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Pain Relief in the form of legally prescribed medicinal cannabis

(29 Posts)
Cossy Wed 17-Jul-24 19:49:07

I have chronic pain, from Fibromyalgia, widespread osteo-arthritis, degenerative discs and muscle atrophy.

I’ve been in chronic pain for over 20 years now and the only thing I found that worked in reducing pain was last year when my GP finally gave me some morphine patches. I’ve tried lots of oral pain relief, which either didn’t work or gave me chronic constipation and nausea

However following a consultation with both the pain clinic and the consultant rheumatologist my GP withdrew my patches

Almost in desperation I have turned to a legally register medicinal cannabis clinic, who have thoroughly assessed me and contacted my GP and I’ve been accepted on a private clinical trial for pain relief from medicinal cannabis (in the form of an oil, drop under tongue.

My question is “is there anyone on here who has followed this route” I must admit to being a little nervous.

paddyann54 Wed 17-Jul-24 22:08:22

I,d be interested to find out more about this if you wouldn,t mind .My daughter has multiple chronic pain conditions ,fibromyalgia and ehlers daners{sp} amongst them.She has morphine at home and has attempted to be prescribed cannabis.She knows it works as a neighbour used to use it and offered her some on several occasions.Sadly she has moved hundreds of miles away.Can you perhaps msg me with the clinic details and how you were referred?It would be greatly appreciated

Marydoll Wed 17-Jul-24 22:33:14

Cossy have you never been referred to an NHS pain clinic? I have R.A and various other conditions, which cause chronic pain. Nothing worked, including morphine. It was a turning point for me, when I was referred by my rheumatologist to a pain clinic. In addition, I am on biologics, which also help dampen the pain.

Marydoll Wed 17-Jul-24 22:38:30

Sorry Cossy, I missed the part about you having attended the pain clinic.

Did they not offer an alternative at the pain clinic.? The problem is that many pain relieving medications are addictive. However, you get to a point where you will do anything to get even a smidgen of relief, addictive or not.

CanadianGran Wed 17-Jul-24 23:11:21

I'm in Canada where it is legal. My sister takes capsules for pain and sleep relief, and she says it works wonders for her. She has degenerating discs in her neck and upper spine, which pinches nerves in her arm.

I can't tell you the dosage though, sorry. I hope it works for your pain.

maddyone Thu 18-Jul-24 00:11:09

I also have degenerative discs in my neck and it causes horrible pain in my arm, hand, and fingers. Nothing really works properly. I’ve got Pregabalin and it’s a truly horrible drug. I can only tolerate a very small dose because of the many side effects. I use paracetamol every four hours as well, but it’s totally inadequate for the pain I have. I’m waiting for spinal surgery and I hope that will sort it out. I really am fed up of the pain and reading this thread makes me realise how many people are living with constant pain, like myself. It really is time that the government and NHS looked into legalising drugs that actually do relieve pain instead of basically, just letting people suffer.

Chestnut Thu 18-Jul-24 00:19:37

I have really bad neuropathy which is very painful in legs and feet, and take 3 x Baclofen and 2 x Pregabalin each day. No side effects as far as I know but I'm not sure if they help or whether the dose is high enough as I'm still in pain. Maybe I should go to the pain clinic.

V3ra Thu 18-Jul-24 00:24:25

No, but when I did home care many years ago I helped a lady who had MS and cannabis was the only thing she found effective for pain relief.
Her son used to get it for her and she smoked it.
We all turned a blind eye.

What you're describing sounds a lot more above board so I'd say try it and see how you get on.

MissAdventure Thu 18-Jul-24 00:37:53

You won't get high from medically prescribed cannabis, as it doesn't contain that particular "ingredient".
So it will be no different than trying any new medication.

It isn't addictive, and it should help you to sleep and generally feel relaxed.

I hope you get some relief, as I also have neuropathy, aches, pains; I get on my own wick with it all.
I also have quite severe osteoporosis, and some discs sliding around where they shouldn't be.

I'd certainly give it a whirl, if I were you.

