Anyone got any advice about osteoporosis?

I have it. The only difference is I have AMD' and my balance has completely gone. I haven' tbroken anything yet. ut Im not looking forward to it. ,

Perhaps ask to have a parathyroid scan.

After parathyoid surgery I was advised vitamin D3, calcium citrate, and 6 monthly injections. I'll never regain my height, however each year my osteoporosis scans are very slightly better.

Thanks for info and advice...much appreciated.
Was diagnosed fibromyalgia 18 years ago so have always had aches and pains but how I feel now is horrendous. Next tablet on Monday....

I have been on Alendronic acid for three years. I had a repeat scan after two years and there was an improvement especially in the femur.

I have had no side effects at all, I don't recognise any of the things you mention @Rosamund45. Are you taking any other new tablets?
It's worth knowing that the infusions are stronger and have higher risk of jaw problems.

I've had some really good advice from the ROS and you can ring them and speak to a specialist nurse.

Do your best to include more calcium rich foods in your diet rather than just relying on tablets. I don't like dairy but make myself have a drink of milk and some greek yoghurt every day.
Also eat more protein. Women with osteoporosis are advised to increase protein intake.

Fell and broke a vertebra in 2011 scan showed osteoporosis.....after 8 or 9 years a dexa scan showed T score no worse.....despite refusing alendronic acid.
However, February this year has shown spine T-4 although other readings not a lot worse.....x ray had shown multiple broken vertebrae, which scared me a lot.
Have been on alendronic acid 10 weeks and even though back pain from fractures is gradually improving, overall I feel terrible......Constipation, bloating, excessive wind but even worse, pain and aching almost everywhere and feel as if legs weigh a ton......plus crushing fatigue most days.....not to mention the giddiness as if can't walk straight.
Is it the a acid? Have read that people sometimes show no increase in bone density after taking it for 2 years or more?
Afraid of the reports on femur breaks and jaw problems but g p advises to take it to help lessen breaks if I should fall.
I am 78 so wouldn't bones be weak anyway? At my wit's end.

I have been taking Algaecal supplements for Osteopenia (they also have a facebook group) and also take BHRT to help keep bone strength. Strength training is important for bone health too.

Margiknot you need to chase your GP.

I find that nothing routine happens in the NHS these days, unless you are on to them all the time.

I was originally told I would get my scan in July and when that didn't happen I rang my GP and she gave me the hospital number to ring, and i rang them and again in September and that produced an appointment in November. Had I not done that I suspect I would still be waiting.

Thanks Monica.

I was referred for mine in may 2022. It took place at the end of November 2022.

How long are people in England waiting for a Dexascan? I’ve been waiting for a rescan that should have happened in 2020 and now been re- referred, ( several risk factors and can’t take oral alendroic acid) but heard nothing.

A Dexa scan diagnosed osteopenia in my left hip and I have CalciD tablets daily. A further scan was cancelled during lockdown and since then, as I have moved to a different area, I haven't been offered another scan appointment. I have evidently fallen through a net. However, I've managed to fall over a couple of times in that period and so far nothing has broken. Fingers crossed!

Mine has only just been diagnosed, but it is likely that i have had it for 15 years or more.

I fall over regularly, a combination of dyspraxia and a weak ankle and I have never broken a bone - except for the fractured vertibrae that were evident on the scan. That fall, one when I slipped on a wet grassy slope and landed heavily on my back was nearly 15 years ago, and apart from the excessive pain and discomfort for about three months after the event has never troubled me since.

Long before I had osteoporosis, I taught myself how to fall to minimise injury, but in the last 10 years I can remember exceptional falls, that did me no harm at all. I am always very quickly back on my feet and on my way again.

I also have it, been just five years now and have 6 monthly injections. So far I have fallen off my bike twice and only broken one rib despite the heavy bike landing on to; of me. Lost a couple of inches in height but otherwise I don’t really notice I have ig

Dollymixtures Click on the link I give further up the page. It directly contradicts the myth that dairy leaches calcium form our bones.

I really can’t believe that dairy leaches calcium from our bones! It’s one of the building blocks of our bodies surely? I will try the Babybel cheese, thanks for the suggestion.

jasknight that’s a very worrying post. I have a blood cancer already so I imagine I’m being very well controlled. I’m advised to wait 3/4 weeks before seeing the GP so he’s got the results and I will ask all about this obviously. I’m honestly torn between wanting calcium tablets and refusing them now due to the opposing viewpoints!

mumofmadboys

'Dairy is one of the worse things you can eat as it actually leaches calcium out of bones' This is absolute rubbish HeidiJoy and so unhelpful. The Osteoporosis society link Monica gives is a sensible read

I despair when I see false claims like Heidijoy's on a public forum.
I prefer to take my clinician's advice and hope no-one on here is foolish enough to believe such claims.

'Dairy is one of the worse things you can eat as it actually leaches calcium out of bones' This is absolute rubbish HeidiJoy and so unhelpful. The Osteoporosis society link Monica gives is a sensible read

DG45. Could you make an appointment to see your Doctor and ask for some explanations. I would do this. My sympathy is with you. You are very young to be going through this.

Last year I was sitting teaching the Piano to a 10 year old
when there was an audible 'Crack' the child heard it as well as me. It turned out to be 2 hairline fractures to my pubic bone.
I couldn't walk for 4 and a half months with out agony. It wasn't anything to do with Osteoperosis because I had a Bone Density scan. Now it seems my Calcium level was high and I might have to have treatment for Hyperthjyroidism.
but I'm told I don't need surgery. but they have taken away my vitamin D3 and some of another tablet I take and I need to do a blood test! They are also saying to eat as normal!
I'm a bit confused, but I can walk now sometimes with a stick (outside) I'm 60...

I do ten little jumps on the spot most days, just randomly when I think of it. If I've been sitting for long time

so, a cellerciser is in fact a small trampoline, used to have one of those for keep fit. I will buy another one but with a rail to hold if needed.

Sorry, the link should be www.osteoporosis.foundation/sites/iofbonehealth/files/2019-03/2015_ServeUpDairyProducts_FactSheet_English_0.pdf

HeidiJoy2u2 What you say about dairy products leaching calcium from our bones is nonsense ww.osteoporosis.foundation/sites/iofbonehealth/files/2019-03/2015_ServeUpDairyProducts_FactSheet_English_0.pdf

Rebounding is very bad for your pelvic floor so on the advice of my doctor I avoided that.
Amazing that your 90 year old mum is doing it!

Just google rebounding and how it improves bone density. I bought a cellerciser and one for my 90 y.o. mom and we are all into doing our rebounding daily. Health is wealth, and by the way we are both vegans. Dairy is one of the worst things you can eat as it actually leaches calcium from the bones. We were all sold a lie by the dairy industry. Google it. Good luck!