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Tinnitus coupled with Alzheimer’s and Vascular Dementia

(15 Posts)
farview Mon 14-Jul-25 22:16:29

Has anyone any experience of this.. I’m absolutely worn out physically and mentally re H…. He’s seen eight doctors at our surgery..two consultants.. but obviously he can’t remember…he is very accusing re “ what did I have for dinner “. “Am I taking any pills?” etc etc.. I know that he thinks I’m causing his tinnitus… which is scary.. he’s banging on my bedroom door at night accusing me.. I’ve had tinnitus for 41 years re Ménière’s disease.. not easy to live with.. but I do….H obviously re his condition can’t cope with it.. Doctors and consultants no help at alll.. anyone any experience of this? 🙏.. it’s absolutely wearing me out

keepingquiet Mon 14-Jul-25 22:48:50

It sounds as if you need a little more support with your DH.
My mum had vascular dementia but had always suffered with her ears (as do I) she kept insisting she needed her ears syringing but no one would do it.

In the end we paid for someone to come to the house and she was so pleased! However, when he finished she said it didn't feel any different and he hadn't done it properly.

My poor mum. We felt bad that this guy had travelled a long way and brought her no relief. Dementia is a terrible thing.

I wish I could offer more advice but I can't except to say you have to think of yourself too and get some help when things get so difficult.

Respite and night sitters should be available so you can get some rest. My son did this job for a while.

Mt61 Mon 14-Jul-25 23:09:11

Do you find stress causes it to be worse?
Can your Gp refer you to the tinnitus clinic?
I wear what looks like an hearing aid, but it emits white noise. Doesn’t cure it, but makes it bearable. In fact sometimes I hardly notice it until a friend will say how’s your tinnitus 😩 then it comes on with a vengeance.

Mt61 Mon 14-Jul-25 23:10:35

Oh sorry it’s your husband who suffers? Is he deaf?

Mt61 Mon 14-Jul-25 23:47:10

Nothing worse than deafness & mixed dementia, my dad had both.

kittylester Tue 15-Jul-25 07:20:42

My DH suffers with tinnitus and finds that gentle noise helps him. He gets Alexa to play watery forest but it might be worth trying any nature sounds. You can ask Alexa to play on continuous loop.

It is worrying that your DH is blaming you and I urge you to talk to his doctor soon.

Astitchintime Tue 15-Jul-25 07:29:16

Stress does make Tinnitus sound worse……..I have suffered with it for decades. As you’re probably aware, there is no cure, only coping strategies to manage the condition.

I find it to be most annoying during the night when I’m unable to sleep for whatever reason and I am laid in bed listening to the noises in my ears.

One of my coping mechanisms is an app on my phone which allows me to select different sounds to focus on………the sea, gentle music etc and there’s a timer on it so I can select a period and the app switches off. By that time I’m asleep having listened to the gentle calming sounds rather than the tinnitus.

Coupled with Alzheimer’s though, it might be a very different issue but I hope the OP finds a way to help her DH.

thisisnotme Tue 15-Jul-25 07:44:46

Is it possible your DH is suffering from auditory hallucinations and not tinnitus?

My poor BiL had FTD/mixed Alzheimer’s and had both visual & auditory hallucinations.

Shelflife Sat 02-Aug-25 19:48:21

You need help! Please speak to your GP and don't pull any punches. My DH has Alzheimers Disease and so far we are coping , however there are times when he is unreasonable. He is unable to retain information and his memory is shot!!!! He imagines things happening - and nothing I say will convince him he is incorrect. Fortunately we have good days too! However I think when the situation becomes unmanageable I will think very seriously about a care home. This would be a very difficult decision to make after 51 years of marriage!!
Dementia is taking a little bit of my husband every day , it is also beginning to affect our relationship. I have good friends and a supportive family- thank goodness . Caring for a loved one who has dementia is very very difficult and I am no spring chicken ! Sending
(((hugs))). Look after yourself , you are very important .

Mt61 Sun 03-Aug-25 01:32:28

Shelflife

You need help! Please speak to your GP and don't pull any punches. My DH has Alzheimers Disease and so far we are coping , however there are times when he is unreasonable. He is unable to retain information and his memory is shot!!!! He imagines things happening - and nothing I say will convince him he is incorrect. Fortunately we have good days too! However I think when the situation becomes unmanageable I will think very seriously about a care home. This would be a very difficult decision to make after 51 years of marriage!!
Dementia is taking a little bit of my husband every day , it is also beginning to affect our relationship. I have good friends and a supportive family- thank goodness . Caring for a loved one who has dementia is very very difficult and I am no spring chicken ! Sending
(((hugs))). Look after yourself , you are very important .

Ahh feel for you shelflife, we have been there. 🫂

Usedtobeblonde Sun 03-Aug-25 04:45:08

My H had Alzheimer’s and complained every day about the ringing noise in his ears so I think there is a link.
It is only with hindsight that certain symptoms are present.
One was, he lost his sense of taste, we found out later on that is is common.

Shelflife Sun 03-Aug-25 10:44:05

Thank-you Mt61

Granmarderby10 Sun 03-Aug-25 10:56:31

keepingquiet dementia is so cruel my mum had her cataracts done but “we” could not ascertain from her whether she saw better.
Sometimes there is just no satisfaction to be had from just knowing that they are comfortable or content with even one aspect of their life.

Witzend Sun 03-Aug-25 11:04:30

Would it be worth getting his ears cleaned out? Nowadays they use vacuum suction, rather than syringing. Branches of Specsavers often offer it. Dh needs to have his done regularly.

Granmarderby10 Sun 03-Aug-25 14:09:34

I wonder why this excess wax occurs. Any one? Does it have some purpose…