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Fobbed off yet again by hospital

(86 Posts)
HAZBEEN Wed 26-Oct-22 11:20:59

Bit of background, I was diagnosed with a type of Blood Cancer in September 2020. Because of Covid I was given the news in a garbled phone call with no prior warning what to expect. Since then apart from 2 appointments at the infusion unit to have a blood check and receive my oral chemo prescription (back at the beginning) I only have 3 monthly phone consultations. After each of those (5minute) calls the consultant orders a new blood test before the next call and authorises my prescription which I pick up locally.
In July my consultant said she was leaving and I would get a new appointment in September/October from the new Doctor. Having heard nothing I rang the hospital and was told they didn't have a new consultant yet and the others in the department are refusing to take on any more patients.
So now I have no one looking after my case.
I emailed my GP (they dont take phone calls!) but no response after a week. Just rung PALS and they are chasing up the department but thats it.
I needed a rant about this, thanks for being there!

MissAdventure Wed 26-Oct-22 23:26:25

Oh, the cogs have turned, albeit slowly! grin
Sorry about that.

Callistemon21 Wed 26-Oct-22 23:25:56

I really must go to bed moon
Is it a full moon? ?

MissAdventure Wed 26-Oct-22 23:25:01

My brain is definitely exiting stage. Left.

It sidles out a bit more as the weeks go past.

Callistemon21 Wed 26-Oct-22 23:24:53

MissAdventure

DD? Daughter? smile

I was telling your mother about you.

Yes, welbeck, I was talking to MrsA about MissA
Sneaking.

welbeck Wed 26-Oct-22 23:22:52

presumably, that is you MissA, as the aside as it were, is addressed to Mrs A.
who would be your mother. ? i think. maybe.

MissAdventure Wed 26-Oct-22 23:17:28

DD? Daughter? smile

Callistemon21 Wed 26-Oct-22 23:05:09

???

Sorry, MrsAdventure, I mustn't laugh. It was your DD who made me do it.

MissAdventure Wed 26-Oct-22 22:34:03

I could have left her and taken home a nice cardigan (sorry, mother!) grin

Callistemon21 Wed 26-Oct-22 22:32:04

I've heard of lost property but not lost patients.

MissAdventure Wed 26-Oct-22 22:28:55

I could hear the edge of panic in their voices as the hours ticked by, and they tried to be all brisk and businesslike.

Callistemon21 Wed 26-Oct-22 22:26:27

Oh, relief!
Very careless of them

MissAdventure Wed 26-Oct-22 22:24:46

They rang me back when they'd found her.

Callistemon21 Wed 26-Oct-22 22:23:27

?

MissAdventure Wed 26-Oct-22 22:19:57

They lost my mum when she went in for an op! They misplaced her for several hours. grin

Callistemon21 Wed 26-Oct-22 22:16:53

They lost my blood results last time......

MissAdventure Wed 26-Oct-22 21:49:58

I am pretty convinced that I have taken up time and resources unnecessarily, because of all the admin gone astray, results not read...

Debbi58 Wed 26-Oct-22 21:37:27

Same thing happened to my Mum this year, she had her routine blood test at the doctors ( she's diabetic) they rang her to say her protein levels were too high , she was able to see a doctor at our oncology unit. Further tests showed she has Myeloma, they said it doesn't need any treatment atm and is receiving 3 monthly phone calls

MissAdventure Wed 26-Oct-22 21:31:33

I have had to involve pals at almost every step of my illness.

Just to get people to return a call is impossible, it seems.

Floradora9 Wed 26-Oct-22 21:27:43

This is terrible for you . DH has a medical problem that has radically changed our lives but our GP says he is not bad enough to have his appointment escalated with NHS so we have had to bite the bullet and opted to pay to see a consultant. This really goes against DH's principles but needs must as they say .

Luckygirl3 Wed 26-Oct-22 17:46:38

I am glad that PALS have come up trumps for you and hope that your treatment progresses well.

In a different league, but similar problem, I am on Denosumab injections every 6 months and it all used to be clear and efficient. I went to the Osteoporosis department at the hospital - they sent me a letter to come and have a blood test - they checked the test, then called me for the jab. Simple.

Now it is "shared care" with the GP practice - i.e. it has been farmed out to them. So I have to remember when a blood test is due, I have to ring surgery to make appointment for blood test, I have to tell the nurse which boxes to tick on the blood form, I have to ring the pharmacy to make sure they order in the Denosumab, I have to make an appointment for the jab, I have to check with the nurse whether the blood results have been checked and are OK before having the injection ........ and no-one who I see knows anything about osteoporosis or is monitoring whether the treatment is working and whether I should continue with it.

Luckily I have worked in health settings and also have half a brain left so can take charge of all this. But it does not feel right and I just have to go on having the treatment in ignorance of whether it is working.

Callistemon21 Wed 26-Oct-22 16:18:27

I'm pleased you've had progress, HAZBEEN

I was getting annoyed because I didn't get to speak to a doctor for my phone check-ups, just to a pharmacist who couldn't answer any questions and my Consultant never responded if I left a question with the pharmacist.
Now they have an extra new Consultant who sounds very good on the phone although I've never met him either.
The letter says "Do not attend the hospital for your appointment!" but I then have to go to the hospital to pick up my medication, they will not deliver it to GP surgery or a local hospital.
?

Whiff Wed 26-Oct-22 16:08:09

That's great news HAZBEEN. Hope you will now have regular treatments.

FarNorth Wed 26-Oct-22 13:08:55

I'm so pleased to hear there's been progress HAZBEEN, in such an upsetting situation.

Margiknot Wed 26-Oct-22 12:53:18

PALS are usually very good at stepping in to move mountains!!

Blossoming Wed 26-Oct-22 12:50:09

That’s great HAZBEEN, hope things go better from now on.