 2 weeks she said her husband had been on it for 6 years! I was experiencing many side effects so gave it up. I also Reduced the number of carbs/trigger foods and very rarely suffer with acid reflux these days. I do also take ACV (with Mother) in water daily (2 tsp with water) daily. I would highly recommend researching on YT. My triggers were chocolate, bread, coffee sometimes.

missdeke Sat 11-Dec-21 11:47:07

I have GORD/GERD, hiatus hernia, diverticular disease, IBS, had a stomach ulcer etc etc. I've been on 40 mg omeprazole for around 40 years plus Gaviscon Advance. I take kefir daily, don't drink alcohol, avoid the onion/garlic family and highly spiced dishes. But if I try to reduce the omeprazole I start to suffer within hours.

I am also on butrans patches + paracetamol for spondyloslisthesis, spinal stenosis and osteoarthritis. Plus steroids for COPD.

I am at a loss as to what else to try, maybe I'll try the dlimonene.

katy1950 Sat 11-Dec-21 11:46:55

I came off omeprazole when I change my diet very little bread may every other day changed from potatoes to sweet potatoes no eggs plenty of fruit berries and nuts it's made the world of difference to my hyitus hernia

Nanjust60 Sat 11-Dec-21 11:35:55

On the subject of acid do you have an alternative you gave that doesn’t upset your stomach ?

Paperbackwriter Sat 11-Dec-21 11:34:05

My daughter has a hiatus hernia and bad reflux. She says the very best thing is Gaviscon Advance.

ClaraB Sat 11-Dec-21 11:26:41

The only reason I take Omeprazole is because it helps protect my stomach when I'm on steroids which I've been on and off for most of this year. I tried to come off them when steroids stopped a couple of months ago and was getting awful indigestion, something I didn't have before I took them. I think I will now try to ween off slowly.

Nanjust60 Sat 11-Dec-21 11:24:45

I have been on Omeprazole 10mg for a few years recently been getting stomach cramps thought it might be dairy or coffee but now wondering if it is the Omeprazole

Frogs Sat 11-Dec-21 11:24:15

I’ve been on Omeprozole on and off for the last 10 years. I have tried everything there is to control the symptoms without taking it. I have succeeded in being off the drug for six months or more at times. I’ve been on strict none fatty food, chocolate, cakes, carbonated or caffeine drinks etc etc, drunk gallons of Gaviscon. I am not overweight but lost so much when on these diets that people thought I was ill! Tried cider vinegar but that made it worse. Special yoghurts did nothing for me.
However despite everything I tried the symptoms have always come back and made my life a misery for months on end and I was concerned about what the acid was doing to my throat. So for the last 12 months I’ve given in and take 20m a day - I feel so much better in myself…….. hmmmm am wondering if I could maybe now try cutting down again ?. My GP considers I’m on a low dose…..I think as others have said you should take the advice from your GP.

HazelGreen Sat 11-Dec-21 11:23:27

Sorry not read thru all replies. My mother was on that and yes side effects. She was in hospital once and dr there said not to use it but just gaviscon liquid as needed or after main meal.

polnan Sat 11-Dec-21 11:23:04

I am very like you Rosesarered... I take and have taken for some years now,, 20 mg of Om... one night and one morning, I am 85 and it is only these lockups/covid that has caused me any discernible problems,, if I do accidently miss a dose, I soon feel it, but listening to all of this, I may try to cut down

as for advice to see a doctor!!! no comment.

nadateturbe Sat 11-Dec-21 11:21:22

Maya1

I am also worried about the long term effects of Omeprazole.
I have taken it for years after being diagnosed with Barretts Esophagus.
I don't know whether to try and stop taking it. The doctor seems to think its OK. I am extremely concerned though.

My son has BA and if he misses one lanzaprazole is awake with very bad reflux.

pascal30 Sat 11-Dec-21 11:13:44

I was on Omeprazol for 10 years and feeling extreme exhaustion and restless legs, so with the agreement of my GP I stopped taking it. I use kefir and don't eat bread now, I also don't eat after 6pm. That has dramatically reduced acid reflux and increased energy levels.

