My Mum has Alzheimers and Vascular Dementia. She is obstructive, occasionally violent and has a complete disconnect with what she feels she can do and what she actually does. A couple of days ago, she was admitted to hospital by ambulance as she was completely unresponsive to any stimulus or communication.
Over the last few months, she has become increasingly immobile and as her primary carer is the same age as her with ankylosing spondylitis and poor memory, he is literally on his knees with fatigue even though we have daily care too. As her NOK and LPA, I took a decision that she should go into respite care on discharge from the hospital to give him a break. I explained this to the hospital and asked them not to say anything to her until we were nearing discharge as I don't want her to be anxious. Oh no, they will decide if she should do that with her. A Social Worker has already had her tested for capacity and determined she hasn't got it. The hospital aren't interested. The previous Falls Team and OT despair of her as she won't be helped where she is so deluded.
This morning I had a call from a very nice Physio who has been talking to a very sweet old lady who they managed to assist into a chair. She tells them that she only uses a frame whilst out and about but walks totally independently at home. She has her bedroom upstairs but as she has a stair lift, it is no problem to get about! None of this is true and, as she punched a member of staff yesterday, she has already shown them what we have to put up with.
I despair and every time we go into hospital (the same one) we go through a similar thing. It is just so stressful.
I've got another 'keen'... Ouch!