BLACK DOG 25

Wishing everyone a peaceful night xx

Hoping you're managing ok, Doodle

nadateturbe I had antibiotics a couple of weeks ago for a UTI, thought it had gone completely, but it's evidently travelled to my kidneys. Got a lot of kidney pain today. Our GP surgery is brilliant. Hope you have a better day tomorrow and manage to go out. It's not nice that you are stuck in bed so much. Take care.

Hope ALL BDers have a restful night x

Good evening everyone. Thanks for nice thoughts. Have been in bed with horrible cervicogenic headache, starting to ease. On top of M.E. it's annoying to put it mildly. But we're all coping with things. Not just me.
To answer your question HVDY Rest doesn't quarantee feeling refreshed. Totally unpredictable. But it's so bad recently that life is nearly at a standstill. I'm starting to feel a bit antisocial which I need to fight against.
Excellent service from your surgery HVDY. You're very fortunate. I hope the antibiotics clear your infection. That's a lot- 6 times a day. I got some for a uti recently. I'm not sure it's worked.

Scaredycat It's lovely visiting family, but it's sad when it's time to leave. Especially when your sister has so many worries with her DD and GC. The time goes so quickly. Safe journey home.

Sweetpeasue thanks for your kind words.
Your DHs health issues sound so complicated. It must be very stressful for you. And it's hard to know sometimes if private is the way to go. I'm waiting for a test and I could pay, but I prefer NHS as it seems better for having all my records together if you know what I mean. It gets very confused nowadays. I hope the 2 weeks goes in quickly for you.

Wyllow3 I wish I could think of some great advice to give you. Is there no one who can help you get to the med reviews? You never know, it might be useful.
I do hope and pray you get past this What's the Point? feeling. I do sense you're making progress though. Koko. Hope the knee is OK.

Doodle hope your hand isn't too painful and you've been ok today. Sending love.x

Evening all sending love and hugs xx

nadateturbe Sorry you had to be in bed all day. Do you feel any better after you've rested? I hope today is better for you.

SweetpeaSue Your husband might get some answers at his appointment. Something needs to be done to help him. His situation seems quite complex.

Wyllow3 IF our meds could be altered, perhaps you'd feel differently? It must be horrible to have the "what's the point" feelings all the time.

ScaredyCat Glad you enjoyed seeing your sister and her family. We all worry about our AC and GC, don't we? It's mad that your niece still hasn't heard about an operation. A pub dinner sounds ideal! We went last night with Little Girl.

Been to the doctor's today (it's an excellent service - online form at 8am, a GP rang me at 8.25, and I saw her at 11.45. Got a kidney infection, so more antibiotics (6 daily) for a week. Hope ALL BDers have a decent day x

Hi all
Well it,ll be time to start the long journey home soon. It’s been so special to spend this time with my sister and all the family.
I,m concerned about her as she has so much stress and worry about her children especially my niece. All health issues of one kind or another. The GC and GGC are great and all getting grown up so fast. So wish they lived closer to us.
Have caught up with all your news and will post properly tomorrow. Seeing myDD & SiL this evening as the local pub has a meal offer so no cooking when I get home!
Love to all - you are the bravest ,kindest friends.

I read earlier EllieAnne.

Please don’t feel any guilt or self punishment. about not feeling as you feel you “should” about this lady who hurt you, I do understand the conflicting feelings tho.

Your poor sore hand, Doodle when we’re older its slow to heal x

Aw nadateturbe it makes it worse having to stay in bed when it’s nice out.

It must fee such a long wait, Sweetpeasue. Will you write everything down so’s to cover all the questions? There are all these pieces in the jigsaw, and it feels like you need to be able to make sense of them all with the right help.

I saw the CPN today, I should be going to this and that tests on the meds I’m on and the place is huge hospital right across the city and I cant make it its too much, trying to get it closer by. I’v been on these meds for ages no problems and it feels like ticking a box. I could pay xtra carer to take me ££££, back when there was actually care they would have given me a lift. If family lived nearer...

