Lost faith completely now .....

I too have CKD. The Dr. said it sounds worse than it is.
Had a scan 3/4 years ago and that was normal.
I am on Losartan (100mg!) and that protects the kidneys.
Don't worry.







Cts the kidneys

In your position Luckygirl I would move to an area that doesn't have a GP practice with a history with your late husband.. Maybe nearer one of your daughters..
Failing that I would find a consultant who is able to give all your medical records a complete overview.
At the very least I would request an interview with your clinical pharmacist at your GP practice.
I would also write a letter of complaint to the NHS complaints board.. just google it for details.. that txt was appallingly insensitive..

I have CKD Stage 2 and am monitored every six to twelve months. It's irreversible, but people can help it stop getting worse. For me, it's especially important to control diabetes.

I usually find out the results of blood and urine tests before my GP. I know when I've had tests done. They're usually available later the same day and I receive an email when the result is available, so I check.

I don’t believe Luckygirl will move again pascal.
She moved to a new house only a couple of years ago. My friend whose husband, a retired GP now deceased, goes to a local practice. Makes no difference, as Lucky says, most of the GPs don’t stay long anyway.

Farzanah

I don’t believe Luckygirl will move again pascal.
She moved to a new house only a couple of years ago. My friend whose husband, a retired GP now deceased, goes to a local practice. Makes no difference, as Lucky says, most of the GPs don’t stay long anyway.

I think that is why I have such a wonderful GP practice Farzanah.. because my GP a senior partner has been there for many years and is loved by all his staff (according to the senior nurse there).. There is hardly any turnover of staff and it is easy to get an appointment there..

I do appreciate how lucky I am...

Yes. My practice was the same. A brilliant caring Senior Partner. Then he took early retirement and left - burnt out I suspect.
So what did they do? Employ a Physician (so called) Associate (much cheaper).
The practice has gone down hill since, and I told them so!

I'm sorry Luckygirl this has happened to you, it's wrong on every level. This isn't about the state of the NHS this is about people not showing enough care and compassion. I don't care how harresed someone is, they should think about the person they are dealing with.
Sending a big hug. 💐

Luckygirl3, I’m very sorry you've had this bad news, but as others have said, not necessarily as bad as first thought. Good luck, but, re the ramipril, should you start coughing, come off it asap.
BigLouis, sorry to hear of your awful news too - good luck to you also

Luckygirl I'm sorry you have had this news, and that it was delivered in such an inappropriate manner.
I have had stage 3 CKD for about 5 years now. There are no side effects, and apparently no treatment until you get to stage 5. They will give you 'lifestyle advice,' which basically means cutting out most foods that you enjoy and going on a three mile walk every day.
I really don't think, in these situations, it's the best option to tell the patient. All it does is create worry.
Big Louis I'm sorry to hear what you are going through. Sending hugs and love to you.

I am well over 80, been in good health most of my life, just usual women things.. then had annual checkup, gp said I had 40% kidney failure,, those words,, I showed my upset, he said well you aren`t on dialysis and you are 88! not a good way to speak to patients, but as someone said.. they aren`t allowed the time to help us as human beings.. oh and the bp medication has contributed to the kidney problem.

No excuse for the text you received, I'd be very upset to receive something like that but I wait with interest to see what happens with my GP surgery as I've just had a blood test. The results are on my NHS app and it looks as if I also have CKD, stage 2, no doubt a result of having had high blood pressure. I've recently gone on Losartan as Perindopril gave me a nasty cough but both can affect the kidneys (hence the blood test) but so can high blood pressure. It's all a balance isn't it? I haven't mentioned it to OH, he's a really kind person but has the knack of saying the wrong thing and when the previous issue raised it's ugly head his comment of "it's just one thing after another" really upset me as it made me feel a bit of a burden. However, I do think being ill makes even the strong feel vulnerable, anyway it makes me feel vulnerable but sometimes other's don't realise. Try not to worry but being angry is OK (not good for BP though).

I took have Stage 3 CKD but other than being advised to drink more than I really want, that's it. I have just had my annual checkup and my results are slightly worse than in the past but still Stage 3. What is bothering me is that my blood pressure is 158/85 which I thought was high but no action has been taken. Does anyone know if I should pursue this?

Metra if you are taking your BP correctly (sorry don't mean to sound patronising) and that's the average of three, yes, I'd contact my doctor. I'd do five days, am and pm and then if you are worried, have a chat. That's what the GP is there for, primary care, high BP is potentially serious so best to nip it in the bud asap.

I was prescribed a medication about 8 years ago which did help the condition it was supposed to. However I started having symptoms in my feet some 3 years ago. I did see the GP and had a blood test but no cause was found so probably arthritis. Recently my balance was affected and my feet and hands were really painful so I Googled it and found the medication causes peripheral neuropathy, is contra indicated in my age group and is not for long term use in any age group. Saw a younger GP who agreed with Google and said I should be never have been prescribed it and certainly not for 8 years. So my question is, why did nobody at the surgery know this, and why the pharmacist did not know it either. I am told the neuropathy might improve but in the meantime I am in constant pain and because my balance is affected am afraid to go out alone.

