Coeliac disease awareness month

It’s great to hear how things turned around once you committed to the diet. I imagine it wasn’t easy back then with way fewer options than we have now.

I'm gluten intolerant, still struggle with it and avoid going to people's homes at all costs. Functions are a nightmare and don't start me on restaurants with those idiotic books. How hard is it to have an item listed on a menu and write GF beside it? I understand not all kitchens can accomodate.

I have Coeliac Disease and find eating out and holidays the hardest. It is better now for people than years ago with the vast range of Free From on the supermarket shelves.
At home it’s easy just cooking from scratch and we can whip up full buffets, roasts and dinner parties with no gluten in sight.
We go to Menorca tomorrow and I’ve always found it ok there but of course cross contamination is always in the back of my mind.

Could you explain the difference between coeliac disease and gluten -free, please. I have two friends, one coeliac and one gluten-free and neither seems to know the difference.

eazybee

Could you explain the difference between coeliac disease and gluten -free, please. I have two friends, one coeliac and one gluten-free and neither seems to know the difference.

Coeliac disease is an autoimmune condition. It’s a serious condition that can damage organs.
Where as glucose intolerant won’t kill you.
The problem is, the symptoms are much the same.
There is no test for glucose intolerance but of course there is for coeliac disease.

I’m coeliac and so is one of my grandsons. I eat out quite a lot with family and friends but agree it can be frustrating with lack of choice it things are slowly improving.

My kitchen is completely gf. I cook just about everything from scratch and visitors eat gf whether they like it or not. I take my own biscuits to coffee mornings or just go without.

My grandson is 6’ 4” and very sporty. He struggles to maintain a healthy, if carb heavy diet. He now lives too far away for me to cook for him.

merlotgran

I’m coeliac and so is one of my grandsons. I eat out quite a lot with family and friends but agree it can be frustrating with lack of choice it things are slowly improving.

My kitchen is completely gf. I cook just about everything from scratch and visitors eat gf whether they like it or not. I take my own biscuits to coffee mornings or just go without.

My grandson is 6’ 4” and very sporty. He struggles to maintain a healthy, if carb heavy diet. He now lives too far away for me to cook for him.

My daughter has coeliac disease. Always cook gluten free when she visits, even made gluten free Christmas cake. If we eat gluten free it won't kill us, and tastes no different really.I find bread can be a problem, although daughter says it has improve over time.

I had no choice, but yes it was difficult, my dietician tested my blood and advised me etc. I suppose I was very embarrassed about having CD, and also eating out with friends is problematic! Now all my family & friends check the menu for me, I feel so well now, if ever accidentally eat gluten I’m very ill

I always say ‘think what we can eat, not what we can’t”
Eating out is difficult but I always ask for gf menu and only go to ‘safe’ places
I always order food at restaurants that’s impossible to put gluten in that way I’m double double checking

coeliac disease is diagnosed by a camera down your throat to study the villie in your intestines, not pleasant, along with blood tests ect.. you cannot eat wheat barley or rye! My son diagnosed as a young adult after' failure to thrive as a child' and not tested

Some people decide to cut wheat out of their diet for other reasons.

Petra we're discussing gluten not glucose. People with coeliac disease must eat a gluten free diet, not a glucose free one.
Some people are gluten intolerant, like me, in that gluten makes us ill but its not life threatening, so we avoid it . Being a coeliac is serious.

My daughter who has Down Syndrome, a pacemaker and bronchiectasis has just been diagnosed as coeliac. I am staggered how careful I have to be and my grocery bill has increased by £40+ ! Sadly it has taken a lot of her learned skills away!

lemsip

coeliac disease is diagnosed by a camera down your throat to study the villie in your intestines, not pleasant, along with blood tests ect.. you cannot eat wheat barley or rye! My son diagnosed as a young adult after' failure to thrive as a child' and not tested

Some people decide to cut wheat out of their diet for other reasons.

Some people who are coeliac also have an intolerance to avenin which is the protein in oats.

It makes life even more difficult.

That's sad Fartooold how had it affected her learned skills? I assume she's better now she#s eating gluten-free? Is it not possible for her to re-learn at least some of these skills?
I understand they no longer test for coelic disease by the camera down the throat method which is a horrible experience. They are satisfied with a blood test.

Fartooold

My daughter who has Down Syndrome, a pacemaker and bronchiectasis has just been diagnosed as coeliac. I am staggered how careful I have to be and my grocery bill has increased by £40+ ! Sadly it has taken a lot of her learned skills away!

You may be able to get a prescription for flour and bread and perhaps other staple foods if you had been diagnosed with coeliac disease. It might be worth asking your GP.

ExDancer

That's sad Fartooold how had it affected her learned skills? I assume she's better now she#s eating gluten-free? Is it not possible for her to re-learn at least some of these skills?
I understand they no longer test for coelic disease by the camera down the throat method which is a horrible experience. They are satisfied with a blood test.

Ps the nicest bread, such as a small GF Tiger loaf, was £3.80!

Going to give this a try

Panasonic SD-PN100 Automatic Mini... www.amazon.co.uk/dp/B0DJMN76QK?ref=ppx_pop_mob_ap_share&tag=gransnetforum-21

Youngnanny I've realised over the course of this year that I'm gluten intolerant.
I've treated myself to this little breadmaker which has four programmes for gluten-free items: bread, cake, pasta and pizza dough.
I'm still experimenting but having fun so far!

Sorry in late response, she is quite bright (2 GCSE’s) and her “job” at home was to organise packed lunches for her siblings but because of cross contamination I dare not let her do it anymore. It also means she needs supervision when out with her day services. Re prescription she gets her benefits and fortunately being very small (in 11/12 year clothes) she is not high maintenance!

Fartooold

Sorry in late response, she is quite bright (2 GCSE’s) and her “job” at home was to organise packed lunches for her siblings but because of cross contamination I dare not let her do it anymore. It also means she needs supervision when out with her day services. Re prescription she gets her benefits and fortunately being very small (in 11/12 year clothes) she is not high maintenance!

Toasters, breadbins and separate butter dishes on each side of the kitchen when coeliac family members visit.

I should add a 🙂.

It's ok at home - eating out is better than it was but not without hazards.

V3ra

Panasonic SD-PN100 Automatic Mini... ]]

Youngnanny I've realised over the course of this year that I'm gluten intolerant.
I've treated myself to this little breadmaker which has four programmes for gluten-free items: bread, cake, pasta and pizza dough.
I'm still experimenting but having fun so far!

Thank, I don’t eat bread very often, I suppose that’s because I have been coeliac since age 5 😊

My dh has coeliac diagnosed in adulthood. Today I was in a large tesco and at the chilled section there were loads of green cuisine and quorn products but not One
Single gf item .
In the frozen section there were fish fingers and nothing else !

You have to read the ingredients labels, EllieAnne. It’s easy to identify which items are gluten free if you are familiar with the ingredients you must avoid.

Allergens are listed in bold print