I am glad that PALS have come up trumps for you and hope that your treatment progresses well.
In a different league, but similar problem, I am on Denosumab injections every 6 months and it all used to be clear and efficient. I went to the Osteoporosis department at the hospital - they sent me a letter to come and have a blood test - they checked the test, then called me for the jab. Simple.
Now it is "shared care" with the GP practice - i.e. it has been farmed out to them. So I have to remember when a blood test is due, I have to ring surgery to make appointment for blood test, I have to tell the nurse which boxes to tick on the blood form, I have to ring the pharmacy to make sure they order in the Denosumab, I have to make an appointment for the jab, I have to check with the nurse whether the blood results have been checked and are OK before having the injection ........ and no-one who I see knows anything about osteoporosis or is monitoring whether the treatment is working and whether I should continue with it.
Luckily I have worked in health settings and also have half a brain left so can take charge of all this. But it does not feel right and I just have to go on having the treatment in ignorance of whether it is working.