Candelle Sat 11-Dec-21 11:13:21

I have been prescribed Omeprazole for ten or more years but just this week switched to Lanoprazole as I have developed another condition (the treatment for which is a two-year course!).

I have read about a possible link between dementia and this group of drugs and will raise it with the next doctor I see, as obviously that's something we can do without!

If I can then add anything useful, I will put it here or as a new thread.

Moggycuddler Sat 11-Dec-21 11:10:44

I take ranitidine instead. It works with less side effects. I had awful reflux but now very rarely. You could try ginger tea too. It helps. And the old faithful gaviscon at night, as long as it's 2 hours away from any other medications, as it affects the absorption.

HannahLoisLuke Sat 11-Dec-21 11:07:59

I’ve been taking 20mg a day if Omeprazole since being diagnosed with silent reflux in 2018. Then in 2019 I got Polymyalgia Rheumatica and was prescribed steroids. If I hadn’t already been on Omaprozole my GP would have prescribed it to protect my stomach and bones which can be damaged by the steroids, just a couple if the side effects if taking those!
I’ve been tapering the steroids but had a relapse so had to start again. I’m now down to 7mg and wondering if I can reduce the Omeprazole. I tried missing a capsule a couple if days ago and the heartburn came back. I do also take ACV as a capsule and also make my own kefir, when I can be bothered. Also a probiotic about twice a week.
I am having a telephone review with the practice pharmacist on Dec 14th so I’m going to thrash it out with her. I’m fed up with having to take these drugs.

sandelf Sat 11-Dec-21 11:05:24

I was prescribed this but read about it and thought the damage (in the long term) was not something I wanted. SO, Googled like mad. Firstly - listen to body. If discomfort happening stop eating. Make sure diet suits you and you're having enough liquid. Posture! Think 'dancer', nice long front. And then I take 5gm (teaspoon) of L Glutamine each morning. It is an amino acid that the gut lining needs a lot of. Helps me. If you try it and find it good - buy a big tub of the powder - much cheaper. www.naturesbest.co.uk/your-goals/build-power-strength/glutamine-powder/

Aggy21 Sat 11-Dec-21 11:03:49

This is all very interesting. I’m now on lanzopraxole, having been on omeprazole, I was diagnosed with a hiatus hernia after an endoscopy 5 years ago. I’m concerned about long term effects of these drugs but worried about coming off them. I have a constant cough with the acid coming up. My husband died from oesophageal cancer this year. I’m going for another endoscopy as I’m so worried about it and hoping to talk to a knowledgeable consultant re pros and cons of meds and other options..

Albangirl14 Sat 11-Dec-21 10:56:11

I was prescribed this drug to protect my stomach from the effects of a strong pain killer but as soon as I could manage on paracetamol or ibruprofin I came off Omprazole as it upset my stomach and bowels. I would not want to have to take it again. If you phone your GP you should at least get a telephone consultation.

Shinamae Sat 11-Dec-21 10:53:15

I actually managed to speak to my doctor yesterday about coming off this medication and he has prescribed me something else, not sure of the name of it but will come back on thread when I get it and see if anybody has an opinion on it I did say I would rather have medication with no“ozole” in it ??

RosesAreRed21 Sat 11-Dec-21 10:48:09

I have been on them for over 20 years and have never been asked in for a review - if I go a day without taking one the reflux is awful ? but they did tests and said I have GERD

inishowen Sat 11-Dec-21 10:46:32

I weaned myself off Omprozole after being on it for years. I started taking it every other day then every two days until I stopped. If very occasionally I have had a meal that will cause symptoms I will take one. Some nights I take Gaviscon when the heartburn is unbearable.

F1Grandma2 Sat 11-Dec-21 10:46:31

I’ve been on Omeprazole for about 15 years maybe it’s time I had a chat with my (new) GP! The Dementia issue worries me as my Dad and paternal Grandmother were sufferers. I also have noticed some hair thinning which is also a side effect.

Linda65 Sat 11-Dec-21 10:43:44

I was prescribed OP after developing silent reflux after gallbladder removal. Have been taking it for a few months but my GP has suggested I wean myself off because of the association with bone thinning