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Health

Still waiting

(62 Posts)
Rainbow1235 Mon 03-Feb-25 20:43:07

I’m sorry you’re having to go thru this. Sending hugs 🤗

SueDonim Mon 03-Feb-25 20:39:28

That’s terrible, I’m so sorry. flowers I’d call the medical secretary every week, to find out the latest, and also hope that by reminding them you’re still there, you’ll get seen soon.

Fwiw, a friend has been waiting 18mths for two new knees and she’s now thinking of raiding her piggy bank to pay privately to have at least one done, to make her life more tolerable. It’s a shocking state of affairs.

Cossy Mon 03-Feb-25 19:44:56

I too feel for you flowers It’s unjust and very annoying and being in constant pain is so depressing and debilitating smile

maddyone Mon 03-Feb-25 19:00:21

Thank you so much ladies. I really appreciate your comments. The latest update is that I have spoken to the team at the hospital this afternoon. It seems that if I had been on the list for this afternoon, my surgery would have gone ahead, but unfortunately I was on the list for this morning. Surgery was restarted this afternoon. All patients (such as myself) who have been cancelled are going to be fitted in as and when. They are discussing how/whether to fit in some additional surgical lists, but I have no idea when those would be (maybe weekends?)

What I took from that discussion is that I will be waiting for some more weeks. I can’t tell you level of disappointment I feel because my pain levels have increased so much lately. Also because I’ve reduced the level of activity I’m engaged in substantially. That is to try to avoid very much contact with other people with there being so much illness around which could prevent my surgery going ahead. So no theatre trips, cinema, no lunches out or visits to restaurants or pubs, and limited visits to shops and I’m wearing a mask when I do go. I can, and do go for walks around my local area. Basically I’m avoiding other people, except I do see my family at weekends. I realise even they could bring infection to me, but I have to see some people.

I just wonder how much longer.

Aveline Mon 03-Feb-25 14:19:18

Oh dear. That's rotten. I do feel for you. Fingers firmly crossed that they get in with it and quickly get round to giving you a new date for the op - and stick to it! Please keep us updated as to progress

BlueBelle Mon 03-Feb-25 14:12:36

Feeling for you Maddy 💐
Nothing worse than getting ready and psyched up only to have it all dashed Fingers crossed you ll hear soon Maybe a call to the hospital from you might nudge them in the right direction

Doodledog Mon 03-Feb-25 13:56:07

Sorry to hear this maddie. Being in pain is so miserable. I hope get treatment very soon. flowers

Chocolatelovinggran Mon 03-Feb-25 13:54:02

So sorry to hear this, maddyone. I hope that you are at the top of the list and receive some good news soon.

Nandalot Mon 03-Feb-25 12:35:53

Feeling so sorry, maddyone, that you are having to go through this. Hopefully, you won’t have to wait much longer.

maddyone Mon 03-Feb-25 12:27:59

Thank you UTBB, it’s just nice that someone understands.

Usedtobeblonde Mon 03-Feb-25 12:17:19

I would feel fedup and sad too if this was me.
The fact that you waited so long for a diagnosis is bad enough but then to get psyched up for your procedure to then have it cancelled is too much.
Unfortunately I-have no answer only sympathy.

maddyone Mon 03-Feb-25 11:37:05

So here I am, at home, still in pain, and with no idea when I’m going in hospital for my surgery. It has been cancelled for the third time, leaving me feeling depressed and upset.

I’m due to have spinal surgery, a replacement disc at c5 c6 in my neck. It’s taken me a long time to get here. I had pain, slowly increasing for two years before I consulted my rather unsympathetic GP. If I’d known how long it would take to get here, or how serious my pain was, maybe I’d have gone sooner, but the pain wasn’t too bad, and I don’t like going to the doctor, so I ignored it until I could ignore it no longer. Then followed a further year of tests and meetings with various people in the NHS before a consultant said I should have a diagnostic MRI. Following that, I had my diagnosis.

I finally saw a spinal consultant a year ago. Initially he recommended a steroid injection into my neck, which did nothing. Then he said I need a disc replacement as the disc is crumbling and damaged (why bother with a steroid injection because that was never going to heal the disc) and it would be three to four months wait for the surgery. That was eight months ago. On Friday last week, my surgery was cancelled for the third time. My pain has increased considerably over the last few weeks, I’m in permanent pain, and I’m feeling extremely depressed and upset about it all. I understand that the hospital’s IT was taken down a week ago in the storms and so they’re rearranging some surgeries, but this is my third rearrangement. I have no idea when my next date for surgery will be, and I’m in considerable pain.

I’m just sad and fed up.