Ostomy life

StarDreamer

ixion

I do hope that Baubles ' Specialist Stoma nurse and surgical team have already given all the help she may need and pointed her to what is out there.

Are you implying that I should not have posted that link?

Baubles, this is not a secure site. I wouldn't go there. I'm sure your clinicians and fellow grans, who have experience of this, can help you. will be able to help you.

ixion

I do hope that Baubles ' Specialist Stoma nurse and surgical team have already given all the help she may need and pointed her to what is out there.

Are you implying that I should not have posted that link?

I’ve read this to my husband who had an ileostomy in April. His comment is that it’s early days. It takes time for your body to acclimatise and everyone is different. He suggests keeping a food diary so you can note the effects.
He recommends that if you feel tired, have a lack of appetite or get cramps, do see a medical professional. He had problems last month due to magnesium and calcium deficiency.
Food wise, he’s been eating our home grown courgettes with no problems. I boil or roast or fry them. Carrots are OK too though he hasn’t eaten them raw.
The best of luck, from both of us.

I do hope that Baubles ' Specialist Stoma nurse and surgical team have already given all the help she may need and pointed her to what is out there.

LINK > forum.iasupport.org/

Thanks for the replies and PMs, I’m truly grateful.

How interesting Franbern, I think I’ll have to start experimenting.
I did think I had a blockage a couple of weeks ago and spent a few days in back hospital, however it turned out that adhesions were the culprit and not anything I’d eaten.

Ah the wind Smileless . Yes I’ve discovered that broccoli makes my bag fill with gas alarmingly quickly, it resembles a zeppelin straining to escape its tethers.

Thank you all for your good wishes.

I have no personal experience but a close friend has lived with one for many years and it does not stand in her way one bit - she lives life to the full.

I am glad that the emergency surgery saved your life and hope that your stoma will be no problem to you. The specialist stoma nurses will truly be your friend.

Had my permanent ileostomy back in 1990. So loads of experience.

I have a very substantial salad as my man most days. including tomatoes, etc. They have never caused me any problems. You really do need to experiment carefully with different foods. I cannot eat the skin of a baked potatoes and always peel apples.

Your operation has given you your life back, do not be afraid to live it to the full. Like with anything else, so people react more to some foods than other do. Only careful experimentation will show which you are able to eat.

If you do feel that a blockage is occurring, then learn the very early symptoms (mine, strangely enough is feeling hungry when I have just eaten.). Very quickly that will lead into a lump I can feel, and then what can only described as something like labour pains. Very debilitating. I find that heat is what sorts this out, a hot water bottle on my tummy, drinking a mug of the hottest water I can manage. Sitting in a hot bath. Usually, that sorts itself out within a couple of hours.

I've sent you a pm.

My mum had one too.
I know she peeled and seeded tomatoes but she still enjoyed them.
I think maybe you could call the nurse in the stoma team and ask for some ideas?
You could also look online as there's support groups and lots of advice there.

I don't have a lot I can add, sorry, but do wish you well.
Speedy recovery.
X

My mum had one baubles and she was advised against eating the things you have mentioned. I know this is fiddly and time consuming, but you can remove the skin and seeds from tomatoes and do the same with peppers.

I hope you don't mind my mentioning this, but trapped wind was a problem for mum so as much as she loved spring onions she had to avoid them and also limit the amount of cooked onions.

I wish you a speedy recovery and all the best for the future. Take care.

baubles, sorry but I have no advice to give, but am hoping someone will come along soon and help.
It must be awful craving a food and not being able to eat it.