Restless Leg Syndrome

Hello - my DH takes Ropinrole for this. It is the most horrible condition and I do so hope that you can get some help.

nanaK54 Many thanks for your response. The GP has prescribed sleeping tabs. I have been advised to take one on three nights during the week, as there is a risk of dependency. So, for four nights...I lie awake and suffer until around 3:am.

You could try Rhus Tox soop.
My Sis-in-Law swears by it for her RLS.

Oh dear that's not good, I don't think that sleeping tablets are the answer at all.
DH was 'lucky' enough to undertake a sleep study as part of his ongoing treatment at the Royal Brompton, London. This led to a diagnosis of 'severe restless leg syndrome' and 'periodic limb movement' hence the Ropinorole prescription.

Back to say, he had tried all sorts of remedies before his 'official' diagnosis - these included drinking tonic water (no gin!), taking magnesium, eating kiwi fruit...

OH was diagnosed with RLS a few years ago. I’m afraid it sometimes drives him mad. I think the medication he is on is called Gabopentin (sp) he took quite a few tablets at the start but the side effects were appalling and he couldn’t wake up properly until lunchtime. Nowadays he takes just one or two tablets and tries to cope. Sorry to be so gloomy but he is not as miserable as he once was.

I am grateful for all the advice regarding my RLS. I have weathered many health issues, including Cancer. This, however, has knocked the stuffing out of me. Thank you for allowing me to share.

soop have you looked at the NHS website something there may help you.

soop have a look at the Brain Charity website it's based in Liverpool but helps people all over the UK. If you contact them they may be able to know of a specialist in your area who could help you.

They are fabulous and if it wasn't for their help I wouldn't have gotten PIP last year after trying for disability benefits since 1988.

A glass of Indian Tonic Water, before bedtime- you won’t see the effect immediately but be patient- give it at least 2 weeks. It solved it for me. Check with your Doctor first.

You have my sympathy. It's horrible isn't it.
I get it sometimes when I get into bed. I usually get it for a few nights on the trot then go quite awhile and I'm ok.
I recently started to drink some London tonic water during the evenings. Pomegranate juice occasionally during the day. A couple of Kalm night time tablets about an hour before bed and 2 paracetamol when I go to bed.
So far so good. Haven't had it since.
I've tried to do a link but it's not working I don't think but you can copy and paste it.

www.everydayhealth.com/sleep-disorders/restless-leg-syndrome/15-tips-restless-legs-syndrome/

Yes the link is working. Hope you find it useful

Georgesgran

You could try Rhus Tox soop.
My Sis-in-Law swears by it for her RLS.

This works for me too. I bought mine from Amazon for a few pounds.

Soop ask to see a neurologist who specialises in restless legs. DH had it very severely. He was on Pregabalin. You could also try a cold wrap. It’s nerve related so painkillers like paracetamol don’t help. Hope you get some relief.

I have been an rls sufferer for 40 plus years, 24/7. At one time I was prescribed ropinerole. However read up on this drug. It will very often eventually cause augmentation if taken regularly. Augmentation is when the drug makes the condition worse. This happened to me. It took me ten months to wean off ropinerole.
Cocodamol 30/500 is what works for me.

It is extremely kind of you all to share your information with me. I appreciate your support.

sharon103 I have accessed the link and found it very interesting.

My GP has asked me to have a blood test. I will report back once I have the result.

I don’t experience it very often soop but when I do it’s in bed, trying to sleep. That awful imperative to ‘move’ is hideous. Very occasionally it’s bad enough to give me muscle cramps when my mind says ‘move your legs’. Luckily what I’ve tried works for my (admittedly very low level and infrequent) RLS. I count. You know - those deep breathing exercises. There are a few variations. The one devised by Navy Seals. Or box breathing.

When I start the counting I can feel the defeatism ‘this isn’t going to work, surely?’. But it does. A few repetitions and miraculously it’s gone.

Try it? You I never know. Good luck finding your cure. It’s a miserable symptom and a bully.

Magnesium Glycinate.

Solgar do this as Chelated Magnesium.

I buy it when discounted at Holland & Barrett.

I take three tablets about half an hour before bedtime.

I also take Magnesium Glycinate ( it’s a 3in1 with Malate and Cytrate) the make I take is from Nutrition Geeks. I take 1-2 tablets an hour before bed.

Hi Soop
I've had RLS virtually all my life, probably my earliest memory was aged 5 and I'd had spinal surgery and was in bed for several weeks - I'm 62 now. My grandma had it, but in her day they used to call it "fidgets"! It can be hereditary and occasionally I also get it in my tummy, chest and arms!
I really sympathise with you and what I've found more recently is that it kicks in when my legs and feet get too warm in bed. Some nights I can't get to sleep because my feet are freezing cold, so I put on a pair of socks and manage to doze off, but then my feet get too warm and that triggers the RLS and the involuntary movements in my legs get so bad the whole bed shakes - it gets on my hubby's nerves but he knows I can't help it, bless him!
I find it helps by lifting the duvet off my feet and lower legs, you know like when they raise the covers in hospital if you've had surgery to feet and legs. This stops my legs and feet getting too warm. It may work for you, but the only other thing that helps me is when I can't stand it any longer I go downstairs and make a cuppa and take a couple of paracetamols - that does help, but I've never been prescribed anything for RLS by my GP.
Sorry for not being able to give you anymore advice.

‘ I also take Magnesium Glycinate ( it’s a 3in1 with Malate and Cytrate) the make I take is from Nutrition Geeks. I take 1-2 tablets an hour before bed.’

I’ll look into that.
Thanks @1summer

Thank you for all your support. I've a blood test appointment on Wednesday. Will let you know the results in due course.

My bloods were okay. Thank you for all your helpful information regarding the restless leg syndrome.
My husband now faces possible invasive surgery on cancers that have developed on his scalp. One such cancer has infiltrated the bone. A multi-disciplinary team is to discuss his case on Tuesday. We then await their decision. In the meantime, we count our blessings.

soop

My bloods were okay. Thank you for all your helpful information regarding the restless leg syndrome.
My husband now faces possible invasive surgery on cancers that have developed on his scalp. One such cancer has infiltrated the bone. A multi-disciplinary team is to discuss his case on Tuesday. We then await their decision. In the meantime, we count our blessings.

Sending kindest thoughts to you and your husband