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Ear problems, feeling pathetic

(34 Posts)
Musicgirl Sat 16-Apr-22 20:20:22

Sometimes I feel it is easier to open up in an anonymous forum like this. I have had problems with my ears all my life. When I was ten l had a radical mastoidectomy in my left ear. I had had continual infections and antibiotics did not work. Tetracycline was tried as a last resort and it left a horrible brown stain and weakened enamel on a back tooth (thankfully it was a back tooth). I was deafened in that ear as a result but my right ear compensated. I was still very prone to infections and had life changing surgery in 2010 where I had the remaining infection removed, plastic bones to replace the originals and a remade, skin grafted eardrum. The hearing improved to the point where I no longer needed a hearing aid.
During lockdown I started having problems with my right ear and have gradually become deafer. The appointments have been protracted and I have had the best possible treatment including a CT scan and an MRI scan. The outcome is that the problem is behind the eardrum and the first course of treatment is a local anaesthetic and the consultant will try and get rid of the infection. If this doesn’t work, I will need an eardrum repair. I am normally stoical and have a fairly high pain threshold but the consultant is fairly new and has less than zero bedside manner and this was all said so clinically. I was advised to have the local anaesthetic treatment first but could have gone straight for the more radical option and I am wishing I had as it would get it over and done with. I am aware that people have far more to contend with than me and that clinically l could not have had better treatment but I am feeling more nervous about this procedure than any of the other major things I have had on my ears. I found my old hearing aid and asked the consultant if it was ok for me to wear it as l work as a musician and rather need my ears. I was told, with no niceties, that I need two hearing aids as I have a mid-range hearing loss, which is sensoneural as well as conductive. I don’t mind the aids as they will help. Sorry for long, rambling, self-pitying post but I feel better for writing about it. I don’t want to bore and bother people in real life.

VioletSky Sat 16-Apr-22 20:27:28

You aren't a bore or a bother real life or otherwise

I can see why you are anxious about this.

I hope your procedure goes well with the best possible outcome

Dogsmakemesmile Sat 16-Apr-22 20:28:07

This is exactly the right place to write down all the above! You certainly are not self pitying in any way. I have no idea what you are going through but others may have ideas or experience to assist. Gransnet is the perfect place for such support.
I think you are incredibly brave and have shown great fortitude. I will cross my fingers that the procedure goes well. Do keep posting.

MayBee70 Sat 16-Apr-22 20:29:03

You’ve every right to be miserable. Especially as a musician. Some consultants have no bedside manner whatsoever. I do hope the treatment works x

ixion Sat 16-Apr-22 20:29:06

You have done the right thing Musicgirl by coming on here to share. Many people do and gain support from this friendly bunch.
I can't imagine the hell you must go through. Even 'simple' earache is the worst type of pain when you are suffering and just don't know where to put yourself.
I know nothing of living with hearing aids but I am certain someone more helpful will be along very soon.
In the meantime, my thoughts are with you.

midgey Sat 16-Apr-22 20:30:39

I’m sorry you are having such a horrible time. flowers

BlueBelle Sat 16-Apr-22 20:40:11

You know what they say a trouble shared is a trouble halved
I hope it’s helped writing it down You sound as if you ve had a pretty rough ride but have done so well to overcome it
I always think it’s scary having things done that involve your face so teeth ears eyes etc always scare me

It’s a shame the consultant didn’t have a bit more of a ‘put you at ease’ manner but some doctors and consultants just don’t but it doesn’t mean they are not good at their job
Could you change your mind about the treatment and go for the bigger one is it worth a phone call
I m sure some on here will have much more knowledge than me but I wanted to wish you well and send you some ?

crazyH Sat 16-Apr-22 20:42:45

So sorry to hear of your problems. Here, I'm feeling sorry for myself with just a blocked ear (I think some water entered my ear, while taking a shower)
Feel free to come on here and offload your worries. I'm sure there won't be any pain during the procedure. Won't there be some sort of anaesthetic ? Good luck flowers

DillytheGardener Sat 16-Apr-22 20:45:13

Sorry that you are having such a time of it, I empathise, I have sciatica (again) and 24/7 pain has me at my wits end.

You are showing great fortitude, and don’t shy away from sharing here, as you will have seen from previous posters you can receive quite wonderful support on GN.

I hope your procedure goes well, make sure you vocalise your anxiety to the doctor, and ask if he could try to keep you calm, as you are feeling frightened. I find that sometimes makes the tough ones get off the conveyor belt and be a bit kinder.

