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Edoxaban or rivaroxaban?

(14 Posts)
NotSpaghetti Thu 07-Mar-24 10:01:42

3 of my family take anticoagulants/thinners mentioned above. They are all on different drugs - and are all "happy" on the drugs they take (though taking it twice is more of a hassle but the half life is thetefore much shorter).

I hate taking drugs - but the alternative is not good either!
Speak to your clinical pharmacist at your surgery Luckygirl3 - mine is fantastic abd very "human" - she has much more time than the doctors and when I found something out not long ago in a research paper she "unpicked" it and explained the bit I couldn't understand.

Alternatively, do you have a consultant you could run your concerns past? Ask his secretary if he could please spare you a few minutes.

Luckygirl3 Wed 06-Mar-24 22:03:50

I have been on rivaroxaban for years with no problems, which is why I am slightly loth to change to anything else - but I guess I have to.

Luckygirl3 Wed 06-Mar-24 22:01:23

foxie48

Jaxjacky

I wear an alert bracelet for Apixaban.

Actually I think I'd like one, is it specifically for apixaban or can I get one for edoxaban, please?

Yes you can - I have just sent off for one from amazon.

Deedaa Wed 06-Mar-24 21:05:44

I've been on Rivaroxaban for 18 months now with no problems. I was recently told by the pharmacy that my prescription was now coming from the respiratory team. I didn't know our surgery even had a respiratory tea and I can't see why they are looking after my blood.

Jaxjacky Wed 06-Mar-24 20:54:10

foxie48

Jaxjacky

I wear an alert bracelet for Apixaban.

Actually I think I'd like one, is it specifically for apixaban or can I get one for edoxaban, please?

You specify the information, mine has my full name and Apixaban 2.5mg x 2 daily.
It’s from Amazon ‘medical alert bracelet’. Not expensive.

Jane43 Wed 06-Mar-24 20:08:15

My husband had terrible problems with AF and was eventually put on a beta blocker - bisoprolol. It improved matters somewhat but we both decided to change to decaffeinated coffee and since the change my DH hasn’t had a single episode of AF. He also stopped having his usual bottle of lager on Saturday and Sunday and changed to zero alcohol lager or cider. He is also on rivaroxaban but there doesn’t seem to be any connection between that and his AF.

Doodle Wed 06-Mar-24 19:55:56

Do you have regular blood tests?
DH was put in Edoxaban and 5 weeks later was an outpatient for something else and they took a blood test. We were phoned at home and asked to come back to hospital straight away for blood transfusion as the Edoxaban was causing internal bleeding. We would have known nothing if not for having the blood test.
I am on it too now and they have told me my iron is low. I’m not happy taking it but I have AF too.

Thorntrees Wed 06-Mar-24 19:55:22

I take Edoxaban since diagnosed with paroxysmal AF last year and had a pacemaker fitted in November. At first the Edoxaban gave me some indigestion but it seems to have settled.
I have an alert bracelet from- Medi- tag, you can give them details of the info to go on the tag and there is a number to ring if medics need further info.
We ordered on line and it came quickly. I wear it all the time and have the card that comes with the tablets in my purse and details on the health app on my phone.
Hope this helps.

foxie48 Wed 06-Mar-24 19:31:35

Jaxjacky

I wear an alert bracelet for Apixaban.

Actually I think I'd like one, is it specifically for apixaban or can I get one for edoxaban, please?

Jaxjacky Wed 06-Mar-24 18:39:05

I wear an alert bracelet for Apixaban.

Janiepops Wed 06-Mar-24 18:31:04

Ask for referral back to cardiologist, you need specialist knowledge.
I started paroxysmal AF (age 39, now 71) moved to chronic AF ( non-stop) tried many drugs including amiodarone, had ablation, but it remained uncontrolled, so had pacemaker fitted. Currently on my fourth one! Among others I take edoxaban, statins, losartan, bisoprolol.
Recently went to see cardiologist who put me on what he called ‘new heart wonder drug!’ It’s called dapagliflozin, and it is!! I feel tons better 😃. I’m still in AF, but can’t really feel it due to ablation.Its a horrible, frightening condition but always remember it isn’t life threatening, feel free to PM me if you want a little chat 😃

ptarmigan Wed 06-Mar-24 18:22:34

I was put on Edoxaban when I was diagnosed with Afib about 2 years ago and have had no problems or side effects with them. I just take them once a day and 60mg is the normal dose. I think there is a 30mg dose if you are below 60 kg in weight or other factors like impaired kidney function. I still have paroxysmal AF so I am afraid I cannot help with the change to persistent but I have read that can happen over time.

foxie48 Wed 06-Mar-24 18:14:38

I'm on 60mg of Edoxaban, I don't think it will be affecting your AF. I've been told to keep a check on my weight as if I drop below 60kg I'll need a lower dose. Just a word of warning, it is worth letting friends etc know that you are on a blood thinner and make sure you carry the card which is in the box. I had an accident in January, only broken ribs and a pneumothorax but because of the blood thinner I lost over 3 pints of blood internally. Fortunately my friend who was present knew I was on blood thinners and I got an ambulance very quickly, which tbh probably saved my life as by the time I got to hospital my BP was through the floor. Don't want to alarm you but it is an issue.

Luckygirl3 Wed 06-Mar-24 17:47:15

Just had my anti-coagulant changed from rivaroxaban 20mg to edoxaban 60mg. Seems a massive hike in dose, although I am sure the mode of action is different. I understand it is because there is a lesser risk of gastric bleeds and it is cheaper.

Anyone been in this boat?

Also my AF seems to be teetering on the brink of moving from paroxysmal to persistent - anyone had this happen?

Thanks for any thoughts.

I had a very bad night with AF last night and it is still niggling, although GP this morning said it had reverted to sinus rhythm - without an ECG. My scan watch and my brain say it is still in AF some of the time.

There are so many changes of GP at our surgery that I do not know who to believe. They all say different things and you seldom see the same person twice.