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Dupuytren's contracture

(31 Posts)
Kiwiqueen123 Fri 18-Aug-23 09:03:39

Just wondering if anyone has had surgery for this. My little finger is now completely bent onto the palm. This is on the left hand but its beginning to a lesser extent on the right.

I have been told the left hand will need surgery because the finger is so fixed. I'd be interested in hearing from others who may have had the surgery. I'm the only driver and we live rurally so plans will need to be made. The surgeon has said he will try and leave some fingers free and I should be able to drive within two weeks. Meanwhile I obviously need to keep the hand dry. Luckily I'm right handed. He thinks he may be able to fix the right hand with injections as its not quite so bad.

If anyone has had any experiences it would be good to hear.

Juliet27 Fri 18-Aug-23 09:10:44

No experience of it but I recently read that Bill Nighy has the condition. I wish you luck with the injections.

Grandmadinosaur Fri 18-Aug-23 09:12:00

Yes I had this procedure about 9 years ago. My finger wasn’t as bad as yours sounds.
When I had it done they put a sling on my arm which I wasn’t prepared for or didn’t realise. I think I had this for about 2 weeks. Obviously this curtailed things somewhat mainly showering etc. I don’t drive so can’t comment on that.
Hope it all goes well.

Fairislecable Fri 18-Aug-23 09:15:53

My mother had surgery for Dupuytrens , in her 70’s, and it worked for about 5 years but then it contracted again.

The same happened to my brother he was in his 60’s and his contracted again but he also grew a lot of scar tissue on his palm.

I have it mildly on the ring finger of my right hand, at present it is not too bad but I stretch it daily in the hopes of staving it off.

The problem is if you need the surgery you are left without a choice, you may have to bite the bullet.

Good luck.

Germanshepherdsmum Fri 18-Aug-23 09:18:11

I have it in both hands. Only two fingers on one hand and the thumbs unaffected. My little fingers are the most badly affected. I manage ok and haven’t considered surgery because of the obvious inconvenience afterwards.

Casdon Fri 18-Aug-23 09:20:07

It runs in my family, but luckily for me I’ve escaped it. My brother and one sister both have it, but haven’t needed surgery yet. My mum has had surgery three times on her right hand and twice on her left, and then moved on to injections. She always felt the surgery was worthwhile, and the recovery period only a minor inconvenience, so I know she would say go for it.

Redhead56 Fri 18-Aug-23 09:25:48

I have it in my right hand but I won’t be having surgery. I have had surgery on both hands and wrists for other conditioners. There was minimal success so not worth the added pain I will leave well alone.

Bella23 Fri 18-Aug-23 09:40:28

My DH and friend has had it. They say there is a link with Vikings and Neaderthals. My friend had the quick operations where they cut across your palm and it is returning after about three years. DH had to go to a specialised unit and they did a more invasive operation, which seems to have been very successful. He did come home with his arm in a sling and had to be driven around for a while but he did not keep the sling on for a while. We got a waterproof mitten off Amazon so he could shower.
He is left handed and it was his left two fingers badly bent and another on the way.He found shaving difficult.
At the moment he is very pleased with the results and is glad he went for the longer opperation.

Skydancer Fri 18-Aug-23 09:48:46

I also had it mildly on both hands. Then I broke my wrist and the little finger on that hand started to turn inwards and the knuckle is hard and fixed with no "give" in it. I am due to see a surgeon shortly to see what, if anything, can be done. However someone I know had the operation and advised me against it because it was so painful afterwards. To be honest I don't think I can face more physio and exercises so may just put up with it but it does hamper me. I drop things and can't grip properly. Good luck.

Grandmadinosaur Fri 18-Aug-23 09:52:47

Bella23

My DH and friend has had it. They say there is a link with Vikings and Neaderthals. My friend had the quick operations where they cut across your palm and it is returning after about three years. DH had to go to a specialised unit and they did a more invasive operation, which seems to have been very successful. He did come home with his arm in a sling and had to be driven around for a while but he did not keep the sling on for a while. We got a waterproof mitten off Amazon so he could shower.
He is left handed and it was his left two fingers badly bent and another on the way.He found shaving difficult.
At the moment he is very pleased with the results and is glad he went for the longer opperation.

Thank you for the fact about the link with Vikings. My surgeon mentioned it to me. It had slipped my mind but often remind my DH of this from time to time.

Germanshepherdsmum Fri 18-Aug-23 09:56:18

Apparently the latest thinking is that it was down to interbreeding amongst Neanderthals, but I do have a small amount of Scandinavian DNA. I would rather think of it coming from Vikings than Neanderthals!

