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Alendronic Acid and very achey legs and hips

(56 Posts)
HelterSkelter1 Sat 10-May-25 10:43:24

Anyone taking AA and having very achey legs and hips.? Apparently not a symptom of osteoporosis in itself, but would be a symptom of a fracture....which I dont think is the case.

Also was prescribed AdCal to take. Caused horrid constipation and I now just continue to take my high dose vit D which I have taken for years and plenty of calcium rich food. Blood test shows vit D and calcium levels normal. Do GPs take any notice of patients saying Adcal is awful I wonder.

Iam64 Sat 24-May-25 08:13:20

I was first prescribed adcal 15years ago by my Rhuematology consultant. I’ve taken disease modifiers since my mid 40’s , 30 years ago. For the past 12 years, injectable biological treatments. Inflammatory arthritis brings other auto immune conditions and osteo arthritis . I have osteo arthritis and osteo pina.
All the meds have endless possible side effects, all listed in detail on the information leaflets enclosed in the packets they arrive in.
I decided 30 years ago that I’d take the disease modifiers because without them the impact of inflammatory arthritis was awful. I’m grateful to the nhs for my care

M0nica Sat 24-May-25 20:38:37

No, I am the one with osteoporosis. Found by chance, I have yet to suffer any kind physical effect of it, but DH suffers from heart failure and has a heart pacemaker and other problems and takes a veritable 4 course meal of drugs each mornig. Some could have quite serious sideeffects if he didn't take them, and some could have serious side effects if h does take them. But the advantages outweigh the disadvantages, so he takes everything.

My take on Aledronic Acid, is that it is probably doing me more good than harm, so I will take it. I see the dentist regularly and of there is any sign of a problem developing I will go back to her, but it is highly improbable.

Dollymixtures Sun 25-May-25 00:28:40

Following a DEXA scan, I was diagnosed with osteoporosis. I’d had no symptoms and any idea although I have lost height. I’ve now been on it for 18 months. I have had two teeth removed and an implant last year and nothing was raised about my taking Ibandronic acid. I need another implant now and the specialist said I should come off it if I possibly can, that it is a ‘nasty’ drug, explained about the osteonecrosis possibility and that it stays in your system for ten years. I’m waiting to see my GP who says I can’t have another DEXA scan yet but she will change the drug. I have a chronic constipation problem so reading your posts, I don’t want anything to make that worse. Injections are worse than the tablets so what can I accept? I take vit D daily but that’s all. I don’t know what to do at all. Any advice?

RedRidingHood Sun 25-May-25 13:47:17

Dolly mixtures. Vit D / calcium is not going to reverse osteoporosis.
I had quite low scores on my first dexa. My rheumatologist repeated it after 2 years on AA and there was a marked improvement in the hip area.
Ihad to stop it last year because of gastritis and moved onto the infusion which is a step up. It's not an infusion of alendronnic acids as some have said it's another drug called Zolendronic acid. The risks are slightly higher but I weigh up the risks associated with broken bones, especially hips in older people and taking the advice of my doctor who specialises in osteoporosis.
My dentist was very helpful, he did say many dentists are nervous about treating patients on AA but he had experience and was happy to treat me.
Is your dental work essential or cosmetic? I wouldn't risk any non essential work myself.

M0nica Sun 25-May-25 20:04:09

My dentist knows I am on AA and that has not affected my dental treatment in any way, but generally I do not need more than the occasional filling.

My osteoporosis score was close to the boundary with osteopoenia and the two fractured vertibrae, were high in my thorax and relate to a very bad fall I had 15 years ago, when my feet went from under me when I was walking down a grassy bank and I landed on my back so hard, I was momentarily winded, but felt OK and could move everything when I got up, so although I was excruciating pain for some weeks I didn't go to the doctoe as it all felt muscular and I knew that all the doctor would do would be to tell me keep rested and take paracetamol for the pain