Musicgirl Sat 16-Apr-22 22:52:08

Thank you all for your very kind words. I am feeling much better. I would honestly far rather go to the dentist than hospital; the ENT department in particular. The Tetracycline damaged tooth has a porcelain crown on it (my only crown) and looks much better than it did previously with a bad stain and large filling. I would sooner go through that procedure again. I know l will be fine though. When I was a little girl, my Dad used to say that earache was worse than toothache because you could have a tooth out but you couldn’t chop your ear off. It always made me feel better. CrazyH, it is horrendous when your ear or nose are blocked, isn’t it? It makes you feel as if you are in an echo chamber.

silverlining48 Sun 17-Apr-22 08:07:48

My dh had had similar problems with constant infections over many years. In the end he had a cholosteatoma operation which took 7 hours but he no longer has infections, Two hearing aids though which he can manage.
Hearing and lack of it is seriously underestimated as an issue until it happens to you. It can be really isolating and as it’s invisible less understood.
If you are not happy can you ask for a second opinion?

Musicgirl Sun 17-Apr-22 08:40:30

Although the consultant was not encouraging, he is the senior consultant and I trust his expertise. I truly sympathise with your husband, silverlining48. I only learned the word cholesteatoma last year but it seems the mastoid problems l had were caused by this. I think it is very common for hospital consultants to be rude/offhand. The one I had as a child was a master of the art. Thankfully he did a fantastic job in the first mastoid surgery l had. I first saw him when I was three or four. My mother well remembers taking me to see him when I was this age. She could not drive at this point so we went by bus and my younger brother, who was a toddler at the time, obviously had to come with us. When we went into his surgery, he took one look at my brother and said: “if that’s not the patient, get him out!” My poor mother. Many times afterwards we saw red-faced mothers with small children running out of his surgery. His receptionists were expected to look after them. This was the late sixties. Imagine that now!

Luckygirl3 Sun 17-Apr-22 09:14:43

You poor thing - I hate that echo chamber effect.

Talking of intolerant consultants. I took one of my DDs to an ophthalmic consultant when she was about 18 months (she had had problems from birth). Unsurprisingly she kicked off when he approached her with drops to go in her eyes. He got really angry and flung the bottle of drops across the room!
Needless to say we did not see him again - another consultant offered to see her at his rooms for free - he was lovely.

Baggs Sun 17-Apr-22 09:19:40

Hope the treatment goes well, musicgirl.

luluaugust Sun 17-Apr-22 09:21:23

I am sorry, hope you get some improvement flowers

Oopsadaisy1 Sun 17-Apr-22 09:24:02

Poor you, I’ve ‘suffered with my ears’ since I was a child, it’s annoying, painful and depressing, I now have BPPV just to add to the mix and I’m sitting here with earache once again today,
So I can understand how you must be feeling and my troubles are nothing compared to yours.
Vent away here on GN.
You have my sympathies and I hope you feel better soon.

silverlining48 Sun 17-Apr-22 09:48:42

I had an operation a few days ago and as. The surgeon was marking my leg he sudden got came out with a very rude comment which shocked and upset me. There was no need fir it at that moment and though he was hauled up by a. Itse present and do d apologise the. NExt day he was sorry I was upset rather than what he said was so wrong, so rude.
Yes they can be very rude, it’s not acceptable.

silverlining48 Sun 17-Apr-22 09:49:42

Hauled up later by the nurse present.. typo

Caleo Sun 17-Apr-22 09:55:26

The consultant is new, poor bedside manner, and uses clinical language. I was an experienced nurse and I know most patients appreciate a consultant with friendly manners. I can also reassure you a brusque consultant may be as good as if not better than one with pleasant mannerisms.

What has happened with you is these recurring infections have depleted your energy and natural optimism. no wonder! You have been exceptionally brave and good. As others have said you did well coming here to express your fear.

All the actual information you give us sounds good for the outcome of your treatment and you will be okay. It seems that this is an occasion for you to take the advice of the experts and hand over the decision to them. Once the infection and the operation are dealt with your good spirits will return and you will be able to get on with life.

markrob7484 Sun 17-Apr-22 20:14:32

Message deleted by Gransnet for breaking our forum guidelines. Replies may also be deleted.

grannyactivist Sun 17-Apr-22 20:19:30

(Previous post has been reported.)

Musicgirl you have my complete sympathy as I’m a total wimp when it comes to ear problems. Your stoicism does you credit and I truly hope that the procedure has the desired result. ?

Chewbacca Sun 17-Apr-22 20:46:38

.

BlueBelle Sun 17-Apr-22 20:47:19

Oh er mark OB again

BlueBelle Sun 17-Apr-22 20:48:04

Whoops that was meant to say marknob

Musicgirl Sun 17-Apr-22 20:55:49

Thank you all once again for your help and support. It means a lot.