She wants a general bloods which is the GP as its been some time, and I can manage that. I just don’t want to do anything, it feels whats the point crawling through days. We did walk in the park a bit as well. I just wish I could want things not merely survive.

Night night to BD’s including those who read.

xx

Nadateturbe So sorry you spent today in bed. That's really awful. I see that the unique fatigue that comes with your illness is so extraordinary and it's so difficult for you to live a full life. I'm so very sorry you've have to deal with so much. I think of you often. Take care of yourself- you are not forgotten here. X

Scaredycat It really is shocking how long your neice has waited to be operated on. Your sister must feel quite worried about it.
Hope you're enjoying the time with your dear sister. X

EllieAnne I remember that lady you spoke about and you were very upset. Please don't think you're not a nice person because she died and you don't feel hurt because of that. Her DH will be very upset and that's just how it is.
HVDYYou had a busy day yesterday with Littlegirl. Bet she loved the paddling pool. My DHs next appt is the 28th of this month with Respiratory Dr so hoping he can fathom out his tight chest and breathlessness. He's waited a long time and not sure if he also gets the Spirometry test the same day. I'm worried about that but I think the Dr will ask questions about his chest first and give us the chance to tell him our concerns about heart too.
Doodle I'm sorry your suffering so much with your hands and shoulder. Please don't make it worse by texting we understand. Yes ,first had a Vascular appt last Yr and he didn't see the consultant . Another Dr was relaying info back and forth and this Dr told us the Subclavian Steal not bad enough and we were discharged. Weren't happy at all so told GP we wanted 2nd opinion. GP made a mistake and we got sent to the same consultant. This time we saw her personally but she floored us by telling us there was addendum on his file saying the scan had been reviewed and it wasn't true Subclavian Steal after all as he wasn't fainting. She said she'd be interested to know Hand Surgeon's opinion . We were told by Hand Surgeon afterwards that it was Vascula Insufficiency and not Carpal Tunnel. It wasn't second opinion- appt with same Vascular Surgeon.
Since the Rheumatologist has said he does have Subclavian Steal. We were going to go private , then his chest issues got worse and we didn't know if to go private with a Cardiologist instead.
Sorry it's all got hugely complicated. I can't believe my DH was healthy before the Polymyalgia and GCA came along then Steroids.
We' ll know more about what to do after we've seen chest DR ,although I've been trying to get DH to see another GP in case he could get an fast track access for chest appt. He insists it'll be no good as they'll just say we've got appt. He could be right, yet 2 weeks seem such a long way off.

Take care all. Apogies for not addressing all.xx

Glad you made it to the shops Wyllow3.
Hope you had a good sleep, Sweetpeasue and today is better for you.
HVDY I like having pics of before too. It's interesting looking back. You could just take pics of the photos.
EllieAnne we're only human. She wasn't nice to you. It's sad she's dead and sad for her husband. I wouldn't give it any more thought.
Doodle take it easy.xx
I've spent this beautiful day in bed

EllieAnne( she wasn’t nice to you. You didn’t wish her ill and youre sorry for her poor husband. That doesn’t make you and person just human like the rest of us.
Sorry all I am reading and thinking of you but my left hand is sore now and I can’t write much. Love to all

nadateturbe I had "before" pictures which showed where the previous cupboards and fireplace had been removed, before plastering. They've been saved to my old mobile instead of the SIM card, but I'll try to transfer them some time.

You're not a nasty person. That woman was unpleasant and now she's died. Nor more, no less. Her husband will miss her, I expect, but you don't need to give her any thought at all.

Last night I had some news which has disturbed me and I don’t know how I am supposed to feel or react.
Some of you may remember the lady in my church that I had problems with. She took advantage of my good friend and spread lies about me. She expected everyone to pander to her and had to be the centre of attention all the time.
Last night she died .
I don’t know what happened only that she was taken to hospital and they couldn’t save her.
Her poor husband doted on her and did everything for her and will be lost. She was super obese and very lazy so he did everything for her.
I feel sorry for him but I can’t pretend that she was a nice person because she has died so I guess I’m not a nice person either.

