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World Pancreatic Cancer Awareness Day today (20 Nov)

(35 Posts)
Primrose53 Thu 20-Nov-25 22:33:45

6 weeks ago today my son had major surgery at Addenbrooke’s hospital for Pancreatic Cancer which was diagnosed at beginning of August. It was 8 hour surgery to remove the tumour, part of the pancreas, part of the stomach, the bile duct, the gall bladder and the duodenum. The tumour was attached to a major vein so it was very tricky to remove and repair the vein and he had to have countless different types of scans, xrays and other tests before they finally decided they could operate. Without surgery they gave him 6 months.

After 3 weeks in hospital where he received great care he is home with us and doing well and just waiting for a date to have chemo.

80% of people with PC are diagnosed too late for surgery so we realise how fortunate we are and would like to raise awareness of the symptoms which are often very vague. Jaundice, pain in back or abdomen, loss of appetite, fatigue, unexplained weight loss and change in bowel habits or urine colour.

Please take a look at Pancreatic Cancer UK for further information. They have been absolutely fantastic!

Allira Sun 23-Nov-25 22:13:28

Might be an idea to start another thread, FranP 🙂
Your query could get lost on here.

FranP Sun 23-Nov-25 22:07:57

I have gall stones. My GP tells me that if I am not dietary careful, it is possible for this to develop.

OK, so please can I get some advice?

Yes, we will refer you to the hospital - a year's wait so far.....

SueDonim Sun 23-Nov-25 21:12:06

I’m so sorry, Primrose and I hope that your son makes a good recovery from the surgery. A different illness but I am also dealing with a son who has had an awful diagnosis so you have my love and sympathy. flowers

Meandrogrog Sun 23-Nov-25 20:37:03

Sending best wishes Primrose to you and your son. I hope he makes a full recovery. 💐💐💐

Cagsy Sun 23-Nov-25 20:23:06

Thank you for having the courage to share this with us despite how you must be feeling. I do hope your son can cope with the treatment and it gives him many, many more years. I lost a friend to this disease during Covid, lockdown was just coming to an end and she would have revelled with being with everyone again. Her poor husband knew what to expect as his own Mum had died from the same disease. Let’s trust that more research and treatment can give people real hope.

GANNET Sun 23-Nov-25 20:04:08

Such an awful time for your son. I really hope that your son is one of the lucky ones who survives this dreadful cancer. The hospital is an excellent one and hopefully everything will be well. Sending my very best wishes to you.

Linda48 Sun 23-Nov-25 19:30:32

I lost my lovely husband aged 69 to pancreatic cancer in 2016, 17 days after diagnosis & my beloved brother aged 61 to it in 2020 - I still can’t believe they are both gone - what a dreadful disease it is. I hope & pray for tests to aid earlier diagnosis so there is a better chance of recovery. Thinking of you Primrose 53 & sending positive thoughts for your son’s recovery.

Anneeba Sun 23-Nov-25 18:45:26

Maggie Hambling has donated a beautiful painting that for £15 tickets you might win in aid of pancreatic cancer. A win win, good cause, potential for a lucky win. I wish gambling rules didn't mean people can just send an sae to enter . I hope if one such won it they'd make a very significant donation.

MadameP Sun 23-Nov-25 17:51:25

I wish you and your son all the best for his recovery. My husband was diagnosed with Pancreatic and bile duct cancer two years ago and had a Whipple Op followed by chemo. Unfortunately it is now terminal and we don’t have long left although he is still well. Great strides have been made with this dreadful disease through research so any donations will definitely help.

GardenofEngland Sun 23-Nov-25 15:01:50

I'm so hopefull if caught earlier enough it can be cured. My mother was diagnosed in 1984 and was sent home to die as no cure, a 10 month painful death at 58 years old. It is shocking that younger people are now getting it I hope they find/research a screening system that spots it early. It's s very cruel cancer.

Lolita Sun 23-Nov-25 14:47:59

I lost my husband with this deadly disease.
I wish your son a complete recovery.
X

AuntyGill Sun 23-Nov-25 13:45:34

My husband had the same operation in 2017, a Whipple procedure. His tumour was in the ampulla at the opening to the pancreas. His symptoms were indigestion followed by jaundice. He had six months of chemo on a clinical trial at the Christie in Manchester and that trial protocol is now the standard treatment.
I am very happy to confirm the he is still well and cancer free. I wish your son all the very best in his recovery and you and your family the strength to support him. x

Janlara Sun 23-Nov-25 13:43:01

Wishing the very best for your son's recovery, Primrose x

Allira Sat 22-Nov-25 10:23:53

The chances are so much better if this is diagnosed early, as has happened to Primrose's son and to my relative who was older at the time of diagnosis and surgery.
He subsequently lived until his late 80s.