BigBertha1 Thu 18-Jul-24 06:58:54

Me too regarding a progressive degenerating condition. Prevailing has certainly ready ed the sciatica and leg pain but I'm not sure why you say it's a horrible drug. If my condition worsens I would be interested in cannabis. I hope it helps you Cossy.

travelsafar Thu 18-Jul-24 07:19:32

I too take pregabalin and apart from weight gain have no other side effects.
It certainly helps me with reducing sciatica pain and my back pain.

Cossy Thu 18-Jul-24 09:15:31

Thanks for answering and I’ll keep you all updated.

I have two lots of oil coming, one for day, one for night.

Both contain both CBD and THC, in different proportions.

MissAdventure Thu 18-Jul-24 09:18:15

Oh happy days, then. smile
I stand corrected.

Cossy Thu 18-Jul-24 09:33:37

paddyann54

I,d be interested to find out more about this if you wouldn,t mind .My daughter has multiple chronic pain conditions ,fibromyalgia and ehlers daners{sp} amongst them.She has morphine at home and has attempted to be prescribed cannabis.She knows it works as a neighbour used to use it and offered her some on several occasions.Sadly she has moved hundreds of miles away.Can you perhaps msg me with the clinic details and how you were referred?It would be greatly appreciated

I’ve PM’d you x

Nightsky2 Sat 20-Jul-24 16:26:43

Cossy

Thanks for answering and I’ll keep you all updated.

I have two lots of oil coming, one for day, one for night.

Both contain both CBD and THC, in different proportions.

I too would be very interested to know how you get on with CBD oil. I take Pregablin 150mls x2 every day for nerve damage in my back and have been taking it for 20 years. Fortunately no weight gain.
I have wondered about CBD oil. I hope it works for you and you get relief from the awful pain you have.
Best wishes.🌷

micky755 Wed 21-Aug-24 06:45:32

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NanKate Wed 21-Aug-24 07:49:47

I use CBD balm from Kloris, other providers available check Holland and Barrett. This is for hand and shoulder pain. DH tried it reluctantly and now is a convert.

flappergirl Wed 21-Aug-24 11:15:12

My neighbour in her early 70's has chronic osteo arthritis and she swears by CBD. She really isn't the cannabis type either but it has made a huge difference to her life and she will never look back. I say go for it.

Cossy Wed 21-Aug-24 11:51:12

So I’m back after my first month.

Took a little while to adjust, I have night strength and day strength.

I am def sleeping better, some odd dreams the first few nights. During the day results are variable, but I feel more relaxed and pain is def less of an issue.

I have a follow up assessment (by phone) next week, where we both make the decision as to whether to carry on.

GP updated by clinic.

MissAdventure Wed 21-Aug-24 12:15:12

Do you think you'll carry on, Cossy?

Cossy Wed 21-Aug-24 15:30:17

MissAdventure

Do you think you'll carry on, Cossy?

I think so. Maybe not everyday but it’s pretty quick to start working

MissAdventure Wed 21-Aug-24 15:46:15

That sounds ideal, as long as it hasn't resulted in any bad side affects (effects? I suddenly don't know any more)

Cossy Wed 21-Aug-24 19:51:07

MissAdventure

That sounds ideal, as long as it hasn't resulted in any bad side affects (effects? I suddenly don't know any more)

Dry mouth and strange dreams are the only side effects thus far smile

Nightsky2 Sun 08-Jun-25 12:57:07

Cossy

MissAdventure

Do you think you'll carry on, Cossy?

I think so. Maybe not everyday but it’s pretty quick to start working

Hi Cossy,
I was just wondering how you’re getting on with the CBD oil. I would love to know if it has worked for you. I have damaged nerves in my spine and I would like to have a break from Pregablin.
Kind regards,
Nightsky2

CariadAgain Sun 08-Jun-25 13:23:07

I'm bookmarking here - as I've got a long-term friend who was born with physical illness that caused it I gather - and now we're both around 70 and she's been suffering all this time with pain.

Personally - there'd be "strong action" one way or another if my body was causing me noticeable pain for long - but it would be useful just-in-case - as it would give me another option I could take ....

Would like to be able to tell my friend something that could stop it for her - in her case it's stenosis that's the problem.