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To go through chemo therapy or choose not to?

(64 Posts)
singingnutty Fri 26-Apr-24 09:23:06

After successful surgery for bowel cancer (everything removed and lymph nodes were not affected) I am being offered chemotherapy and have to make a rapid decision on whether or not to have it. After what has been a 'battering' of my body and mind I wonder if putting myself through this process is just too much. The oncologist said that it should increase my chances of the cancer not returning in the short term from 70% to 80%. Has anyone who has been in this situation any experiences to share please. I know that in the end only I can make the decision.

madeleine45 Sun 12-May-24 17:19:14

I had ovarian cancer when I was about 50ish. Had total hysterectomy and followed with 6 months chemotherapy. It was not easy doing the chemo, but was worth it in both physical and mental terms. If I had not done the chemo I would have been worried about it and wondering if the cancer was returning and I didnt know. That cancer was only found when I had a check for something else so no symptoms at the time. So I did feel that is was the right thing to do. I now have bladder cancer which I am dealing with but as I am now 78 you can see that the six months were worth it. I got through it and spent 10 years 3 days a week doing hospital car volunteer work, seeing my family , etc etc and still around to enjoy the sunshine today ,so that is my story. Only you know your attitude to uncertainty and the only thing I did was to get two pieces of paper and on one write all the positive reasons to take the chemo and on the other the negative and then weighed up which reasons were important to me and what I felt I could deal with . Whilst you may listen to friends and families ideas it is down to you which you choose but I think the main thing is that once you have made your choice you will know that it was your own choice and hopefully it will be right for you. I wish you good luck

GLAMGRAN62 Wed 08-May-24 11:31:00

Hi there
I'm 5 years in remission had surgery,chemo and radio. The odds of the cancer coming back without chemo were overwhelming for me. Its the tiny seeds of the disease that can remain without chemo. It all depends on the type of cancer you have,what stage,how many lymph nodes involved, your age etc etc. I personally chose the belt and braces approach and take medication for 10 years afterwards.

OldFrill Wed 08-May-24 10:23:43

Calipso

I do wish people would read the thread.
singingnutty has already updated us, having made her decision and with the support of her oncologist.

Many people don't read all the thread but their comments are still valid. Others may have a similar dilemma and further comments may assist them.
I have found all responses of interest.

Calipso Wed 08-May-24 10:13:50

I do wish people would read the thread.
singingnutty has already updated us, having made her decision and with the support of her oncologist.

Winniewit Wed 08-May-24 08:58:29

My husband is going to his 2nd chemo session today. We took the advice of the Oncologist who was eager to start him on certain drug . He said he was an ideal candidate for it,
Trust the drs,,
Thinking of you,xx

Luckygirl3 Mon 06-May-24 10:00:22

A friend has just had a bowel cancer removed and is having chemo. She was dreading it but has had little trouble ... she was singing away at the group I run the day after a session of chemo.

Iam64 Mon 06-May-24 07:40:56

Sending best to you singingnutty

Katie59 Mon 06-May-24 07:27:06

A close friend of mine has breast cancer that has spread, after 2 rounds of chemotherapy it has returned and has chosen palliative treatment. She is now making best use of the time she has with a positive outlook and is happy.

LucyAnna Mon 06-May-24 07:10:52

Bump

Bonnybanko Mon 06-May-24 06:45:54

After my husband had chemotherapy I decided if I had cancer I wouldn’t have chemotherapy it had so many side effects on his poor body no thank you
But then it’s your choice therefore good luck

OldFrill Mon 06-May-24 01:31:09

singingnutty

Just an update - I had a telephone call with the oncologist at the beginning of the week and told him I had made the decision not to have chemo therapy. At the end of the call he said 'I think that is a good decision'. I am now on a mission to get extra healthy by losing weight, eating only healthy food and getting more exercise. We have a charity locally which offers therapies, dietary advice and yoga, pilates etc. I have signed on with them and also had an appointment with a well qualified medical herbalist who has given me a lot of help. I am feeling very positive so that will help as well.

