Menieres Disease

After years of having bouts of "menieres disease" the doctor decided it was BPPV. Same issues there is a maneuver that is supposed to help but I've never tried it as it can make you very sick.

I don’t drink anymore, never drank much before but with this kind of problem a sufferer can do without a substance that can cause feelings of being off kilter.
I heard a case of a vicar being hauled up for drunken behaviour which turned out to be Menieres. Though cannot vouch for its veracity.

Just recently I had an attack of vertigo and vomitting, fortunately fairly short-lived. I have written up my symptoms in the NHS app so it will be interesting to see what response I get. I suspect BPPV as it seems to fit.

I can’t be 100% sure but as far as I know Bppv is something different. Benign positioning posture vertigo ..well something like that. There is a special manoeuvre to try to help.

I still have the odd glass of wine or a long cold g and t but only one.

For those of you who have a diagnosis of Menieres , may I ask how you were diagnosed please?

I was diagnosed by an ENT specialist after having a CT scan to rule out anything else going on. This was after years of attacks of vertigo and ear problems.

There was a belief at one point that I had positional vertigo and the manoevre was attempted by a GP, it only resulted in me being violently ill on his sugery floor.

Thank you Babs03

It's really a diagnosis of elimination. Apparently only able to be verified on autopsy.

Thank you Chocolatepeanuts
There seems to be many conditions with very similar symptoms, vertigo, nausea etc, that I’m interested in how each diagnosis is made between them.

I had one ‘episode’ 4 years ago when the room spun like tumble dryer for 5 hours continuously. Nausea and exhaustion followed. An appointment with a consultant neurologist and 2 MRI scans 48 hours after the episode concluded a form of migraine?
I have been left with tinnitus.

I would be very interested to hear how everyone was diagnosed with their particular conditions, especially Menieres.

Thirty years ago I was diagnosed with menieres by having water put into my ears whilst lying flat on a hard trolley which the doctor turned up and down and sideways. I was so ill and dizzy but that's what happened

I had my first episode of labyrinthitis when I was mid 30 s. The next episode came 7 years later, the next 3 years and so on til it was very regular and then frequent . It was always called labyrinthitis.

My hearing got worse and tinnitus began. I was under St Thomas hospital and they diagnosed menieres.

So I think it’s the combination as above which changes the diagnosis but in my long experience the symptoms of both are exactly the same. Horrible. Truly horrible.

The good news is Betahistine has helped me and it’s been a long time since my world was spinning. 😵‍💫

Thank you polomint and silverling48, that’s a great help.

Huge sympathy to you both, and to BA69
It must be very frightening for you BA69 I hope you have support at home.
Sorry to have highjacked your thread, but hopefully it might trigger a bit more advice for you too.

Great that you have finally managed to get yours under control silverling48 after so many years.

I’ll make a note of Betahistine for future reference.
Every morning since my episode, as I step out of bed I brace myself……