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BLACK DOG 25

(1001 Posts)
Scaredycat Thu 10-Apr-25 18:45:44

For the support , understanding and sharing of mental health issues.All are Welcome. We treat each other with kindness.

nadateturbe Tue 08-Jul-25 22:30:40

Chat tomorrow Sweetpeasue and Wyllow3. Not ignoring you, energy gone.
But in case I forget can I just say we signed consent forms at our surgery. Not certain what it covers but perhaps that would help you get information on your DH Sweetpeasue.
Goodnight everyone, hope you sleep well.xx

nadateturbe Tue 08-Jul-25 22:23:20

HVDY just had my usual trim, I never change from my very short. But it had got so long. I wish it would grow thick instead of long!
Isn't it amazing how much better you feel when your hair looks good. I hope you get to the hairdresser soon.
You're doing well on Vinted. My DiL makes quite a bit selling too. It was good finding clothes you had put away for summer. It's a nice surprise when that happens, finding things you had forgotten about.
Hope you sleep well, long day ahead tomorrow, but nice!

nadateturbe Tue 08-Jul-25 22:04:09

Doodle I'm glad you had a good day out with your art group. But I can't begin to imagine what it's like for you to come back to an empty home. You miss your DH so much and I'm so sad for you. You're doing really well trying to find things to enjoy. It's what your DH would want and as HVDY said he would be so proud of you, but it's hard. Sending love and prayers.

Wyllow3 Tue 08-Jul-25 21:35:17

I listened to it, nadateturbe, its very powerful, I like “slow, in fact find myself changing the speed on U tube songs (its in the settings) in order for them to be like that.

Great -the hairdresser. Well done you. It’s scary when that first time you realise how vulnerable we can be, as you did when your head was injured. We must take care…sigh. But not the best way of being reminded.

I got the quote “the crack that lets the light get in, from one of the best books I’ve read recently, by the author Louise Penny. It’s set in a little village in Quebec, and the protagonist is a detective whose should is lyrical, forgiving, and also strong, inner strength. The first book in the series is called “Still Life”, and I cannot recommend it more strongly.

“In the Louise Penny series, Chief Inspector Armand Gamache is portrayed as a kind, compassionate, and intelligent police officer with a strong moral compass. He is known for his integrity and his ability to see the good in people, even in difficult situations. The fictional village of Three Pines serves as a backdrop for many of the stories, and it's a place where Gamache often finds himself investigating mysterious deaths, surrounded by a cast of interesting and complex characters.(One is an eccentric, poet, and older woman, who writes heart searching stuff.)
Good always prevails even in dire circumstances.

HVDY, that sounds like a great way to spend a lovely day like today - sunny’ hot, but not too hot - legs up now grin

Allsorts, I use Dylon products, all available on Amazon.
You start by using “Dygon”, which strips the colour from cottons. (Viscose will dye too, and polycottons take some if the dye by not all.)

Once you have used the Dygon, then it’s time to use the very handy Dylon pods. All you have to do is pop your wet clothes in the washing machine, and peel the top off the pod, and put the whole pod in the machine. There are instructions as regards the temperature, which cycle to use, and so on on both Dygon and Dylon. I’d be interested to know how you got on if you give it a try.
Please come in here and chat when you like, there are willing ears.

Yes - I definitely slow down in the heat, which of course is very good for me.

I’m so glad to see you in, Scaredycat. I can appreciate you really don’t want to over heat, your tolerance is clearly lower because of the AF. That was a horrible scare, at A and E - has it set your confidence back?
Thoughtful words for Sweetpeasue.
I hoped you enjoyed the hairdresser. I’m growing my hair presently but oh I have great natters with my hairdresser, known her for years and years. Do you?

Yes, my new ears are wonderful. No more twisting and turning and as for music - well, “its my everything”.

I find green spaces very calming too, Ellie Anne. In fact, when I try to calm myself I have 3 different ones that I visualise - by a river, the moors on a sunny day, and a beach. That photo says it all.