OK .... get this .... I have just seen the private cardiologist who has taken me through all my blood test results on screen from the NHS. There is nothing wrong with my kidneys at all ...... !!!
Which begs the question .... why did the GP send me that text!!??

Thank you Foxie 48. My BP was taken 3 times at the surgery when I had my checkup. I don't normally suffer from 'white coat syndrome'. I think that I will buy a BP monitor and take my own readings then contact the surgery if necessary.

biglouis

Im sorry you had to hear this way. It can come as quite a shock and nothing can prepare you for it. I imagine you feel quite angry and distressed. I did myself.

Earlier this year I was reading my medical notes and I have been diagnosed with an advanced form of liver desease - fibrosis stage 4. That means cyrosis which is incurable and my liver is not going to recover. It seems my immune system is attacking my liver and the prognosis is 1-2 years.

Its treatable but not curable. Unfortunately the treatment produces such horrible side effects (stomach pain, weakness, depression, headaches) that I have abandoned them.

I passed my 80s birthday last month so I reckon Ive had enough and am now doing what is known as "putting my affairs in order".

biglouis, I have just seen your post and send you my heartfelt best wishes for a longer life than you imagine.
A prognosis is just a guess; I worked for a GP who was lovely but made the mistake of telling a patient how long he had to live. The Consultant the patient was under found out this and sent the GP a volcanic letter telling him that nobody can say things like that with any certainty and to not do it again! Lead your best life, eat well, take care of yourself and prove them wrong.

Yes, this may well be the way things are going. I sent an econsult to my surgery, with pictures of a blistery patch on my nose, and of the burst blister with a scab. It was the third, and worst, incident of this. An email from a foreign physician associate arrived saying, “ Yes this is suspicious. A referral to dermatology is made”. I called dermatology and was told that I was on the urgent list - waiting time seven months. I asked if it was safe to leave it that long. She said that the word
‘ melanoma ‘ wasn’t actually mentioned, so obviously not on the very urgent list. Still waiting to hear.

I have CKD stage 3, but I am not diabetic and my blood pressure is low to normal. I drink plenty of water.
I think the way this is put across can be frightening, usually by a practice nurse or a PA, and sounds worse than it is.

buffyfly9

biglouis

Im sorry you had to hear this way. It can come as quite a shock and nothing can prepare you for it. I imagine you feel quite angry and distressed. I did myself.

Earlier this year I was reading my medical notes and I have been diagnosed with an advanced form of liver desease - fibrosis stage 4. That means cyrosis which is incurable and my liver is not going to recover. It seems my immune system is attacking my liver and the prognosis is 1-2 years.

Its treatable but not curable. Unfortunately the treatment produces such horrible side effects (stomach pain, weakness, depression, headaches) that I have abandoned them.

I passed my 80s birthday last month so I reckon Ive had enough and am now doing what is known as "putting my affairs in order".

biglouis, I have just seen your post and send you my heartfelt best wishes for a longer life than you imagine.
A prognosis is just a guess; I worked for a GP who was lovely but made the mistake of telling a patient how long he had to live. The Consultant the patient was under found out this and sent the GP a volcanic letter telling him that nobody can say things like that with any certainty and to not do it again! Lead your best life, eat well, take care of yourself and prove them wrong.

It sounds a very inappropriate prognosis to make to you Biglouis and given how strong ,spunky and independent you are, I bet you will prove him wrong...

I wasnt given a prognosis by the medical people. I looked up the prognosis for fibrosis stage 4 - and took an average from several websites. They bury these things deep in your medical notes and imagine that the "average" patient will not bother to plough through all the test results. But being a retired academic I am used to reading dense prose and research notes.

So Im going to run my heating and be comfortable this winter regardless of what Mein Furher Starmer and his jack booted minions decide to announce. That my bills will die with me is a source of pleasure.

biglouis .... I am sorry that you have these problems with your liver function and am hoping that your life is more comfortable off the medication and that you are able to enjoy life to the most. Sending supportive thoughts. The battle with aging bodies is such a challenge.

How the hell is that the sort of thing to send in a short text message. I would definitely make an appointment to 'discuss'. What an unbelievable thing to send to anyone. Sorry I have no advice for you, but am so angry for you.

Luckygirl3

OK .... get this .... I have just seen the private cardiologist who has taken me through all my blood test results on screen from the NHS. There is nothing wrong with my kidneys at all ...... !!!
Which begs the question .... why did the GP send me that text!!??

Write a letter to the GP Practice Manager marked URGENT and demand an explanation. Ask to see your actual test results.

grannybuy

Yes, this may well be the way things are going. I sent an econsult to my surgery, with pictures of a blistery patch on my nose, and of the burst blister with a scab. It was the third, and worst, incident of this. An email from a foreign physician associate arrived saying, “ Yes this is suspicious. A referral to dermatology is made”. I called dermatology and was told that I was on the urgent list - waiting time seven months. I asked if it was safe to leave it that long. She said that the word
‘ melanoma ‘ wasn’t actually mentioned, so obviously not on the very urgent list. Still waiting to hear.

Why is the fact that the PA is foreign relevant?