Pancreatic insufficiency

Barleysugar You would be very welcome. Do come and join.

My DH has now been taking Creon for well over 10 years having been diagnosed then with an endocrine tumor on his pancreas. He has been extremely fortunate - has a monthly endocrine injection too which is keeping everything ok .
He couldn’t cope without Creon though. He has approx 7 with a main meal & 2 to 3 with snacks.
Interested in the support group +Spaklefizz.

If anyone is interested, I run a closed Facebook support group for people with Pancreatic Insufficiency. We have nearly 5,000 members all over the world and learn a lot from each other. I have EPI myself.

Search for Living with Exocrine Pancreatic Insufficiency if you fancy joining. All posts in the group are private, nothing appears in your FB feed.

I have taken it for 4 months. No particular problems but the dosage is very variable. Dietitian said 2 for a meal 1 for a snack.
Other expert advice said to treat it like wAshing up liquid. As in more with high fat meals. Maybe up to 8 with very rich meal. Lots of trial and error