After the long and so loving marriage, Doodle, it is no surprise you continue to mourn. Of course you feel as you do. You had something quite rare. As you say, others go through it, it can be helpful to know what you are feeling is normal. Yes, little things have become more enjoyable, but very very slowly. The waterfront location of your outing seems a lovely place to spend the day, just observing is enough.

Sweetpeasue, it would seem that you think, on reflection, the Subclavian Steal diagnosis is particularly important, maybe try going with that. Am I right thinking you look at lot of things up? It’s good to be informed, but I wonder sometimes if you do a little too much? But you must follow your intuition as to whats right for you as regards that. Try not to worry about the “someone” - proceed anyway with whom you feel is best to see. Ooo, I bet DH looks spiffing in his new jacket. Nice bargain there.

No, the GP will not speak to you about your husband, but what you can do, and I have done this, is write about your concerns (email?). You dont say “what I think the diagnosis is”, you write

“I am very worried because”.

It is then in their hands. Put it for the attention of your “Best” GP. I highly recommend this for you to get out the anxiety and the GP can decide what to to.

Of course you fear losing him, and that you couldn’t live without him, so try and put it to rest as much as you can.

I’ve been dreaming about the seaside. It was on a super old Agatha Christie film I’m watching in bits (“the body in the Library”) I’m going to to book myself into a hotel that I know very well on the N Yorks coast sometime, not ready for it now but in a few months I will be, I’ve stayed alone twice before.

Had to smile at the runs as it happens all the time. I plan for it as regards taking movicol - ie not before I go out, and know where to toilets are. But the places I go to all have them, and if they dont, when I get out into the countryside, I’m not averse to using a secluded spot.

Today I had an excellent session with my CPN. I had carefully summarised in just 4 well spaced A4 pages bits of my much longer diary that the psychologist reads, which meant we had a basis for discussion.
My mind is both a wondrous place, I can drop into momentary despair, but talk myself out of it: I get tied up with minute details on the one hand: and big grandiose ideas on the other.

It’s just exhausting and very hard work, self watching all the time.

But I went to the gym ,and all changes, and I am so thankful for nearly 50 years of yoga now. Most of the time I am just so happy to feel alive again; some problems crop up as in this condition I find it very hard to eat, but have lots of tempting bits and bobs in the fridge and freezer.

Very tired now. I’ll post my Tube later, I have one in mind. xx

HowVeryDareYou2 Tue 08-Jul-25 20:59:45

Allsorts Feeling so alone must be very difficult. Do you see friends/family?
nadateturbe What did you have done at the hairdresser's? I need to get the layers in my hair trimmed. It grows so quickly.
ScaredyCat The weather is set to be very warm at the weekend (30 from Friday here). I hope your AF won't be too bad.
EllieAnne What a beautiful part of the UK you live in. Did you have any company today?
Doodle I can't comment much on your grief (no experience of losing a partner), but I know it must be very difficult. I can only imagine how it feels. Your husband would be so proud of you,though. Your riverside lunch with the art group must have been lovely. Yes, we see LG a lot - this week, we've got her more than her mum has sad. Saturday evening too, this week. We love having her, of course, but it's tiring.
SweetpeaSue Your buys sound very nice. The stomach/bowel problem must be very difficult when it happens quickly like that. I know how concerned you are about your husband, but I think he's right to wait until the spirometry etc has been done. Obviously, if he were to became much worse before then, get him to hospital. Please don't make yourself ill with worry.

DH is out with Son1, so I vacuumed the bedrooms (3 but the box room is my hair/make-up/dressing room grin) and tidied up downstairs. Sold a few more things on Vinted (another £45 since Sunday). Hope ALL BDers have a good sleep x

Sweetpeasue Tue 08-Jul-25 20:27:38

Doodle Crossed posts again.
Your art group was held in lovely surroundings . You are doing everything you can to continue to live a life and I can only imagine how hard that must be. I'm so sorry for your heartache and sadness. I don't know what else to say. You really are such a kind person . I feel for you and you understand so much about feeling helpless in a situation where you feel powerless. Your lovely man would be very proud of you indeed.

