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Palliative care at home advice

(165 Posts)
Doodle Fri 10-May-24 12:01:27

Does anyone have experience of Palliative care at home and what’s involved?
We are looking to bring DH home from hospital.

Wyllow3 Sun 19-May-24 17:26:33

So very sorry, Doodle xx

Germanshepherdsmum Sun 19-May-24 17:25:11

I am truly sorry Doodle. May he rest in peace and may you find comfort. 💐

kittylester Sun 19-May-24 17:21:56

What sad news, Doodle, I am so sorry.

dustyangel Sun 19-May-24 17:19:02

I’m so sorry Doodle.flowers

62Granny Sun 19-May-24 17:16:07

I worked with the Macmillan palliative care team in my area in a clerical role, while they were part of the discharge planning, they were not the carers in the discharge plan , that was usually done with the district nursing team and possibly a care agency . Before the person is discharged you should have a team meeting of all the people who will be involved and hopefully they can help you get the answers you need. My team were more involved in pain relief and psychological support for the person and their family, but they could get other agencies in to help. Night sitting if required was provided by Marie Curie nurses. Not all areas are the same, so what happens in one health authority might not in another. I hope by now you have a plan put in place.

Pantglas2 Sun 19-May-24 17:10:29

Oh Doodle so sorry to read your news. And how lovely that you managed that bit of sunshine with him - take care of yourself now x

MissAdventure Sun 19-May-24 17:09:48

So sorry, Doodle

dogsmother Sun 19-May-24 17:08:49

💐 my deepest sympathy goes to you. I expect you are quite numb at the moment xxx

Susan56 Sun 19-May-24 17:04:26

Doodle I am so sorry to hear your sad news.Our thoughts are with you💐

Georgesgran Sun 19-May-24 17:01:35

Oh Doodle I am so sorry to hear your sad news. My deepest condolences. 💐

Doodle Sun 19-May-24 16:57:53

Thank you for all your thoughts. Sadly I lost my dear husband this morning. I am so pleased he had his day in the sunshine and fresh air. I will miss him so much

JaneJudge Sat 18-May-24 14:00:15

lots of love Doodle, the hospice sound lovely xx

cornergran Fri 17-May-24 21:45:22

A hospice at its best doodle. Wonderful experience for you both. Xx

Wyllow3 Fri 17-May-24 20:55:33

Aw, Doodle thank you for that news. x

Doodle Fri 17-May-24 20:38:32

You’re all really kind and I thank you for your good wishes.
I never thought DH would feel the sun in his face again but today they put his bed outside and he sat in the sunshine overlooking the water and said he was happier than he’d been for a while. So calm and quiet here. We are close to home so family finding it much easier to visit.
Again thank you all again for thinking of us. x

gillgran Fri 17-May-24 15:51:36

Warmest thoughts for you Doodle and your dear husband. x

nanaK54 Fri 17-May-24 15:05:15

Sending kindest thoughts flowers

Jaxjacky Fri 17-May-24 14:53:19

You’ve had such an horrendous time, both of you Doodle hopefully now some real help from those with experience will give the care required and some solace to you xx

NannyG4 Fri 17-May-24 14:46:55

Thinking of you and your DH.... Sending much love and prayers.....
Xx

GrannyGravy13 Fri 17-May-24 10:14:08

Thinking of you Doodle I hope your husband remains comfortable and pain free (((hugs)))

brook2704 Fri 17-May-24 09:42:29

Thinking of you and your DH Doodle sending much love ❤️ x

Thorntrees Fri 17-May-24 09:18:32

So pleased your DH is now in a hospice Doodle. It will give both of you peace and comfort.
My Dad was cared for in a hospice and just knowing he was being looked after and kept pain free lifted such a burden from the family.
Will keep you both in my prayers.

Grandmabatty Fri 17-May-24 08:55:38

Doodle I'm so sorry for you and your husband. I hope he is more comfortable and you are able to sleep. All the best

dragonfly46 Fri 17-May-24 08:38:42

My thoughts are with you Doodle.

Greyduster Fri 17-May-24 08:35:48

I’m glad to hear your DH has a hospice place, Doodle. There are, sadly, too few hospices. My DiL died in a hospice attached to their local hospital. It was a calm happy place, and they looked after both her and my son superbly. Nothing was too much trouble. My son slept there latterly, and when I took him in cooked meals, they were happy to reheat them for him. They made an awful time so much more bearable.