I wish you all the very best.
Positivity is key.

mrsgreenfingers56 Sun 05-May-24 21:42:42

A hard decision. My Consultant told me if he was a betting man he wouldn't do chemo and only gave me a very small further chance of recovery. But I was desperate and went for it, really sh...., sorry but the only word for it. The whole thing was grim but 15 years later here I am! I was 52 at the time, think your age depends on your decision a lot.

I wish you well singingnutty, I really do. Take care.

RedRidingHood Sun 05-May-24 21:37:34

I think if the cancer was definitely stage 4 I might consider saying no.
Otherwise for belt and braces I couldn't justify it to my fa.
Five years ago I had chemo for breast cancer. It was a grotty three months but that was it. I put it behind me knowing I had taken every tiny percentage of chance I could.

crazyH Sun 05-May-24 20:39:07

singingnutty - I’ve been following this thread and thinking of you - I wish you all the best 🌼

Cossy Sat 04-May-24 19:21:46

I have no advice, just want to wish you well

Scribbles Sat 04-May-24 18:47:21

@ singingnutty - I just want to wish you all the very best now your decision is made. May you have a long, happy and healthy future with all the support you need.

silverlining48 Sat 04-May-24 18:40:02

Would just say that anyone who is about to start chemo make sure you get to the dentist for any treatment that may be needed, before you start. This advice was given to my dd.

silverlining48 Sat 04-May-24 18:38:11

I wish you well too singingnuttty. Good luck 🤞

Calipso Sat 04-May-24 17:49:36

@singingnutty
Thankyou for coming back to tell us what you decided. You have chosen to move forward positively and I wish you all the best that life can bring as you recover flowers

MissAdventure Sat 04-May-24 17:19:07

singingnutty

Just an update - I had a telephone call with the oncologist at the beginning of the week and told him I had made the decision not to have chemo therapy. At the end of the call he said 'I think that is a good decision'. I am now on a mission to get extra healthy by losing weight, eating only healthy food and getting more exercise. We have a charity locally which offers therapies, dietary advice and yoga, pilates etc. I have signed on with them and also had an appointment with a well qualified medical herbalist who has given me a lot of help. I am feeling very positive so that will help as well.

I'm glad you made the right decision for you.
Good luck going forward. smile

dotpocka Sat 04-May-24 17:07:01

i had lung cancer.surgey,chemo it has been a year and except she wants me to do immunotherpy. type of cancer was rare and nobody really knows how to deal with it
except my mri 's are clean
i decide june 3 i will do it a feel great no trouble breathing even part of my lung is going
choice as the best you can ..i am ok chemo was ok i did not have much except a upset belly everyone is different my hair is or was it is growing,i cut it to my scalp 2xs it was really coarse
i have problems more from 2 strokes???/

singingnutty Sat 04-May-24 16:46:40

Just an update - I had a telephone call with the oncologist at the beginning of the week and told him I had made the decision not to have chemo therapy. At the end of the call he said 'I think that is a good decision'. I am now on a mission to get extra healthy by losing weight, eating only healthy food and getting more exercise. We have a charity locally which offers therapies, dietary advice and yoga, pilates etc. I have signed on with them and also had an appointment with a well qualified medical herbalist who has given me a lot of help. I am feeling very positive so that will help as well.

harrigran Sat 27-Apr-24 09:02:30

I had chemotherapy after my operation for bowel cancer, twelve tablets a day with some side effects but I am still here eight years on.

Macadia Fri 26-Apr-24 22:15:21

I'm sorry. It sounds like you have been through a lot. There are so many different types of chemo drugs and everyone responds uniquely to their own personalized treatment so talk to the professionals on your team until you find your answers. Scientists found these treatments with a goal of healing. I also have two family members having chemo now. Hugs to you.

Urmstongran Fri 26-Apr-24 21:41:24

Liver mets and lymph node involvement determined that chemotherapy was essential. Sometimes the choice is made for you, sad to say.