Sweetpeasue Tue 08-Jul-25 20:19:55

Nadateturbe Hope you feel better after your haircut.
Scaredycat Thankyou so much for your words and the hug.
Allsorts lovely to see you in. I don't know your circumstances but feeling alone is the ultimate saddest feeling . Sending you a hug and love.
HVDY Wet towel on legs must make them feel cooler - good idea. Reserve some energy for Wednesday!
EllieAnne Those photos are lovely - the trees are such a beautiful shade of green in that second photo. Glad the weather has changed for you.
Doodle It must be hard to 'put on a face' for any length of time in company. I think larger numbers of people might be more difficult than a smaller group. Hope you've been OK today
Wyllow Thought about what you said and I think the Subclavian Steal diagnosis was never addressed so think things have been worse since. The 2nd opinion with Vascular took ages to come then we saw sane Vascular surgeon who on entering room said there's been an addendum added to husband's note and 'someone' had reviewed his scan and said it wasn't 'true' SS. She wouldn't tell me who the someone was.
Yes , we are all friends here aren't we.

DH picked up lovely suede jacket in Next sale half price and some trajner/shoes. While there I had to race to ladies with the runs.
Had words with DH this afternoon to cajole him in to going to a different GP as soon as this week. He's not moving an inch- won't go till next weeks CT and Spirometry test done. We've been waiting until this, that, and the other appt has passed and time just stretches.
I ended up in tears telling him I can't live without him ( lots of examples why given) . Truly friends. I don't think I'm panicking - I genuinely think what he has is very serious .
I've thought of going to surgery alone but I don't think a Dr would discuss anything without DH there.
I've said enough, sorry to go over same thing.

I do appreciate all of you trying to help and your support.
So many of you are ,or have been, in a bad place.
Take care everyone.x

Doodle Tue 08-Jul-25 20:19:29

Thank you Sweetpeasue I did have a nice time with my art group. I’m ok but going through a difficult time at the moment. I think of DH all the time no matter what I’m doing and although I’m coping much better than I was I just have this sadness hanging over me all the time., I know from others that this is normal and many feel the same. I am a managing to get out and do things and that will have to be enough for now.
Never feel guilty about saying how you feel. You have a lot on your plate at the moment and so much stress over these unanswered question about your DHs health. We are all here caring for you and hoping for some positive news soon.
Wyllow the trip was with my art group to a lovely waterside location for art and a lunch for which we all took something. It was very nice.
hVDY you have little girl a lot. I know you love it but it’s a long day. How comfortable she must be with you both. Hope your plans for Wednesday go well.
nadateturbe nice to see you here and posting. Hope you had a good trip to the hairdresser.
Scaredycat thank you so much for your encouraging words,
I still struggle being on my own and coping with the quietness,
You’re right I often think what on Earth am I doing here. Sometimes just going through the emotions. Something to do, somewhere to be, someone to talk to. I was always so content just being with Dh.
I too am worried about your knock on your head, it still sounds quite painful. Hope the hairdresser doesn’t hurt you.
You are most precious and special to us all.
Ellie Anne what beautiful places you have to walk to. Thank you for the lovely photos.

nadateturbe Tue 08-Jul-25 15:04:52

I just read your post again Scaredycat, missed that about the brain bleed possibility. You must have been so scared. So glad you were ok.

Back later.

nadateturbe Tue 08-Jul-25 15:01:22

Lovely pics, Ellie Anne green spaces are very calming. Try some in out breaths every time it comes into your mind. It helps with stress.

Ellie Anne Tue 08-Jul-25 12:34:21

Got better weather today so been for a longish walk. I do find being in green places calming.
I got really upset about something yesterday but trying not to think too much.

nadateturbe Tue 08-Jul-25 12:12:46

"Scaredycat* I do that too. Something fell on my head Jan 2022 and it's still sensitive. I had post concussion. It will take time to recover fully. But the important thing is your CT was clear. (As was mine)
I hope it goes OK for you. We always feel better when we have our hair done. x

