Still waiting

I would feel fedup and sad too if this was me.
The fact that you waited so long for a diagnosis is bad enough but then to get psyched up for your procedure to then have it cancelled is too much.
Unfortunately I-have no answer only sympathy.

Thank you UTBB, it’s just nice that someone understands.

Feeling so sorry, maddyone, that you are having to go through this. Hopefully, you won’t have to wait much longer.

So sorry to hear this, maddyone. I hope that you are at the top of the list and receive some good news soon.

Sorry to hear this maddie. Being in pain is so miserable. I hope get treatment very soon.

Feeling for you Maddy 💐
Nothing worse than getting ready and psyched up only to have it all dashed Fingers crossed you ll hear soon Maybe a call to the hospital from you might nudge them in the right direction

Oh dear. That's rotten. I do feel for you. Fingers firmly crossed that they get in with it and quickly get round to giving you a new date for the op - and stick to it! Please keep us updated as to progress

Thank you so much ladies. I really appreciate your comments. The latest update is that I have spoken to the team at the hospital this afternoon. It seems that if I had been on the list for this afternoon, my surgery would have gone ahead, but unfortunately I was on the list for this morning. Surgery was restarted this afternoon. All patients (such as myself) who have been cancelled are going to be fitted in as and when. They are discussing how/whether to fit in some additional surgical lists, but I have no idea when those would be (maybe weekends?)

What I took from that discussion is that I will be waiting for some more weeks. I can’t tell you level of disappointment I feel because my pain levels have increased so much lately. Also because I’ve reduced the level of activity I’m engaged in substantially. That is to try to avoid very much contact with other people with there being so much illness around which could prevent my surgery going ahead. So no theatre trips, cinema, no lunches out or visits to restaurants or pubs, and limited visits to shops and I’m wearing a mask when I do go. I can, and do go for walks around my local area. Basically I’m avoiding other people, except I do see my family at weekends. I realise even they could bring infection to me, but I have to see some people.

I just wonder how much longer.

I too feel for you It’s unjust and very annoying and being in constant pain is so depressing and debilitating

That’s terrible, I’m so sorry. I’d call the medical secretary every week, to find out the latest, and also hope that by reminding them you’re still there, you’ll get seen soon.

Fwiw, a friend has been waiting 18mths for two new knees and she’s now thinking of raiding her piggy bank to pay privately to have at least one done, to make her life more tolerable. It’s a shocking state of affairs.

I’m sorry you’re having to go thru this. Sending hugs 🤗

The constant pain is so depressing, I know how you must be feeling, my DH had injections for pain in his shoulder that has been going on for many months, the injections didn't work so after a scan revealed bursitis and a frozen shoulder as well as an inpingement and OA he has now been referred but it could take 6 months or longer to see a specialist. He can't sleep for the pain, and the pain killers he was prescribed make him feel like a zombie and unable to drive so he stopped taking them.
My heart goes out to you. Is truly horrible being in pain like this and wondering when anyone is going to actually do something about it.
As others have said keep ringing to ask when your op will be.
Take care xx

SueDonim

That’s terrible, I’m so sorry. I’d call the medical secretary every week, to find out the latest, and also hope that by reminding them you’re still there, you’ll get seen soon.

Fwiw, a friend has been waiting 18mths for two new knees and she’s now thinking of raiding her piggy bank to pay privately to have at least one done, to make her life more tolerable. It’s a shocking state of affairs.

I personally know six people in our village who have had to pay privately for hip or knee operations because they simply cannot bear the pain any longer.

I'm sorry to hear that your long-awaited operation still hasn't happened, maddyone. And that the delay is affecting your life in so many ways. I do hope it happens soon and that the pain disappears for good.

What a sad and sorry state the NHS is in ! So sorry maddy. Just awful having to wait and be in so much pain. My friend is in a similar predicament, she had a foot operation in September, and after months of following instructions to the letter, it sadly hasn’t worked, and she’s back to square one.
She, like you, is in a lot of pain and can barely walk. She has to go back on the list again. So frustrating. I really hope you get another appointment ASAP

So sorry to hear you’re going through this. It really isn’t at all fair….💐💐

So sorry to hear this - it’s not fair at all - it will all be sorted. I know there is a long waiting list for spinal surgery. I have first-hand knowledge.. Hope you won’t have to wait much longer. Let us know . In the meanwhile, here are sone

That is truly awful maddyone.

I hope your surgery is imminent.

I will pray for you, if that is ok.

Sorry maddyone I hope you can be fitted on a surgical list sooner than later 🌸

I'm so sorry for the delay to your surgery Maddyone. Just hoping a cancellation comes up and it will be offered to you. The only consolation I can offer is that a family member had the same operation several years ago and it was totally successful. All the best for your surgery, when it happens.

I wish you had a sympathetic GP maddy, sometimes a nudge from them helps. It’s an awful situation to be in, if you can bear to it may be worth phoning weekly stressing increased pain levels and social isolation, there could just be a cancellation. Sending love and a hug.

On the basis of 'it's not what you know but who you know', in a similar situation, I emailed all the members of the trust's board some of whom I did know, to tell them what the waiting list administrator had done. I was then re-instated close to the top of the list. Would you consider writing to your MP to put them in the picture? Leave no stone unturned!

I genuinely feel for you. I had my pre op last week for an op scheduled for March 12th, I haven't even written it on my calendar because I know it will be postponed. When I had my other side done it was cancelled three times and until I am actually on the table being wheeled into theatre I won't believe it is actually going ahead.

It's awful, feeling cast afloat, with no input, and worrying you'll slip through the net and off the radar.

It's easy to see how it happens, too, to vulnerable people.