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Osteoporosis

(57 Posts)
MissAdventure Wed 09-Nov-22 11:06:08

I've had increasing pain over the years, one hip in particular, and the bottom of my back.

I had a dexa scan, and it shows I have osteoporosis, again, in particularly in one hip and my back.

So, I have been surprised to read that osteoporosis isn't painful.

Is that others' experience, too, please?

Sparklefizz Wed 09-Nov-22 11:13:13

I have osteoporosis and I have a painful lower back and pain in my groin which I understand is due to hip problems.

MissAdventure Wed 09-Nov-22 11:16:23

I was really surprised to read that it shouldn't cause pain!
All that I have read is that it can cause small fractures which then cause pain.

I've not got a broken back, as far as I know!

Whiff Wed 09-Nov-22 12:31:30

Miss A my mom had osteoporosis from mid 50's until her death aged 90. She was in pain with it. And she strunk by 3"s. It was in her back and ribs.

MissAdventure Wed 09-Nov-22 12:36:56

My mum was in a terrible state with it.
It left her bent forwards and unable to straighten up, and twisted to one side, to the extent that she couldn't breathe properly.

She also had relentless pain, for years.

Well, mine is just at the "ooooh! ouch!" stage so far, so I suppose I'm lucky in that respect.

Esspee Wed 09-Nov-22 12:51:36

My mother SUFFERED from osteoporosis, truly suffered.
That is why I decided not to go through the menopause, the main cause of osteoporosis in women.
I am so sorry MissAdventure that you too are suffering. Treatment will help prevent it from getting worse but if you have daughters or granddaughters please make sure they know they can avoid the condition thanks to modern medicine.

TerriBull Wed 09-Nov-22 13:21:30

My late mother was affected by it in the final 8 or so years of her life, during a consultation with her utterly useless GP rather uninformed doctor, he told her "nothing good posture won't sort out" shock I won't say she was bent right over, this was how Camilla Parker Bowles described her mother, and I believe Camilla is a patron of The Osteoporosis Society. My mother did need one of those wheel walker contraptions towards the end of her life.

When I consulted an endocrinologist after being diagnosed with an under active thyroid, he did advise me that higher doses of Thyroxine can affect bone density, I currently take 150mcg which is fairly high. His advice then was to do load bearing exercises at the gym, which I did fairly regularly until Covid struck. I must get back into the habit of going to the gym again.

I sympathise with you Miss Adventure

MissAdventure Wed 09-Nov-22 13:32:45

Thank you.
It's not too much of an issue, yet.

I just need to keep repeating that it doesn't hurt to myself.

GrannyGravy13 Wed 09-Nov-22 14:03:42

I was diagnosed with osteopaena (sp) (beginnings of osteoporosis) nearly 27 years ago.

I took the alendronic acid tablet once a week, I had terrible side affects and after several meetings with GP took the decision to stop. He advised a diet high in dairy and vegetables and weight bearing exercise.

I find that if I keep active, go to the gym along with lots of stretches I am pain free 90% of the time.

growstuff Wed 09-Nov-22 14:22:42

Esspee If you do that, please also remind them that longer exposure to oestrogen also increases their risk of certain forms of breast cancer.

growstuff Wed 09-Nov-22 14:28:51

GrannyGravy Has the osteopenia got worse?

I've just been diagnosed with osteopenia in my hip after a DEXA scan. I've also been prescribed letrozole, an oestrogen blocker, to reduce the risk of my breast cancer returning. I already have a slight pain in my hip, although I don't know if it's related to the osteopenia.

I have appointments with my GP and the hospital next week and want to be prepared with as many questions as possible. I guess I'm going to have to balance the risk of a cancer return against developing full-blown osteoporosis.

GrannyGravy13 Wed 09-Nov-22 14:39:13

No it hasn’t growstuff I broke my foot and ankle just over 5 years ago and had my bones checked and they were no worse.

I have put on a bit of weight due to my intake of milk (mostly in latte’s) and cheese and muscle weighs more than fat. I feel
much better without the weekly tablet, as I already have stomach problems due to prescribed steroids over the last 50+ years for asthma.

Glorianny Wed 09-Nov-22 14:52:05

My mother had pain with osteoporosis but mostly because she had fractures in her vertebrae.
I had early treatment for it, it was reduced to osteopenia and my last bone scan was normal for my age.
I do do tai chi-excellent for weight bearing because of transferring from one leg to another and started Pilates in lockdown.