Scaredycat Tue 08-Jul-25 11:43:51

Sorry First post to SweetPeaSue. Xx

Scaredycat Tue 08-Jul-25 11:43:22

Hi all
AF isn’t worse in the heat just harder to deal with as it is so tiring. If it’s too hot I don’t go for walks.
They do say your guts are our second brain so no wonder your IBS is playing up- you are constantly worried at the moment.
I don’t feel as if your husbands symptoms indicate heart problems. Thank goodness he has a CT scan soon.
You never sound flaky just worried but it could be that each symptom makes him more stressed. Try and take each day as it comes if possible- sending comforting hugs.
HVDY- I can’t tell you what we call the pigeons in our garden but it isn’t complimentary!! Little Girl certainly keeps you busy but she sounds delightful company and you and she will be such pals as she grows up.
Enjoy your day today but have a rest up if you can ready for your marathon day tomorrow.
Doodle- glad the Art day was enjoyable- so good for you to be with others and relax for a while. You have to follow your feelings in your head and do what makes you comfortable.its not easy- I remember taking up all invitations but sometimes would sit and think what on earth am I doing here? But you are doing the right thing by getting out and about and just quietly leaving when you’ve had enough.
It’s hard learning to spend some time alone but it will become easier as time goes by.
Take care Doodle you are precious.
Nadateturbe- so good to have you back.
I have hairdressers too this afternoon- I,ll be thinking of you. I,ll have to tell mine to go gently as my head is still a bit sore.
Wyllow- please don’t worry about me- although it is nice to have such caring friends.
Enjoy your new ears- music is so important to you isn’t it. Do you like Bob Dylan?
Allsorts- thank you.yes I was really scared as I have to go to A and E if I ever hit my head hard as I could have a brain bleed due to blood thinners.
I,m sad you feel so alone.- you are such a lovely kind lady . Life can be so hard sometimes.
EllieAnne- how are you today?

Love to all missing our old friends.

nadateturbe Tue 08-Jul-25 07:50:20

HVDY thank you. I can do even less in the heat.
"Not a lot today - aqua aerobics and brunch at the pub". I think that's a lot! Sounds lovely. I used to enjoy aqua aerobics, it's a fun way to have exercise.
Long day tomorrow! But you are so blessed having LG.
Allsorts I don't remember your circumstances and why it won't change but it's not nice to feel alone.x
Hairdressers at 1pm. At last! Have had to cancel 2 appointments as couldn't make it.
Back and hopefully "speak " to others later when I can read back a little.

Allsorts Tue 08-Jul-25 07:03:34

Scaredycat, do hope you are improving. Head injuries very worrying.
Wylow3, how did your dying come out. Have never mastered it. All my white t shirts end up off white and ut seem such a waste keep binning them. What do you use please.
Sweetpease, this very hot weather is so hard on anyone with breathing difficulties.
Still carrying on but feel alone, that won't change.

HowVeryDareYou2 Tue 08-Jul-25 07:00:30

SweetpeaSue You aren't flaky, you're worried. Your husband must be so fed-up with not feeling well. I wonder if the problem is related to his lungs and not his heart. Things might become a bit clearer after he's had the results from next week' appointment. I hope so. (I've got nodules on my lungs, too, which are apparently not anything to worry about) I always have my legs up on the settee. It doesn't help with the Vasculitis, but thanks. I've been putting a wet towel on my legs.

Doodle I think you cope admirably with your feelings. Your grief is still relatively new. I hope you have a bit of company today.

nadateturbe Nice to "see" you. Hope you're keeping as well as you can, and that the heat doesn't make you worse.

Wyllow3 You're so right about Little Girl. She's a lovely child - even her tantrums don't bother us. She's at that "terrible twos" stage. We've got a very long day with her on Wednesday - 7.30am til 8.30pm! I've booked somewhere to take her to. Well done on the tidying as you go. We're untidy and it could become overwhelming if I didn't try to keep on top of it.

Not a lot today - aqua aerobics and brunch at the pub. Hope eveyone has a decent day x

nadateturbe Mon 07-Jul-25 22:10:59

You're quite right Wyllow3 Scaredycat has had a bad head injury and is very important too.

nadateturbe Mon 07-Jul-25 22:02:57

For Wyllow3... my favourite version of Leonard Cohens Anthem.
youtu.be/b4bYDxbVIKE?si=yOpvAxkJcTW4IlHo

nadateturbe Mon 07-Jul-25 22:00:17

Thank you for your thoughts Sweetpeasue.
Glad your day out was good Doodle. But I know it's hard for you. xx
Good advice Wyllow3 about raising legs. I have to do this.

