Kate Garroway-Care at home costs

It was inspiring to hear from Jake one of Derek’s carers who now is taking a break from the caring; am sure a lot of carers understand the toll this takes on them and the families 🙏

What a lovely couple Kate and Derek were.
It was very moving.

Thankyou Luckygirl
Sadly or fortunately,whichever way you look at , he was only in care for 5 months 4 weeks of which he was in hospital where he died but although the care home had said he couldn’t go back I still had to pay until the day he died.
It all comes at a time you just can’t deal with it.

Complex care for my late OH was roughly the same cost for care at home and care in nursing home.

Professionally I spent a lot of time organising care for people with complex needs. It is very expensive wherever it is and, particularly with young adults with families, they should be able to be at home with their children and not in nursing home care surrounded by elderly people.

annsixty ... I am so sorry that you were not feeling strong enough to fight for CHCF. It is totally iniquitous that it should have to be a fight. It should simply be offered to all those who qualify.

LOUISA1523

Lambchop11

I’m confused so maybe after watching tonight will be more clear. I believed if you needed care at home or a care home placement it was means tested ? You would only pay £1600 a month if you had huge savings?

Not if you are awarded nhs continuing healthcare ....its completely free whether you are at your own home or in a residential unit....neither is it means tested....as I've said earlier in the thread ...I've known patients live at home who care costs have been over 4k a week

Thank you LOUISA1523 that’s what I was trying to get across in my earlier post.

I should have added that Katie Hopkins is a hideous woman. I saw her today accusing the Lionesses of being lesbians (would it matter if they are?) and saying that their manager only got the job by being really black!

I haven't watched any of her programmes as it all seemed a bit too close to the 10 years I spent looking after DH. I do think these programmes need to be made so that people can see what long term illness means. My friend's husband had Huntington's and was ill for 15 years. She was lucky because she had sufficient income to pay for a team of carers and buy a car that could take his wheelchair but she must have spent a phenomenal amount of money, especially if you include things like trips to London to see his specialist. My MiL spent several years in a home. She was unable to walk or stand and everything had to be done with a team of people and a hoist. By the time she died an argument had started over whether her care should be paid for by the council or the NHS. Personally I thought that being pretty much immobile was a health issue but it was now irrelevant.

Lambchop11

I’m confused so maybe after watching tonight will be more clear. I believed if you needed care at home or a care home placement it was means tested ? You would only pay £1600 a month if you had huge savings?

Not if you are awarded nhs continuing healthcare ....its completely free whether you are at your own home or in a residential unit....neither is it means tested....as I've said earlier in the thread ...I've known patients live at home who care costs have been over 4k a week

KG was very open on The One Show tonight about her finances and the burden Derek's care placed on her. She spoke emotionally about the struggles of carers, and she said her quest to speak out is backed by many doctors and health professionals.
I've not followed her story, so I don't know what Derek said when. The only possible slip up i heard tonight was when she said Derek asked her, "Are YOU going to do another documentary?" Then she quickly corrected herself and said, "Are WE going to do aother documetary?" ?? 🤔

Considering the complexity of Derek Draper's needs, nursing home care could also have cost £4,000 a week.

I’m confused so maybe after watching tonight will be more clear. I believed if you needed care at home or a care home placement it was means tested ? You would only pay £1600 a month if you had huge savings?

Oooops...
interest

Yes, I watch tonight with intetest.

I couldn’t agree more.

I always feel 'there but for the grace of God...' when I read of these harrowing cases, tho know nothing of KG. Heartily agree about voyeurism.

But I believe the system of health care free / social care means tested is not right and should be reformed.

For example, dementia is a disease of the brain and its sufferers should not be financially bled dry as they are. Sufferers from other diseases are not treated like this.

As for people receiving palliative care at home, I understood that this was 'cost effective' as not requiring in-patient care and 'freeing' hospital beds.

I think I must be getting very hard hearted in my old age but I don’t understand why it was good for the children to be around a very ill parent for a long time. I nursed my husband at home for 7 years with increasing disability and pressures, but my adult children didn’t live at home and suffer with us. Dereks children would have seen his suffering, mourn his diminished capacity, cope with his physical demands and cope with a camera crew intruding on his life, and cope with the emotional needs of their mother. Where was their chance to relax after school and just escape the pressures? Wouldn’t it have been better for them to visit in a care home and then go home to recoup energy and strength. I do hope in all this continuing publicity and filming etc that the children haven’t been forgotten.

Yes can understand Kate G gets the "air time" but without her continued input, carers and their pittance pay would be forgotten so bringing this new documentry under the spotlight..not a bad move..maybe Elton John can assist with the debt?

I know he originally gave his consent, but he deteriorated to the point where that was not possible. Giving consent once does not necessarily equate to giving irrevocable continuing consent. He is unlikely to have known how his condition would progress as little is known about the long term effects of covid.

Was being told of his double incontinence necessary?

KH is vile and critical of just about everybody.

Katie Hopkin is very critical of her

Yes that’s the right word, voyeurism.
I remember in a previous documentary he was filmed being lifted up in a hoist, and viewers were told about his double incontinence.

BlueBelle

Yes he did give his consent JenniferEccles and wanted the filming to be done I saw where he actually spoke to the cameras saying that he wanted it to be made and filmed

Sorry crossed posts.

JenniferEccles

Although I do have a lot of sympathy with Kate Garraway and her financial situation, I have always felt very uneasy about the level of personal details whichever have featured in the documentaries.

Now I see there’s another one on tonight, filmed during the last few weeks and months of her husband’s life.

Was he really able to give his consent to a tv crew in his house, filmic him lying helpless in bed?

It was over the last year of his life, he is seen sitting up in bed and clearly says that he wants his voice to be heard and is writing in a note book.

He was able to go to an Elton John Concert in his wheelchair along with going to one of the palaces when Kate Garraway got her award.

In my opinion she is now using her TV profile to further cause of carers.

Yes he did give his consent JenniferEccles and wanted the filming to be done I saw where he actually spoke to the cameras saying that he wanted it to be made and filmed

I have wondered that. Although she wanted to raise awareness and needed money, it has always seemed too intrusive to me and I haven’t watched any of it. It felt to me like voyeurism of the worst kind.