Thank goodness my knee has not got worse and I made it to the shops. My icing and massage last night must have helped, now just have to be careful. I just wish I hadn’t lost my motivation for exercise and the gym as everything would be stronger. But for all of us the losses in growing older are not at all welcome!

I really hope that your niece doesn’t have to wait a lot longer, Scaredycat ,it’s been shocking. I’m so glad things are going as well as they can with sis.

That was quite a long day with Littlegirl, HVDY. As ever, she had a lovely time with you. Super gran!

I’m glad you’ve had company today, Doodle.

So very good to see you in today nadateturbe I do have tinned prunes I should try on bad days. IBS is difficult to manage and I hate a tum like I'm pregnant.

Your body must have needed that rest, Sweetpeasue, I hope tomorrow is a little better.

Night night to BD's in today or just reading xx

Sorry all , just can't post to everyone tonight.
Lovely to see you in Nadateturbe
Just so many I need to reply to.
Not a good day for me- extreme tiredness and aches and keep falling asleep.
Will come in tomorrow.
Night all and hope you sleep well.x

Doodle thinking of you. Glad you've had company today. You have good friends. I hope your pain has eased even a little. x

Sweetpeasue the Lakes are beautiful, nice memories for you. Nature is wonderful. We watch the sun setting across the Belfast hills from our bedroom. Never tire of it.
I can't believe your DH fitted the carpet. He never gives up.
Hope your muscle pain is easing.

Wyllow3 I hope your knee isn't any worse.
I'm sure it was painful. So easy to do something like that. .
It's good getting your hair done, always makes us feel better. I know you feel very low and depressed at times, but you do sound like you're trying hard.
About your tummy pains. I have ibs problems with bloating, being regular etc. I have warm prunes first thing. Then porridge with kefir and blueberries. Apparently insoluble fibre doesn't always agree with the stomach.

HVDY just read all you did on Saturday. Phew! You have such energy!

HVDY I'm sure room is lovely. It's great to have a makeover. I wonder have you got photos of "before and after". GC really keep you cheerful I think. You're lucky to have little girl.

Scaredycat I'm so pleased for you, having this visit. Yes, your sister is a wonderful example of coping. I looked back as I can't remember what your neices op is for, but she has been waiting quite a while, poor girl. My stepdaughter had fibroids and looked pregnant, do I understand a little. I hope today has been good x

Evening all had some visitors for coffee today and some other friends dropped in too which was nice.
Sweetpeasue you’re understandably worried about your Dh. Sorry I’ve lost track is he waiting for an appointment to see the vascular surgeon?
Am reading but can’t write much as I’m afraid of straining my left hand and shoulder and I need them at the moment love to all

Doodle Don't worry about not being able to post much. We're all thinking of you, too.

SweetpeaSue My Son1 is hyper-vigilant and doesn't miss a thing, he's so very observant. Your feelings about your husband are very understandable. When does he next see someone? You and your husband do such a lot in your house and garden. He always seems to be doing jobs.

nadateturbe Thanks. Apart from a little bit of a limp, nobody would know I'd had a stroke as I haven't got any other long-lasting effects. I never learned to ride a bike (certainly won't now). You were very active. We have to do as much as we can, whilst we can.

Wyllow3 These things are easily done. How's your knee been today?

We had Little Girl all day (8 until 5), so went to the playgroup after the carpet fitters left. After lunch, played in the garden, had the small paddling pool out then she fell asleep at 4. Hope everyone has been ok x

Hi all
Sorry no proper posting but have just read and caught up .
Yes we must be glad we have all been able to do some wonderful things and be grateful for the things we can still do.
As for getting old so many don’t have that privilege so make the most of each day as best you can.
I,m now going to help my sister with breakfast and if ever there was a good example she is one. My neice is still waiting and looks pregnant but hopes it won’t be too.long now.
Love to all have the best day possiblexxxxx