Gransnet forums

Health

PANDAS Syndrome, please be aware.

(15 Posts)
welbeck Sun 19-May-24 12:36:18

i had heard of it as i often look at MN.
they are a mine of information.
as well as extreme swearing and personal insults.

henetha Sun 19-May-24 11:21:30

I hadn't heard of it either. It explains something to me that I have often wondered about. So many thanks.

Fattyboomboom Sun 19-May-24 10:01:06

Thank you so much for sharing this. I have never heard of it and grateful to you xx

Frogs Sun 19-May-24 09:02:29

Sago

Frogs This is why awareness is so vital.
A nurse friend told me this weekend she thinks it’s more prevalent now.
It’s such an unusual disease you would not think it was as simple as a course of antibiotics.

Too true. When I contacted my GP they made me feel I was making a fuss about nothing, although they did give me an appointment with a HCA- I told her my son and family had all been prescribed antibiotics even though their symptoms were fairly mild but she didn’t comment on this. 😖

Sago Sun 19-May-24 07:59:17

Frogs This is why awareness is so vital.
A nurse friend told me this weekend she thinks it’s more prevalent now.
It’s such an unusual disease you would not think it was as simple as a course of antibiotics.

Frogs Sat 18-May-24 19:49:55

Thank you for this - I notice that this condition is related to Strep A (strep throat).
I find this interesting as my son DIL and their two children recently tested positive for Strep A and were all prescribed a 10 day course of antibiotics. As I look after the children one day a week my DIL advised me to look out for the symptoms and to contact my GP if I got any of them.
Sure enough a few days later I went down with a bad throat and temperature. However when I spoke a health assistant at my GP surgery she told me they don’t test for Strep throat at this surgery and there was no need for antibiotics.
I find it strange that GPs in different authorities treat an illness in completely different ways.

Alison333 Sat 18-May-24 12:27:53

I have never heard of this syndrome. While reading the symptoms I wondered about the potential for misdiagnosis of other conditions like ADHD or Tic Disorder etc when a child has this syndrome and nobody realises.

If all that is needed to cure it is a course of antibiotics, it's quite worrying!

Cossy Sat 18-May-24 11:39:47

Thank you for sharing. X

Grandyma Fri 17-May-24 13:14:05

Thank you for posting. A young man very close to me has been suffering Pans Pandas since he was 6yrs old. He was prone to Strep Throat. His parents got little to no help from the NHS. His mental health was severely affected. He is now a young adult and doing much better. This has been thanks to various private therapies over several years. It is indeed important to raise awareness.

Sago Fri 17-May-24 12:50:23

Squiffy So pleased it may be of help.
It’s so important to raise awareness especially as our NHS is so poor!

Squiffy Fri 17-May-24 10:32:44

Thank you for this info, Sago. I have never heard of PANDAS before and it could well explain the symptoms of a small person whom I know.

Every day is a school day on GN and I’ve been very thankful for that on many occasions. 😃

Summerlove Thu 16-May-24 21:41:19

Thank you for sharing. Interestingly I was reading something about an adult with PANDAS recently. I can’t find it for the life of me.

Shelflife Thu 16-May-24 20:46:06

Sago, thankyou for that. Pandas syndrome is something I have never heard of. Well worth knowing .

welbeck Thu 16-May-24 20:43:47

thank you.
information is power.

Sago Thu 16-May-24 20:15:28

Below is a link to the signs and symptoms of this disease.

I have been aware of this for some years and sent information to my daughter so she would recognise the disease.

My daughter’s friend recently contacted for advice as her as her 7 year old had started with a tic and bed wetting among other symptoms.
She suggested it was PANDAS.

Her friend battled to get a diagnosis as most GP’s have not heard of it.
Her child is now on the appropriate antibiotic but it was a battle and damage can be lasting if it’s not caught quickly.

Please take a few minutes to read the link.

www.webmd.com/children/what-is-pandas-syndrome