Gransnet forums

Health

I've only got 1 heart and I'm worried.

(34 Posts)
Sarnia Mon 17-Mar-25 09:40:12

I was diagnosed with PAF almost 36 years ago and in that time I have had 4-5 episodes lasting 1-6 hours in an annual cycle.
I went to bed late on Saturday night and as soon as I laid down in bed, and episode started. 2 hours later, it stopped and I fell asleep. A while later, I needed the loo and once again, on laying down the PAF returned for 30 minutes. I managed to get back to sleep but woke around 8am in PAF.
The problem is, it hasn't reverted back to normal sinus rhythm as it usually does. I have taken a few readings of my heart rate using my BP monitor and it ranges from 137-145bpm with a dip to 72bpm.
I have had this for over 24 hours now and I am getting very concerned. I have Googled it, as you do, and atrial flutter has come up. PAF is irregular and thumping when I have it but this is well described as a flutter and I would hardly know that something isn't right.
Can anyone tell me if they have experienced both AF/PAF and atrial flutter? Any advice would be very welcome.

loopyloo Mon 17-Mar-25 09:50:41

See your gp.

Lathyrus3 Mon 17-Mar-25 09:50:58

Yes, I’ve had it all my life as part of an irregular heart beat due to a genetic condition. Sometimes I wake up and know it’s going to be a bad day and I’ll have several episodes.

As it hasn’t really affected my life and I seem to still be here(!} I haven’t had any invasive treatment.

However, if it continues today and it’s unusual for you I would consult someone. We have a very good walk-in where I live but maybe take some readings and phone 111 or email the GP for advice.

It’s hard to know how to access medical advice nowadays.

Lovetopaint037 Mon 17-Mar-25 09:51:13

Ring surgery or 111. I know nothing about this but if you are worried I wouldn’t hesitate,

Elegran Mon 17-Mar-25 10:08:23

Don't waste valuable time getting a couple of dozen more replies on here, most of them from people with no medical qualifications. All of them will say the same thing - ring GP if it is not usual for you.

NotSpaghetti Mon 17-Mar-25 10:11:34

My heart is always "irregular" but if I had a noticeable change in how my body was working I'd definitely get it checked.

I'd call your doctor and say you want to see someone as a matter of urgency.
flowers
Good luck.

Shelflife Mon 17-Mar-25 10:17:41

I agree with Elegran . Please contact your surgery today and don't pull any punches! This will put your mind at rest and get you treatment should that be necessary. Good luck , keep us posted . 💐

Sallyforth Mon 17-Mar-25 10:26:53

I think your heart is trying to tell you it needs some help. Please do as others have advised and call the surgery. flowers

Babs03 Mon 17-Mar-25 10:39:02

As others say ring 111 if you can’t get your GP. Don’t take chances with your heart.
All the best
🌺🌺🙏🏾

crazyH Mon 17-Mar-25 11:40:52

Can someone drive you over to the surgery ?

foxie48 Mon 17-Mar-25 11:51:38

If you are still reading this, please go to A&E. I have atrial flutter and if it is affecting your heart rate so that it is over 100bpm for this length of time, you need medication to slow it down. The first time I had it, I spoke to the GP, she said come down now, she did an ECG and phoned for an ambulance and I was blue lighted into A&E. The second time OH drove me in to A&E at 03.00a.m. I was triaged and in resus within 20 minutes. Please get to hospital.

foxie48 Tue 18-Mar-25 07:45:18

OP please let us know that you are ok. Hopefully by now your HR is controlled and you're feeling better.

BlueBelle Tue 18-Mar-25 07:51:22

Get yourself to A and E get a taxi don’t mess around with gps and ambulances
Good luck

Luckygirl3 Tue 18-Mar-25 08:02:55

I hope you managed to get some medical advice yesterday.

It is common for PAF (the kind of AF that comes and goes) to gradually get worse over time. When mine started 11 years ago, it only happened a couple of times a year, but now it is over 50% of the time and is a bit of a blight on my life as, when it is bad, I am very breathless and giddy and cannot continue normal life - not even having a shower!

I am on an assortment of treatments and these caused lots of problems to begin with and had to be changed. The treatment I am on now has fewer side effects but is not really very effective. I am awaiting a pacemaker.

Most importantly I am on an anti-coagulant (which causes no side effects) as AF can increase the risk of stroke. This is why it is important that you seek medical advice as it may be that you too need these.

I do hope that you manage to get the help you need. It is important that you do not ignore this.

Sarnia Tue 18-Mar-25 09:34:40

A very big thank you to all the lovely GN's who gave me such good advice. I went to A&E where an unusual ECG showed that in addition to my Afib episode was atrial flutter, which I have never experienced before. I was in resus and wired up to machines and drips very quickly. The meds they gave me gradually slowed my heart rate from 150 to the 80's. I had a chest x-ray and a visit from the cardiologist who has put me back on a low dosage beta blocker and I am now waiting for an appointment with him and to have an echocardiogram. Your advice meant a lot to me and put me on the right road. Thank you all.

Susie42 Tue 18-Mar-25 10:01:44

Good to hear that you are being looked after. I had something very similar and the cardiologist said I needed a pacemaker and booked me in immediately.

NotSpaghetti Tue 18-Mar-25 10:03:46

Glad you took action.
flowers

loopyloo Tue 18-Mar-25 10:04:34

So pleased to hear that, Sarnia!

AGAA4 Tue 18-Mar-25 10:20:00

Glad you are being looked after Sarnia. You must have been so worried.

foxie48 Tue 18-Mar-25 10:46:38

That's good to hear, Sarnia. Atrial flutter usually means the atrium beats at around 300bpm but the ventricle can't beat that quickly so will pick up every 2nd, 3rd or 4th beat, yours was picking up every 2nd. My last trip to A&E was a due to a mix of flutter (mine is atypical ie left atrium) and A fib. It's not uncommon to have both or for one to develop after the other. Hopefully you are also taking an anticoagulant as unfortunately both AF and AFl increases our stroke risk. If you haven't taken a beta blocker before it's not uncommon for it to make you feel very tired initially and for it to take a while for your body to adjust to it but hopefully it does within a few weeks.

crazyH Tue 18-Mar-25 10:49:16

Thanks for the update Sarnia - you’re in good hands ..

FriedGreenTomatoes2 Tue 18-Mar-25 10:51:32

Well done Sarnia for being proactive and I’m pleased to hear you’ve been assessed and are now in the system.

Luckygirl3 Tue 18-Mar-25 11:56:27

I am glad that you were able to get the help you needed.

mabon1 Tue 18-Mar-25 13:48:41

Why are you asking unprofessional persons on
Gransnet, the wise thing to do is see your GP?

NotSpaghetti Tue 18-Mar-25 14:52:58

I think maybe you missed the update mabon1..