62Granny Fri 18-Aug-23 11:18:49

My DH's two fingers curl under due to a stroke , he has BOTOX injections on the NHS into his hand and this helps to straighten them , but it only last about 3 months then we need to go back. So if an operation last 5 years that would be better.

MayBee70 Fri 18-Aug-23 12:14:22

Years ago I planned to have radiation treatment as I had Dupuytrans and Lederhosen. Thankfully I postponed it because, thus far it hasn’t progressed at all. There is a very good Facebook page support group for Dupuytrans. I would have gone with having a needle job done first but I don’t think that would help if there is already full contracture. Any trauma makes Dupuytrans worse and there’s nothing more traumatic than an operation so it’s lose lose really. I did get a lot of help from Derby hospital which is actually one of the leading hand specialist units in the world! I saw a programme about hands that said the little finger is actually one of the most important, used fingers which is why contracture makes life very difficult as one would assume the index finger is the most important. I’m very careful with my hands these days as the first nodules were a result of using a metal screwdriver and putting pressure on my palms. I’m wondering if, drastic as it may be, actual removal of the little finger would be easier than operating on the whole hand and possibly damaging the complicated nerves in the hand and wrist. Bill Nighy may be the most famous Dupuytrans sufferer but I bet he doesn’t have to cook meals or drive cars! If it does look as though there might be contracture in the other hand I would consider radiation treatment, but it’s not cheap.

Germanshepherdsmum Fri 18-Aug-23 12:29:30

I have adapted over the years. The only thing it stops me doing is touch typing, which I used to be able to do quickly - I’m now a slow one-finger typist.

Callistemon21 Fri 18-Aug-23 12:38:35

Germanshepherdsmum

Apparently the latest thinking is that it was down to interbreeding amongst Neanderthals, but I do have a small amount of Scandinavian DNA. I would rather think of it coming from Vikings than Neanderthals!

We all have some Neanderthal DNA but I understood that Dupuytren's contracture does occur in people with Viking heritage.
A relative has it but it's not from our side of the family.

Romola Fri 18-Aug-23 13:46:27

My sister, a professional musician, has had two operations to correct Dupuytrens, which enabled her to continue working. Not perfect, but worth it for her.
I had gathered that Margaret Thatcher had this too.

Germanshepherdsmum Fri 18-Aug-23 13:48:01

They always said it was passed down by Vikings but now some scientists believe it was Neanderthals mating with their cousins. Whoever it was, they owe me!

Callistemon21 Fri 18-Aug-23 15:32:55

Perhaps my Neanderthal ancestors mated with outsiders!

Well, so far no sign of it 🤞

Staceyann Fri 18-Aug-23 15:37:22

My brother had the op on his right hand 2 years ago, but the doctor at the time warned him the revision might not be permanent. Sadly, the two fingers are beginning to contract in again. He is a musician and this is very disabling for him

Lucyd Fri 18-Aug-23 15:55:01

I was diagnosed with this about ten years ago though I do think the diagnosis may have been wrong. I had been badly bitten on that had a couple of years before and it is exactly where the scar is. It has never given me a moment's bother. My GP said it was diagnosed by a French man who noted its prevalance among heavy drinking manual workers. I was quick to assure him that my alcohol consumption was moderate and I avoid heavy manual work! The doctor said the chap who "discovered" it is buried in France and that he went to visit the grave (he was quite a quirky GP). I hope you get some relief for your operation.

MayBee70 Fri 18-Aug-23 16:54:11

It’s really annoying that some GP’s still seem to think there’s a connection tween Dupuytrans and heavy drinking. Many of them also still believe it’s not painful which, in a lot of cases, it is.

Callistemon21 Fri 18-Aug-23 17:01:56

Lucyd it could be coincidence or it could be scar tissue.
Would massage help?

Germanshepherdsmum Fri 18-Aug-23 17:47:08

I’m very fortunate then MayBee, not painful at all (though the arthritis I’ve developed in my thumb is).

MayBee70 Fri 18-Aug-23 18:02:03

Germanshepherdsmum

I’m very fortunate then MayBee, not painful at all (though the arthritis I’ve developed in my thumb is).

I’ve got arthritis in my thumb, too. Thankfully it’s my left hand. Sometimes it’s very painful and then it isn’t; currently it’s pain free. My Dupuytrans is worse in my right hand and I don’t get any pain from that. But people on the Facebook page say they get a lot of pain from their Dupuytrans. It was when I developed lumps in my foot that I really started to worry because the thought of having to walk on hard lumps was scary but they never got worse after I started wearing cushioned insoles. My only vanity used to be my hands which I was very proud of. So much for that sad

BlueBelle Fri 18-Aug-23 18:55:07

My friend has it had the operation a few months ago and is no better if anything it’s worse