HIP sclerosis -OPTIONS

grumpyoldwoman45

Bea65

I can't wait for the surgery..know its mad but am desperate to move/walk without needing to stop/scream, swear or cry -can't go private as do not have the finances- will keep doing lotto

Hi Bea65.

Just read through from your original post and my heart goes out to you! Just before my hip surgery 3 years ago, I found a very helpful website: bonesmart.org.

It has lots of information from pre-surgery, through the recovery period and you can post questions and/or read about the experience of others.

One of the most useful things I got from it was a reminder that, post-surgery, you're in recovery, not in training, so don't overdo any exercises that you feel are a bit too much for you.

Good luck - and just hang on in there!

Thank you grumpyoldwoman45 will look at bonesmart.org

So had my 1st appt. with surgeon today who on showing me the x-ray results informed me that i have spinal stenosis also..
great ...so the plan is now to have MRI to see how severe this is and if its the main reason for the lumbar pain.
Have any GNs had this diagnosis alongside the bilateral hip sclerosis ? Am researching madly but would like to know of any personal experiences on here...Thank you!

See your doctor and get it checked. There’s a long queue in front of you crazy, so better to be on it than not. You can always decline the offer when it’s your turn, , but you may be desperate by then.

crazyH don't leave it as Aveline said it will get worse..thought i ONLY needed a new knee joint..those of us who have severe widespread OA and have had falls/accidents it really impacts your life ..have become a bit of a hermit..

Go for it CrazyH. It's only going to get worse unfortunately.

I think I will need one soon - hip replacement I mean -my right hip hurts when I walk, but I am postponing seeing the GP - I’m a coward .

I second Bonesmart. I found it absolutely invaluable throughout my recoveries from knee and hip replacements.

Bea65

I can't wait for the surgery..know its mad but am desperate to move/walk without needing to stop/scream, swear or cry -can't go private as do not have the finances- will keep doing lotto

Hi Bea65.

Just read through from your original post and my heart goes out to you! Just before my hip surgery 3 years ago, I found a very helpful website: bonesmart.org.

It has lots of information from pre-surgery, through the recovery period and you can post questions and/or read about the experience of others.

One of the most useful things I got from it was a reminder that, post-surgery, you're in recovery, not in training, so don't overdo any exercises that you feel are a bit too much for you.

Good luck - and just hang on in there!

I hope you can have the op soon Bea65. I still remember standing in the shower the day after the op and marvelling at the feeling of just no pain!

I can't wait for the surgery..know its mad but am desperate to move/walk without needing to stop/scream, swear or cry -can't go private as do not have the finances- will keep doing lotto

Aveline Yes, the current advice is no physio necessary but just keep walking. The only pain you wil have is from the incision site. It’s a miraculous operation!

I DID NOT do the exercises and I, too was walking without a stick in a week. Leave those poor muscles, tendons and ligaments to recover. Ice, elevate and just walk about. Walking is what your lower limbs are for. No need for pointless repetitions.

As many have said, this is Chronic Arthritis, some painkillers help a bit, but a hip replacement is the answer, dark and bl**dy painful night into glorious day!!

I had to wait over 2 years from first diagnosis to getting the op, moving gradually up the pain threshold and the Queue! And I think that's fairly standard?

The Op itself is quite simple, like carpentry they said, BUT if you have any choice, it's better done at one of the Orthopaedic specialist depts, as they do hips and knees all day, with the occasional shoulder, back, wrist or ankle for a bit of variety. A more general surgical dept will be less used to hips. And the procedure itself, well, if the op is on day 1, you should be out, all being well and body responding, on day 3.

IF the wait for surgery is a problem, you could go private -- assuming the cost (perhaps less than you think?) isn't an issue?

OH, and one KEY THING >>>> after the Op, DO all the exercises they tell you, religiously, and DO EVEN MORE than they say. Your muscles will have had quite a shock, and those exercises are vital to getting things back to normal asap. I could walk without a stick in about a week.

Seeing consultant on 16th.. I don’t care about the scars .. my war (pain) medals😊.. Thank u All for responding! .. hopefully I won’t have to wait 12/18 months 🤞

Fantastic, so quick. 15 months where I live

Cateq glad your new hip has been a success. I was told that it woukd be 18:months to two years before the hip was 100% ok.
I didn’t have @ny stitches at all, it was glued and the scar is hardly noticeable, not that it matters. The main thing is there is no more pain.

My scar certainly isn't invisible nor are the hip scars of the ladies in our Aquafit classes but they really don't matter at all. The relief from pain and return to mobility is what counts. That's great.

I was diagnosed with this condition 5 years ago, but declined surgery as the pain was manageable. But after 2 years struggled to walk any distance so asked to be referred to the orthopaedic department. Long story short after waiting 107 weeks I finally had one hip replaced and haven’t looked back since then. I’ve been told as it takes a year for the prosthetic hip to fully integrate I won’t be considered for the other hip to be done until the year has passed, fortunately the pain on the other side isn’t anything like the pain I had previously. I’d recommend speaking to the ortho consultant and get more information on how they carry out the op. The scar down my hip is virtually impossible to see.

That is amazing 🤩

Gracious , that’s place in amazing Bea.

That's great Bea65. I hope you don't have too long to wait.

UPDATE - within 24 hrs of me seeing the GP, was contacted yesterday by NHS provider and informed that they are scheduling a date and will contact me again shortly -never had such a quick turnaround on a referral...

Bump

Just bumping this up

i have to do rehab every couple years and collegen
bear foot or really good shoes
walk in the sand barefoot