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Essential tremor

(36 Posts)
Ilovedragonflies Wed 08-Oct-25 09:32:11

My GP told me back in June/July that I have essential tremor and has referred me to the neurology dept at the hospital. At the time, the tremor was only noticeable to me (shaky hands) and was the end result of an assault made upon me by one of the young adults I worked with back in February.

The hospital wait list is 24 weeks at present but I haven't heard from them as yet and, from what I'm told, will be 24 weeks from when they get around to offering an appointment.

This I can cope with, but the tremor has already progressed - I am now having dizzy spells - and yesterday (admittedly after finishing a 24-hour shift which was quite full-on), I fell. I was carrying a bundle of freshly washed clothes, felt a bit dizzy, and tripped over the gate between the kitchen and hall (there to keep the dog from eating the cat's food). I landed badly. My right side, in various places, is bruised and swollen, and also painful. I haven't broken anything but, to the alarm of my DD, it made me cry. I'm not a crier. I feel utterly foolish. (And I know that was partly because this happened the evening after the shift from hell and I was sleep deprived - but I still feel foolish (and sore) today.

I have made a telephone appointment with my GP, but it's not until the 20th.

Apart from feeling the need to offload on here (sorry!), does anyone else here have this, and can offer advice as to what can I do to mitigate the shakes/dizziness until I finally get to see a neurologist?

JPB123 Thu 09-Oct-25 21:43:50

My friend suffered fro tremors for quite a while , she the started to feel dizzy at times.Shewas waiting to see the neurologist at our local hospital,but the wait was too much so she went privately.She was diagnosed with Parkinson’s Disease.

Bestgrammaever Fri 10-Oct-25 04:32:54

I'm trying for the third time to type this. I was diagnosed a couple of years ago. In the US the fashion is to change the name from essential tremor to Kinetic Tremor.

For my treatment I was prescribed primidone. We started with 50 mg and added 50 mg until the tremor was controlled. This medication is most useful taking it at night.

It seems to be that here in the US the Mayo Clinic is the leader in research. I don't know if anything you can find online will help. But it can be a guide.

JPB123 Fri 10-Oct-25 07:51:17

It’s no good second guessing! GNs offer good advice but the main thing is that you get a diagnosis soon. I wish you well.

harrigran Fri 10-Oct-25 08:51:43

My SIL has essential tremor and has had it for the 38 years I have known him.
I have never discussed it with him but suspect it dates back to the loss of both his parents when he was a teenager.
He does not get special treatment, I still delegate the wine pouring to him when we have dinner together.

leeds22 Fri 10-Oct-25 10:11:18

I hope your shaking is just essential tremor but for years that was what the GPs told me. Unfortunately I do have Parkinson’s and the wait time to see a consultant was initially 13 months which gradually pushed back to 19 months (James Cook, Middlesbrough). I found a private consultant, who diagnosed and prescribed appropriate meds - which the GP provided on NHS. Eventually I fitted into NHS system (not in Middlesbrough) but the initial fee of £250, then £100 for follow up appointments was so worth it.

Tizliz Fri 10-Oct-25 10:46:21

I must be really lucky (perhaps that is the wrong word!), my consultants appt was within 10 days and the wait for my brain scan is about 6 weeks. At least I now understand some of the problems I have been having .

Heathcliff23 Fri 10-Oct-25 11:20:16

My partner had an essential tremor. It progressed to where he was unable to write or hold any cups drinks etc. he was under the care of Addenbrooks hospital. After several years of medication they offered him an operation. It sounds scary but they inserted a wire in through his brain which leads down to a simulator they inserted in his chest. He was only in hospital overnight and it is controlled by Bluetooth so he can switch it off at night! It had transformed his life. His hands no longer shake, he can write hold drinks and do everything he had been unable to do for years. Addendbrooks have been amazing.

Ilovedragonflies Fri 10-Oct-25 12:26:22

I'm so sorry I hadn't come back to read all your further comments; I didn't expect any more replies - thank you all for your excellent suggestions. I shall ask my GP to refer me privately (provided it doesn't cost more than £300). At least I may then know more of what I'm dealing with.

harrigran, I belly laughed at that!

Again, some helpful comments here. Thank you!

silverlining48 Fri 10-Oct-25 13:26:06

Some years ago I watched that operation on a tv programme Heathcliffe, the result was amazing.

Realky Fri 10-Oct-25 17:57:27

Dizziness can be caused by heart problems, low blood pressure, and even migraine. I think you should phone 111, and they will probably send you to A and E. The shaking could be unconnected. That's what I would do. I felt dizzy recently and fell over, and was advised to do this.