Palliative care at home advice

I’m thankful the space was there for your husband doodle, hope you both slept and will feel well cared for today. With love.

So glad that a hospice place has been found and that you are somewhere which will support you too. Hope for a peaceful and pain free day today.

I've been following your story Doodle but have no experience to draw on.
I'm glad you are in a peaceful place where you and your husband are both being supported xx

Thinking about you and your DH this morning Doodle. 💐

I hope you had a good sleep Doodle. And I'm glad it's peaceful.
Sending love xx

My thoughts are with you Doodle.

So much love sent to you both Doodle.

I hope you both have a peaceful, pain free night, Doodle

DH had a lot of pain after journey here but has now been in a deep sleep since 7pm and I have a bed to sleep in which is a relief after 3 /4 nights sleeping on a hospital chair.
Thank you all for your kind thoughts and good wishes it means a lot.

I’m pleased that your husband is in the hospice now Doodle. I hope you both can feel safer there and that you have some peaceful time together.

That's so good to hear Doodle. Especially that you find it peaceful there.
Thoughts very much with you. Xx

Do pleased your DH is in the hospice.You will both be well supported and the hospice environment will make you feel safe. Thankyou for telling us.

Doodle thank you for letting us know you are now at the hospice

Thinking of you and your dear husband Doodle.

I’m sure they will, Doodle and it will give you comfort as well.

We are here.

Long day today after dreadful night last night. Good news is DH got into hospice today. It’s lovely here and so peaceful. Just hoping they can help with pain relief. x

Doodle, like many others here my thoughts are with you and your husband. My only experience is of a close family member who had palliative care in his own home. It was exhausting for his wife - even with the help she received! A hospice place was not available and he didn't want to go even if he could. He died in hospital - not a good end to his life. The message from the hospice nurse has brought tears to my eyes this morning . Such a kind message and as the nurse says it is your decision, I just wish my family member had been in hospice care , and received the umbrella support a hospice can give. Sending you
(((hugs))) and strength.

Love and a hug from me doodle. Thinking of you both.

Doodle Sending you and your husband my very best wishes.

It isn't a situation I had to face. By the time it became obvious that DH was terminal he was already unaware of what was going on and only had days at most. I don't think the consultant would have let me take him home, he wanted to look after him. The main thing that struck me was that DH was a large and heavy man and was continually sliding down the bed and needing to be pulled back and made comfortable. There was no way I could have moved him on my own but I only had to press the button and two male nurses would come in to do it. He was put in adult nappies so there was no messing about with catheters. I know a friend of mine used to have awful problems with her husband's catheter blocking. I think the main problem with palliative care at home is that it can be hard physical work, but doable if you have support.

Gentle Doodle hugs x

Oh, it's so hard..
Awful time for you.

Thank you both.
DH just on pain meds now.

Sending you and Mr Doodle all my very best wishes, Doodle

Sending you my best wishes, Doodle. DD had hospice care at the end of her life and they couldn’t have done more for her and us.

DH wanted to die at home and the same hospice provided excellent end of life care for him and support for me.

I too had a negative experience with Macmillan on both occasions. It was our district nursing team that put all the wheels in motion for DH. Hospice at Home took over when I needed round the clock help.