There is hope, Primrose and well done for posting about Awareness Day. The more people aware of the symptoms the better.

Don't be fobbed off by a GP either, if you are worried about yourself or someone you know.

MartavTaurus Sat 22-Nov-25 08:51:17

Your son has been given the best possible chance.
I hope the outcome will be a full recovery.

It was brave of you to post the Awareness Day message.
flowers

FriedGreenTomatoes2 Sat 22-Nov-25 03:43:51

Pancreatic cancer has such a dire prognosis. A Spanish friend of ours was operated upon in Málaga hospital last summer after chemotherapy first to shrink the tumour. He had subsequent chemotherapy for months afterwards but very sadly died a month ago, at the age of only 52.

I fervently hope your son has a better chance at life Primrose53 by the renowned Addenbrooks.

dragonfly46 Fri 21-Nov-25 22:26:52

I hope your son makes a full recovery Primrose.

Allira Fri 21-Nov-25 22:11:11

I have pmd you Primrose

Babs03 Fri 21-Nov-25 22:04:57

Oh my, Primrose you have had so much to cope with and now this. My heart goes out to you.
Thank goodness your son was caught in time. A lifetime friend of mine died of pancreatic cancer last year. It really is a cancer that needs to be caught early but sadly many don’t get symptoms until it is too late.
Wishing your son all the best.
🌹🙏🏾

Primrose53 Fri 21-Nov-25 21:24:24

Redrobin51

I sincerely hope that your son makes a full recovery. Thank you for bringing our attention to all the symptoms. I have lost two dear friends to he disease. The only symptom one friend had was unusual tiredness which she initially put down to her diabetes and other health problems and by the time it was diagnosed she was dead within 6 weeks. My other friend was initially diagnosed with gall bladder problems which turned out to be pancreatic cancer. Her symptoms were fatigue, weight loss and some digestive problems but quite vague. Unfortunately, it had gone too far and again she died within 6 weeks. I think it is one of these cancers that there isn't enough publicity about.

Very sorry to hear about your friends.

Pancreatic cancer is just awful. My son has not seen a Dr for 20 years, is never ill, is fit and cycles miles every day all year round. He never had any pains and felt perfectly normal. His only symptom was he suddenly had a yellowish tinge to his skin. It is really scary that you can have PC with hardly a symptom. That’s why so many people are diagnosed too late.

Redrobin51 Fri 21-Nov-25 20:52:39

I sincerely hope that your son makes a full recovery. Thank you for bringing our attention to all the symptoms. I have lost two dear friends to he disease. The only symptom one friend had was unusual tiredness which she initially put down to her diabetes and other health problems and by the time it was diagnosed she was dead within 6 weeks. My other friend was initially diagnosed with gall bladder problems which turned out to be pancreatic cancer. Her symptoms were fatigue, weight loss and some digestive problems but quite vague. Unfortunately, it had gone too far and again she died within 6 weeks. I think it is one of these cancers that there isn't enough publicity about.

Primrose53 Fri 21-Nov-25 19:33:38

Thank you all for your kind words.

Here is the link to Pancreatic Cancer UK site.

www.pancreaticcancer.org.uk/

granny'sbuttons Fri 21-Nov-25 11:00:29

I have a dear friend who had a similar operation at Addenbrookes just over a year ago. She also had colon cancer, which they removed at the same time. She is mid seventies and very overweight! It is amazing what surgeons and anaesthetists can do. The operation went very well with a few hiccups in the first couple of weeks and then great progress. I hope your son continues to make a good recovery.

Aveline Fri 21-Nov-25 10:45:30

Very best wishes to you and your family. What a worry for you all. Your poor son must still be reeling from the physical and emotional stress of it all.

Beans12 Fri 21-Nov-25 10:00:55

Glad to hear your son is doing well, I lost my darling older brother to this horrible cancer at the end of April-I am heartbroken, he had the Whipple operation-which I assume is what your son had?-chemo, radiotherapy etc-and lived for 3 years after his initial diagnosis-but not all of the tumour was removed, we knew it would come back eventually. He was only 69, and was very let down by a lot of health professionals-I am no fan of the NHS, so many mistakes were made. Now I'm worried about his identical twin, but have little faith in doctors etc.