Skydancer Wed 09-Nov-22 14:55:13

I've got osteoporosis and take a weekly tablet. What are easy to do weight bearing exercises please? I haven't been advised to do this.

humptydumpty Wed 09-Nov-22 14:56:44

I've had osteoporosis now or maybe 5 years? It does not hurt at all - the only pain I've experienced is from broken bones (both wrists, and a hip). I took alendronic acid until I broke my hip and I was 'moved up' to Denosumab which is great as it only involves an injection every 6 months!

GrannyGravy13 Wed 09-Nov-22 14:59:39

Skydancer

I've got osteoporosis and take a weekly tablet. What are easy to do weight bearing exercises please? I haven't been advised to do this.

Walking, cycling, resistance exercises with a band or using light weights, Tai Chi, Pilates or Callanetics are all good.

growstuff Wed 09-Nov-22 15:03:44

Skydancer

I've got osteoporosis and take a weekly tablet. What are easy to do weight bearing exercises please? I haven't been advised to do this.

I'd like to know that too. I know walking is supposed to be good. My balance is terrible because I have diabetic neuropathy in my feet, so I struggle with some exercises, although I'm researching what would be possible.

GrannyGravy13 Wed 09-Nov-22 15:07:05

growstuff

Skydancer

I've got osteoporosis and take a weekly tablet. What are easy to do weight bearing exercises please? I haven't been advised to do this.

I'd like to know that too. I know walking is supposed to be good. My balance is terrible because I have diabetic neuropathy in my feet, so I struggle with some exercises, although I'm researching what would be possible.

growstuff if you could get to a Pilates or Callanetics class hopefully the instructor would be sympathetic to your capabilities.

The classes I go to have an age range of 40+ years with a variety of abilities all of which are taken into account and exercises adapted to suit.

Hellogirl1 Wed 09-Nov-22 15:09:19

2 and a half years ago I had a bad fall, fracturing 3 vertebrae. I suffered with my back before then, but it`s been much worse since, and a few months after the fall I was told that I have osteoporosis, as well as osteoarthritis that I already knew about. I take an Alendronic acid tablet once a week, if it`s doing me good I haven`t noticed.

growstuff Wed 09-Nov-22 15:47:48

Thanks GG13. I'll have a look.

Barmeyoldbat Wed 09-Nov-22 15:53:46

I have it as well, I was prescribed the weekly tablets but I had to stop due to my liver complaint. For two years I have been having a 6 monthly injection instead , called Denosumab and it seems to work well. I didn’t break anything when I was knocked off my bike and it fell on top of me. As for pain, well I get pain but I have three major conditions that cause pain so I don’t know

Happygirl79 Wed 09-Nov-22 15:57:05

I discovered that I had osteoporosis after a fall 6 years ago when I broke my arm in 5 places. I shouldn't have been surprised as both my mum and dad had it too. I take alendronic acid once a week plus vitamin D twice a day. I avoid pain by being active and walk 4 miles each day which helps me enormously

Barmeyoldbat Wed 09-Nov-22 16:19:59

Yes you are right Happygirl exercise does help pain no end, cycling is my main exercise with some walking and swimming on good days

Esspee Wed 09-Nov-22 16:35:35

growstuff

Esspee If you do that, please also remind them that longer exposure to oestrogen also increases their risk of certain forms of breast cancer.

Only in those pre-disposed to it*growstuff*.
Sometimes quality of life is more important. Actually I was told that one glass of wine of an evening puts you at higher risk than taking oestrogen, as does being overweight.

Rosie51 Wed 09-Nov-22 16:36:50

growstuff

GrannyGravy Has the osteopenia got worse?

I've just been diagnosed with osteopenia in my hip after a DEXA scan. I've also been prescribed letrozole, an oestrogen blocker, to reduce the risk of my breast cancer returning. I already have a slight pain in my hip, although I don't know if it's related to the osteopenia.

I have appointments with my GP and the hospital next week and want to be prepared with as many questions as possible. I guess I'm going to have to balance the risk of a cancer return against developing full-blown osteoporosis.

I was on letrozole for 3 years for breast cancer and was put on calcium tablets to counter that it increases the chances of osteoporosis. My DEXA scan showed osteopenia, but it was thought when I eventually transferred to tamoxifen (which they said strengthens bones) that it might resolve. I'm still taking calcium tablets although I have finished taking tamoxifen. Not had a DEXA scan since, it would be interesting to know what's going on, but my hip pain has greatly diminished (crosses fingers and toes).

MissAdventure when I suggested my hip pain was down to the osteopenia it was dismissed because 'neither osteopenia nor osteoporosis cause pain' Well something was!