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Anyone been diagnosed with Primary Bilary Cholangitis ?

(6 Posts)
HeavenLeigh Tue 04-Jul-23 20:20:59

Yes just joined recently foxygloves, wasn’t aware of them, but I think they are going to be very helpful

Foxygloves Fri 30-Jun-23 21:03:29

“Any other side effects “:etc blush

Foxygloves Fri 30-Jun-23 21:02:29

DH had PSC - Primary Sclerosing Cholangitis diagnosed in about 1986. He had a liver transplant in 1997 which was successful.
I well remember Urso among the more successful drugs he took prior to the transplant.
As I recall, extreme photosensitivity was an issue. Can’t think of anynothervsideveffectsvnut much water has flowed under many bridges since those days.
Do you belong to any of the P BC/PSC support groups?

lemsip Fri 30-Jun-23 20:48:20

well I looked it up as I'd never heard of it..

Ursodeoxycholic acid (UDCA) is the main treatment for PBC. It can help prevent or delay liver damage in most people, particularly if you start taking it in the early stages of the condition. But it does not improve symptoms such as itchy skin or fatigue.

Primrose53 Fri 30-Jun-23 18:46:29

Sorry never heard of it.

HeavenLeigh Fri 30-Jun-23 18:14:32

If so have they been given ursodeoxycholic acid, would love to know how you are getting on, I also have another autoimmune illness AIH,