Fobbed off yet again by hospital

Oh dear! How terribly frustrating and angry-making for you. I hope you get some proper responses very soon

You are having blood tests which must show the treatment is suitable so don't worry that you are not actually seeing anyone.

Thats part of it though Theexwife, Unless someone orders the blood test I wont be having them or having my medication authorised!

HAZBEEN sorry you are being treated so badly. It's ironic this morning on the news they where only saying they where making it a priority that cancer patients get the treatment they need.

I have found since I moved from the West Midlands 3 years ago to the north west how different the health authorities are. Because I moved finally got a diagnosis for my neurological condition and found out about my heart condition both which I was born with. I am now 64.

Hopefully you have the help you need very soon.

I am so sorry to learn that you have been treated this way.
However, the hospital have a duty of care and your next move should be to lodge a formal complaint through their PALS department, and I mean, make a lot of noise!
Make an appointment to see your GP for an immediate referral to an alternative hospital as a matter of urgency - you deserve better than this and I wish you well.

I’m very sorry you’re not getting the support or treatment you need HAZBEEN. Could you ask for a referral to a different hospital who can provide a relevant consultant? I would definitely be looking for a new GP, that is disgraceful.

Crossed posts Parlor Games

Just a call from the hospital, amazingly they suddenly have a cancellation appointment next week! Seems PALS worked their magic! Now just have to get a blood test done before next Wednesday.
Thanks for all your comments and support.

HAZBEEN - Write to your MP - a simple letter explaining your 'patient journey' should be enough - send a copy to your local doctor, hospital, department - whoever (not a blind copy but one where everyone sees everyone). Can do it all online. I have been shocked at the effect this type of thing has in getting something done when previously it could not...

That’s great HAZBEEN, hope things go better from now on.

PALS are usually very good at stepping in to move mountains!!

I'm so pleased to hear there's been progress HAZBEEN, in such an upsetting situation.

That's great news HAZBEEN. Hope you will now have regular treatments.

I'm pleased you've had progress, HAZBEEN

I was getting annoyed because I didn't get to speak to a doctor for my phone check-ups, just to a pharmacist who couldn't answer any questions and my Consultant never responded if I left a question with the pharmacist.
Now they have an extra new Consultant who sounds very good on the phone although I've never met him either.
The letter says "Do not attend the hospital for your appointment!" but I then have to go to the hospital to pick up my medication, they will not deliver it to GP surgery or a local hospital.
?

I am glad that PALS have come up trumps for you and hope that your treatment progresses well.

In a different league, but similar problem, I am on Denosumab injections every 6 months and it all used to be clear and efficient. I went to the Osteoporosis department at the hospital - they sent me a letter to come and have a blood test - they checked the test, then called me for the jab. Simple.

Now it is "shared care" with the GP practice - i.e. it has been farmed out to them. So I have to remember when a blood test is due, I have to ring surgery to make appointment for blood test, I have to tell the nurse which boxes to tick on the blood form, I have to ring the pharmacy to make sure they order in the Denosumab, I have to make an appointment for the jab, I have to check with the nurse whether the blood results have been checked and are OK before having the injection ........ and no-one who I see knows anything about osteoporosis or is monitoring whether the treatment is working and whether I should continue with it.

Luckily I have worked in health settings and also have half a brain left so can take charge of all this. But it does not feel right and I just have to go on having the treatment in ignorance of whether it is working.

This is terrible for you . DH has a medical problem that has radically changed our lives but our GP says he is not bad enough to have his appointment escalated with NHS so we have had to bite the bullet and opted to pay to see a consultant. This really goes against DH's principles but needs must as they say .

I have had to involve pals at almost every step of my illness.

Just to get people to return a call is impossible, it seems.

Same thing happened to my Mum this year, she had her routine blood test at the doctors ( she's diabetic) they rang her to say her protein levels were too high , she was able to see a doctor at our oncology unit. Further tests showed she has Myeloma, they said it doesn't need any treatment atm and is receiving 3 monthly phone calls

I am pretty convinced that I have taken up time and resources unnecessarily, because of all the admin gone astray, results not read...

They lost my blood results last time......

They lost my mum when she went in for an op! They misplaced her for several hours.

?

They rang me back when they'd found her.

Oh, relief!
Very careless of them