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Scared to death .......

(33 Posts)
Granless Tue 25-Jan-22 20:59:06

Hi All, Please, if you can, help me to make a decision.
This week I’ve been given a diagnosis of Osteoporosis - to say the side-effects of the prescribed medication have horrified me is putting it mildly.
I would like to hear from people who have taken Alendronic Acid, their thoughts, reactions to the drug and whether they sought alternatives such as natural remedies. I really do feel that this drug is a ‘serious’ one which needs careful consideration.

Sparklefizz Wed 26-Jan-22 09:09:18

I have Osteoporosis and Osteoarthritis. I was diagnosed with Osteoporosis in 2001 and refused the drugs because of the bad experiences I was having with my 5 year drug programme for breast cancer which caused other conditions.

I did a great deal of research and decided to go down the alternative route. A book I found very helpful was "Osteoporosis: The Silent Epidemic" by Marilyn Glenville, in which she gives plenty of information about both the drugs and alternatives.

I put together a protocol for myself and the 3 DEXA scans I have had since have shown no deterioration. I have had no fractures. I'm due another DEXA this year so will find out the situation then.

Marydoll Wed 26-Jan-22 09:16:07

Years of high dose steroids, RA, osteoarthritis and a genetic element have impacted greatly on my bones and will continue to do so.
However, there are worse things which can happen, so I have never dwelt on it.
Everyone's circumstances are different. You have to decide what is right for you.

Luckygirl3 Wed 26-Jan-22 09:21:17

The list of side effects of these treatments (and indeed most treatments) is worrying - I understand how you feel.

But osteoporosis is not to be taken lightly. Maywalk's post gives you a very clear picture of the consequences of osteoporosis.

I am in a fracture boot at the moment, having broken my foot on Boxing Day. I only bumped it very lightly and - bingo! - another broken bone.

I would strongly advise you to grab any treatment you are offered with both hands.

I cannot take alendronic acid because of pre-existing gastric problems, but I have had several other treatments over the years and am currently on 6 monthly denosumab injections. I have had no side effects from this or any of the other treatments that I have had.

Go for it! Repeated broken bones is no picnic.

Maywalk Wed 26-Jan-22 16:40:29

Granless

Maywalk - for 92 yrs of age I think you are doing very well. smile

Many thanks Granless.
It maybe because I am kept busy answering folks worldwide about the war years. Everyone is after living history since I wrote a book about the first 20 years of my life, over 17 years ago taking in the years from 1930 up to 1949 when I got married.
It takes my mind off broken bones and Epilepsy apart from Arthritis and Asthma. Not forgetting the pacemaker.
At the rate I am going I will soon be having board and lodging in our local hospital because I seem to be spending more time in there than at home.
Its a good job I can take my I-pad with me when I go. LOL

Granless Wed 26-Jan-22 18:05:58

Maywalk - You soundca very interesting lady. I hope your local hospital is 5*!

Granless Wed 26-Jan-22 18:13:54

Update: Visited GP today to discuss where we go from here. My Dexa score is not good so, it looks like AA is a definite. I did ask about ‘alternative’ medicine but my score is a bit late for that. I was taken aback to hear this.
So, thank you Gransnetter’s for your comments, they have certainly been helpful. OP doesn’t seem to be the gloom and doom I’d envisaged. I hope I don’t have to buy a wig!

Happygirl79 Wed 26-Jan-22 18:25:10

I have osteoporosis and have been taking aledronic acid for 2cyears now without any side effects. I also walk 5 miles daily to try to keep my legs strong to hopefully prevent more falls. I had a fall previously and broke my arm in 5 places hence they found that I had osteoporosis.
Try not to worry. Do your best to stay strong.