Menieres Disease

Hello Henetha. You may be thinking of Betahistine which I mentioned has helped me. I still take one a day even though I have not had a vertigo attack for a few years but can’t risk it happening as I spent whole weeks in bed.
As for ears syringing, I get mine suctioned at the hospital now, and it’s been fine until last time when the dr put some liquid in my ear and the room immediately started to spin. She did say it happens sometimes with or without menieres, but I won’t have any liquid put in again and it’s on the notes.

I was diagnosed back in my thirties. The attacks were infrequent but quite severe when they did happen. Lying down, but with my head raised, was the only option to ease it.
Eventually I had a drug which I always carried with me. It began with B but I can't remember it's name. I have no tablets left as they date expired ages ago.
The thing is, I haven't had a bad attack for years now. So I'm hoping it never comes back. But I often wonder.....
One unfortunate side effect is that I cannot have my ears syringed. As soon as the nurse starts the procedure the whole room tips upside down. So ear wax is a problem for me.

I agree that attacks do seem to become less frequent or as bad. So there is hope BA69.
🌹

@polomint no I close my eyes during an attack but was assuming the OP was asking about an attack while out and about and closing her eyes might not be a safe thing to do. Luckily I haven’t had an attack whilst out and about on my own but will now get some betahistine to keep in my pocket.

Was diagnosed about 8 years ago after several bouts of vertigo.
I keep betahistine up my sleeve anx take it if feel an episode coming on.
The thing to avoid is alcohol. That doesn't help.

I've had this for many years.At the start the vertigo attacks were totally debilitating.One would come on without warning.I'd get a deafening noise in my ears,my balance would go completely and I'd feel so sick and ill.During an attack I couldn't move which wasn't good if I was out and about.I must have looked drunk.
These days I think my brain must have adjusted to the vertigo as it's a lot milder when it comes.Still unpleasant but not incapacitating.I was recommended exercises by the specialist I saw to move your head certain ways.This brings on dizziness but retrains the brain.Not that I did them as the thought of bringing on dizziness wasn't for me.I can't remember what they were called but you could Google them.I hope things improve for you.It's a horrible illness and not well known as you say.

I have menieres too. I was diagnosed aged 28 and am now 79. If an attack happens and I usually have warning signs like a day or 2 before with a feeling that somethings not right. I take 2 serc( antihistamine tablets) in morning, 2 In afternoon and 2 at bedtime. That usually does the trick. If I don't catch it in time, I spend 2 days in bed unable to move or I would be sick. Thankfully that happens only rarely now as I now how to avoid it. Unlike the other lady, I do have keep my eyes closed as everything swirls around. Strong sunlight can bring it on plus if I'm very anxious about something. You will hopefully find the triggers that set It off and you can then avoid them. It is very scary at the beginning when first appears. Good luck in controlling it as it can be done

I did take cyclizine for a while but will ask about betahistine if it starts flaring up again.

I have a close relative who has had this for years.

But I havent even heard her mention it for several.
No idea if that is unusual or not.

Yes I can’t lie flat and for that reason struggle in a dentists chair, and I can only sleep on my right hand side, if I turn to the left to sleep the vertigo sets off.
At the moment though unless I do something that triggers it I haven’t had an attack for a considerable time. 🤞

I was diagnosed with menieres about 15 years ago. My first attacks were in my 40s, 35 years ago. Like Babs it was diagnosed initially as labrynthitis but progressed with hearing loss and tinitus to menieres. However symptoms were the same , violent spinning, vomiting, inability to walk. Woukdnt wish it on anyone.
I never lie flat, always have head raised. If I need to turn over in bed I do it slowly and in stages. If I am having an attack I dare not close my eyes but keep them open and focused on simething in front of me. I have a radio on quietly at night to block the tinnitus. Leave a light in at night as the eyes work as balancers if the ears are damaged.
There is an injection which our gp showed my dh how to use and this stops the spinning almost immediately. I spent so much time in bed because I felt safe there.
The good news is that I began taking Betahistine some years ago and the frequent attacks I used to have have all but stopped. They have helped a friend too.
You have my sympathy. 💐

Menieres is a well know condition, of balance and dizziness aka vestibular disorders.

Are you aware there is a Menieres society? Hopefully you can have some reassurance that you are not alone.
www.menieres.org.uk/
I think they have a Facebook page too.

I have this, and yes they can tell by the eyes, I take meds when the vertigo is bad to stop me feeling too nauseous. I cannot look or reach up, so putting washing out on a rather high line we have in the garden makes me want to fall over backwards, so my OH puts it out, he says he could adjust the line but hey I like him helping out.
Mine started with labryinthitis, an illness that affects the inner ear.
Try asking for meds if you feel nauseous, and if out alone when the vertigo starts do try to find somewhere to sit, or ask for help if in a shop etc., am sure they could bring a chair, or if nowhere near a chair or other person try holding on hard to your walking frame whilst keeping your head straight and looking straight ahead, don't be tempted to move your head I find that makes it worse, and don't let someone talk you into sitting down and putting your head between your knees, the worst possible position to get up from.
In all honesty you will get used to it and find your own ways of coping. Is just, as you say, gaining confidence.
All the best.
btw I find that too much screen time on my lap top or phone can bring it on.

I was diagnosed with this. My eyes used to flick side to side like I had got off a fast roundabout. Looking up used to make it worse. My hearing is very poor but it did improve eventually.