Wyllow3 Mon 07-Jul-25 21:51:44

Forgive the errors, I am a bit tired, as long as you can make sense of it.

Wyllow3 Mon 07-Jul-25 21:50:32

Thank you, Sweetpeasue. I thought of you and DH on the way home - I thought, if there was only one identifiable label, or pattern of illness, there could be the same approach. Do you think that is possible, a sort of “key?”
I’ve read what you wrote. Is there anyone from the many medics you have contact with who could do that? To help you stop getting lost in the detail, which feels oh so overwhelming?

The rest of the day I took gently but made a few calls, like a new DVD player so’s to watch my classic DVD’s, petrol - the light suddenly cam eon, stuff like that.

And not being able to find my vape this evening meant I “tidied up as I went along, so things are now calmer - had a sleep too.

(Yes, am slowly giving up my vape, but its more important to reduce the diazepam, if you get my drift)

HVDY - yet again I think how great it is to have Littlegirl in your life - an dit might not have happened if you didnt smooth the way going back now, I recall the events. Yes, Sweetpeasue has a good point about you legs.

I’m so glad to hear it was a good food and good company, Doodle. May I ask what the trip was? I’d be very interested to know. Wise advice to *Sweeetpeasue there, would be dit help to elevate legs too at the same time slightly?

Like you, I can only take so much company, it is tiring, and I too want to “withdraw” at a certain point, retreat to “have my feelings”.

*nadateturbe) you have listened to us” and that is a real gift for us, so do come on when you can and tell how you are, even if its not much, like what I was depressed, I said that I could, even tho it was very “down”.

Sweetpeasue you are so thoughtful of others, but my feelings are that you and DH have enough problems, and that there isnt a sort of “hierarchy”, and definitely no need to apologise for being you x

I’m a bit worried about Scaredycat> we dont usually single people out, but she consistently come in every day with a long post and recently had a major health event - so a bit worried.

But generally we all care for each other, so thinking of all BD’s, present, sometimes present, and reading.

I may or may not be back later with “music for the day” - for now, with my ears, oh my, listening to music is so different.

Sweetpeasue Mon 07-Jul-25 21:39:09

Oh Nadateturbe that's so very caring of you. Knowing how much you suffer yourself makes me feel a bit guilty of complaining of my lot. It means a lot to know you care. I wish I had words to help your own illness. I guess in years to come a lot more will be known with more research, but that doesn't help you and others so very affected, right now.
Just know how much your post means to me and thankyou so much for caring.
God bless and protect you from your awful illness. Giving a hug back and love.x

Sweetpeasue Mon 07-Jul-25 21:32:05

Thanks Doodle DH hasn't been sleeping on his back. He turned over flat for me this morning so I could put my arm round him( under his chest). I hadn't realised about your lungs being at the back.
Glad you enjoyed the company at art - it must help ,I'm sure. I expect other people realise you are still grieving but don't really know how to help. It must be awful keeping those feelings in because you know others can't help. I guess yhat makes the loneliness worse but hopefully you're still in touch with others who have lost their DHs. I do feel for you. Sometimes life is harder than we ever thought possible. I know I'm lucky ,so far, to have DH with me, though no one knows what is to be. Take care Doodle and much love.x

nadateturbe Mon 07-Jul-25 21:30:21

I had intended to post to everyone today, spent ages reading last few pages. But had to stop and do a food order.
I'm sorry I'll try tomorrow.
I just wanted to give Sweetpeasue a big hug. I know everyone is important but I almost cried reading your post Sweetpeasue. So worrying for you, No wonder your ibs is playing up. You've been worried for so long. It's an awful strain on you.

Good news Wyllow3.
Thinking of you Doodle Scaredycat(your poor head) HVDY EllieAnne and anyone I've forgotten.

Sending love to you all and remembering you in my prayers.

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