Gransnet forums

Health

End of Life Care a decision of Home Care or Hospice

(30 Posts)
1summer Wed 20-Jul-22 15:19:40

My husband is receiving end of life care, he has Acute Lymphoblastic Leukaemia but it has crossed from blood to brain cells causing tumours.
I promised him he would be cared for at home and wouldn’t go back into hospital. The last few weeks he has gone downhill, and has received a lot of palliative care, carers twice a day and a McMillan Occupational Therapist has been very good.
But I am struggling, I didn’t realise how hard it would be, the constant washing of bed sheets, lifting him on/off bed and to camode, trying to cook tasty meals and snacks he would like, getting shopping and to various appointments and personal care when carers not here.
He has had three bad falls in the last few days and I have to ring Son and SIL to help me pick him up.
My Daughter has not become insistent we consider a hospice but I feel I am letting him down after I promised to look after him at home. I have spoke to him and he said whatever is easier me, that made me feel worse.
Has anyone else had experience of this, should I push on at home or put him in a hospice. What experience has anyone had of hospices.

pea007 Thu 21-Jul-22 17:34:18

I haven’t read all the replies to your post but I just want to say I’m so sorry about your situation and I feel for you. I have had close relatives who wanted to be looked after at home but in the end it was easier and better for all concerned for them to go into the Hospice as the nurses and doctors there were much more experienced on how to care for them, and keep them as comfortable as possible. I know that they originally wanted to stay at home but were so grateful the decision was made for them to go into the Hospice so please don’t feel have a second thought about putting him in a Hospice.

grandMattie Thu 21-Jul-22 17:50:47

My husband died a fortnight ago of prostate cancer which had spread everywhere. I cared for him in his last 4 months.

I received fabulous care from the local hospice in including carers twice a day and the community nurses can’t be faulted as they arranged the equipment, sorted out the medications, etc. I had no night help, neither Marie Curie nor McMillan offered me any.

Like you I had promised DH absolutely that he’d die at home and I kept that promise.

DH had been to two of the local hospices for palliative care and their care was beyond reproach, but they weren’t home.

I’m afraid you have to make the decisions yourselves but perhaps occasional respite care would be the answer.

All the best.❤️

Zonne Thu 21-Jul-22 17:56:27

I may be too late to suggest this, but would at Hospice at Home work for you both? www.nahh.org.uk/about-hospice-care/what-is-hospice-at-home

Iam64 Thu 21-Jul-22 17:58:08

1summer, sending love to you. It’s good to see you’ve agreed with your husband that hospice care is needed. Our hospice also has hospice at home care, which enabled one of our close friends to die at home. Others have gone into the hospice as their care needs meant that was essential. All best wishes to you all ?