Gransnet forums

Health

Fainting and possible AFib

(20 Posts)
bobbydog24 Mon 11-Nov-24 07:52:16

Thank you.

Iam64 Sun 10-Nov-24 19:49:17

Google is your friend. Ask for a cardiologist near you, who specialises in atrial fibrillation. Read their information, then Google patient reviews of the ones you like the sound ofb

PamelaJ1 Sun 10-Nov-24 17:45:08

bobbydog24

Did you have to go private through your GP. Ive no idea how I’d go about finding a private cardiologist.

I’ve just been in this situation. We have two private facilities near us - Spire and The Global Clinic (aka Healthshare) I rang and made an appt with a cardiologist. Had my echocardiogram yesterday. Spire doesn’t do echocardiogram so went to Global.
I just couldn’t wait 4/5months.

foxie48 Sun 10-Nov-24 17:30:58

I went direct by googling a consultant cardiac electrophysiologist, purely by chance I got the doctor that I eventually saw via the NHS. I emailed his secretary asking for a consultation.

bobbydog24 Sun 10-Nov-24 12:52:45

Did you have to go private through your GP. Ive no idea how I’d go about finding a private cardiologist.

foxie48 Sun 10-Nov-24 09:22:20

Why don't you go on the British heart foundation site? There's a couple of forums I belong to and there's lot's of information. People sometimes post issues similar to you and get advice and support. Unfortunately the only way to speed things up is to go private. I did that to get an initial diagnosis it cost £250 approximately but I was in permanent atrial flutter so an ECG showed exactly what type of arrhythmia I had, it also showed left bundle branch block and grade 1 heart block which was not diagnosed when I had my first hospital admission via A&E. It was money well spent as I had the opportunity to talk through my concerns and options. His advice was invaluable and included staying on the NHS for treatment as treating arrhythmias can be expensive and frustrating.

bobbydog24 Sat 09-Nov-24 20:08:12

It’s difficult for your vulnerability not to affect your life. I too live alone and this feeling is alien to me but nevertheless I can’t shake off the what ifs.

Iam64 Sat 09-Nov-24 20:05:43

I was diagnosed with af 9 1/2 years ago. It may have been triggered by a significant chest infection. My GP detected it via pulse and it was confirmed by ecg at the surgery. I had a cardioversion 8 months later, which worked briefly. My consultant advised against a 2nd cardioversion because 50% are effective only short term. The cardiologist concluded meds to regulate the heart beat are the least worse current treatment

My AF is permanent, I get breathless on hills so take it slowly, I take meds to try and regulate the beat, along with blood thinners to minimise stroke risk,
I live alone . I walk every day . Try not to brood, worrying changes nothing

Luckygirl3 Sat 09-Nov-24 19:49:07

I live on my own with AF and coronary artery disease. I manage. It is important not to let these things dominate your life. Thinking about it all the time is no way to live. Please get the medical advice you need first, accept the treatments and then try and live your life.
Good luck.

bobbydog24 Sat 09-Nov-24 19:40:08

A friend has had a pacemaker for years now. Said it changed his life. Hopefully you’ll get yours soon. It’s criminal the lengths people have to wait for these procedures.
I’ve never been concerned by my health before, as in not had health anxiety but the last 2 years have changed that. I suddenly feel vulnerable and frightened.

foxie48 Sat 09-Nov-24 19:24:12

bobbydog24

Foxie48. Even once I have the 24hr heart monitor, it will be 10-12 weeks before notification of the results will be obtained. Nice Christmas for me then. I would have had the same wait for the BP cuff results but I had it done at the pharmacy which took 24 hours. Bit of difference.

I'm on the wait list for pace and ablate, which is basically when I have my own heart beat knocked out and a pacemaker is used to keep my heart beating tbh It's a big step but it will hopefully improve the quality of my life, wait list is 8 months so I do understand how you feel. They won't proceed with the procedure if I have anything wrong structurally with my heart so I had an echocardiogram last month (I had waited months for that) but I won't find out the results for weeks, my fingers are crossed!
I intend to enjoy Christmas because tbh I don't know how many more I have left, none of us do.

bobbydog24 Sat 09-Nov-24 18:04:48

Foxie48. Even once I have the 24hr heart monitor, it will be 10-12 weeks before notification of the results will be obtained. Nice Christmas for me then. I would have had the same wait for the BP cuff results but I had it done at the pharmacy which took 24 hours. Bit of difference.

bobbydog24 Sat 09-Nov-24 17:59:19

Janeainsworth. I know my anxiety is making things worse but it’s hard to relax when the possibility of fainting is hanging over me. My doctor knows this but doesn’t want to prescribe any more medication to hamper the heart monitor results.

foxie48 Sat 09-Nov-24 17:46:12

It's really hard not to worry but unfortunately with possible AF it's much better to try not to, relaxation or anything that helps to take your mind off your worry would be my first port of call. I have atypical atrial flutter and have been admitted to hospital twice via A&E so they have got good ECG evidence but it can be tricky capturing an arrhythmia if it comes and goes. Good news is your BP is normal as are all the other tests, try to focus on that. My experience has been very positive and although the waiting lists for anything cardiac are too long everywhere, when I've needed treatment I've got it quickly. Lots of us as we get older develop arrhythmias and we still lead normal active lives, a positive attitude really helps. Good luck with your appointment.

janeainsworth Sat 09-Nov-24 16:47:20

bobbydog I was suggesting you see your doctor about your anxiety which is probably making your symptoms worse.

bobbydog24 Sat 09-Nov-24 13:48:18

Farmor15. I know that some have AFib without any symptoms. Mine is more like palpitations but not fast. Just a missed beat and then a ‘bump’. Only way I can describe it. It’s on my mind constantly. 🥹

bobbydog24 Sat 09-Nov-24 13:36:31

Janeainsworth. I did that and she managed to get it 4 days earlier, still beginning of December though.

janeainsworth Sat 09-Nov-24 13:28:11

Go back to your GP, tell him/her all your symptoms & how anxious you are. Request an urgent appointment.

Farmor15 Sat 09-Nov-24 13:27:20

giftshop.bhf.org.uk/alivecor-kardiamobile-ecg-monitor
Suggest you buy this device which works with phone. My Afib was detected this way as only intermitent so didn't happen when having "proper" ECG.
When having an episode or even after, I can feel slightly dizzy, though never fainted. I also have an odd anxious, anxious feeling. But I'm on anticoagulant so at least don't have too much worry about having a stroke.

bobbydog24 Sat 09-Nov-24 12:59:47

Two years ago for no apparent reason I fainted had various tests that flagged up nothing. I am 77, type 2 diabetic and have an under active thyroid. Year later it happened again. Same tests flagged up possible low BP so taken off beta blocker. Thought solved. Fainted again in July. Went to A&E this time. Had ECG, bloods. BP taken. Nothing but doctor advised to go back to GP for investigation. Had appointments for BP 24 hour cuff and 24 hour heart monitor which is in December with results 10-12 weeks later. I remembers I had BP cuff done at pharmacy last time so enquired if they still did it. Had it fitted that day and results sent next day when it was taken off, to my doctor. This showed normal BP but possible AFib. I am experiencing a feeling like when you go over a hill in a car, which makes me want to cough. I’m terrified of having a stroke as it is an AFib possibility with no medication but doctor says heart monitor will show what is wrong and doesn’t want to mess with my
medication. I’m feeling so anxious, which is making matters worse. I live alone so probably over thinking things. I can’t afford to go private so just have to wait it out. Has anyone else had similar experience. No horror stories please, I’m anxious enough. Sorry for saga. I’m feel like I’m going round in circles with nothing being sorted.