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Stress urinary incontinence

(41 Posts)
Farmor15 Wed 28-Aug-24 15:41:52

I’ve suffered from gradually worsening stress incontinence for many years. I initially tried the pelvic floor exercises, then asked my GP for referral to a physiotherapist and used one of those electronic gadgets. Another referral some years later to gynaecologist – urodynamic tests to confirm stress incontinence (there are other forms). That was in 2008 and at the time he suggested a few options -surgery was mentioned but I opted for more physio.

I did feel some improvement, but then would get a cold and the coughing set me back and I resigned myself to wearing increasingly absorbent pads – the Aldi ones are good and cheap! After a holiday last year, when I had that persistent cough that was going around, I was soaking through so many pads I kept having to buy more, then find bins to dispose of as I didn’t want to leave a big sack of sodden pads in the AirBnb we were staying in. I went back to GP and asked for another referral to gynaecologist (G). It took about a year to get the appointment, but it was worth the wait! Since my previous visit, G explained, the surgery had been mostly discontinued in Ireland, due to the safety concerns (though he said he’d not had problems and it was very effective). However, a new treatment had come out – Bulkamid – which he explained, involving injections of a gel into the lining of the urethra, narrowing the opening. He didn’t push it very strongly, but said it might help, and if not, I might be a candidate for surgery. Since it’s a day procedure, with no recovery time and very few side effects, I agreed to have it.

That was over 2 weeks ago and I’ve been delighted with the results so far! No pads, no pain, much fewer visits to loo. I’ve yet to test it with a cold/cough, but even if I have to wear a light pad if coughing a lot, it will be a huge improvement.

I searched Gransnet to see if anyone else had posted about this and only found one query from 2018, but not from someone who had had it. I think it’s relatively new, but here are some references for anyone interested.
www.yorkhospitals.nhs.uk/seecmsfile/?id=3074
www.bulkamid.com/patients/

Loving Sun 01-Sept-24 17:19:01

I have a prolapsed bladder and had incontinence. After years of wearing pads, I started doing yoga 3 or 4 times a week. A year later and I have strengthened my pelvic floor and only occasionally have an urgency leak, but I do not have to wear pads.

MayBee70 Sun 01-Sept-24 17:20:53

I don’t have stress incontinence but I do have to get up in the night several times which is exhausting me. I did look at Jude but was worried about taking any form of oestrogen having avoided eg being on the pill etc throughout my adult life. I did buy some pumpkin capsules and some soya milk to take but can’t help but feel it’s the oestrogen that is the important ingredient.

Harmonypuss Sun 01-Sept-24 17:31:21

I have MS, and after the birth of my second child all the docs said my problems were related to childbirth.
I eventually got referred (10-11yrs later) to Neuro-Uro specialist who suggested biotic injections into the lining of the bladder. She told me that the effects of this can last anywhere between 9 &15 months.
I've now been having these injections every 17-18 months (apparently, I'm really lucky they last this long), for around 15yrs now.
So anyone who tells me they've got problems with incontinence of the bladder, I suggest reading up on this treatment to see whether it might be suitable for them. Everyone I know to have looked into it, been assessed and received the treatment, hasn't looked back because it's so effective.
Definitely worth looking into!

Harmonypuss Sun 01-Sept-24 17:32:58

Not 'biotic' injections, 'botox' injections.
Serves me right for not proofreading my post before hitting 'submit'.

WMum01 Sun 01-Sept-24 17:38:36

Thank you for your reply. I won't be taking them again then, even if they had helped, which they didn't that much. The dry mouth side effects were a problem too.

Sleepygran Sun 01-Sept-24 19:19:59

Seagull 72 I think that is a brilliant idea!
I have problems with continence but won’t go to my GP and put up with it.I go out a lot less now because of it.
Men seem to think it’s funny,so puts you off discussing it with a male dr.

Mamo Sun 01-Sept-24 19:25:05

I had mesh surgery in 2011 and three “trimming” procedures since. Although I have no pain, the discharge produced by mesh protruding into the vaginal wall is distressing and irritating to the skin. I just posted to say I have only last week started using Everdries pants which are a hundred times better than pads, for me and the environment. And they’re very light and look like regular pants. I’m delighted with them. There are several companies doing them now. Worth a look unless you’re heavily incontinent.

Dinahmo Sun 01-Sept-24 19:31:49

Healthspan also has a similar product - same ingredients I think. I'm awaiting my first delivery so will let you know how it goes

mclaysmith Sun 01-Sept-24 22:40:43

I had Botox injections into the bladder 18 months ago. If I’m careful with liquid intake, like 1 litre a day, I have good control.

Nannan2 Mon 02-Sept-24 00:52:09

I will look up the Jude supplement but doubt i can take it as im on warfarin and theres so much i cannot take with it- even some vitamins and all herbal remedies etc.

Nannan2 Mon 02-Sept-24 01:03:55

Ive had the urodynamic tests a few years back, and diagnosed with the mixed variety.Since taking me off the withdrawn oxybutynin theyve left me to my own devices to struggle with þena etc.

Nannan2 Mon 02-Sept-24 01:04:24

*Tena etc.

Sillymoo Mon 02-Sept-24 07:35:03

Oestrogen suppositories (Gina) are available from your pharmacy or online if you don't want to discuss with GP. Cost £25-£30 for 12 weeks.

Sillymoo Mon 02-Sept-24 07:35:56

Sorry should be pessaries.

Farmor15 Mon 02-Sept-24 08:31:42

Nannan2 - the Jude supplements seem to be worth a try, judging by some posters here and the positive reviews elsewhere. But you might enquire about Bulkomid- it's working for me so far, though I know there's no guarantee.

Judging by the number of ads for "pee pants" etc, leaking is a problem a lot of women have. People really shouldn't be embarrassed to talk to doctor about it. However, I think some maternity units in hospitals have incontinence clinics and specialist nurses, so it might be worth checking.