My lovely Mum has end stage dementia. Over the last 2 years she has gone from living independently to living in a care home for patients with dementia and complex needs.
It has been a horrendous journey for Mum and us as her family. Mum went from hospital with delirium to a totally unsuitable care home where they said she was disruptive and difficult. They locked her in a room in the dark at night and were then surprised when she tore the curtains down and wrecked the toilet in fear.
Mum was then transferred to the specialist unit she's still in now. Mum was attacked the first night she was there by another patient who we discovered had been sectioned. Mum has since suffered endless injuries and bruises. I can hardly bear to look at the photos.
Complaints have come to nothing. We had no say where Mum went from hospital. ICB dealt with it all.
My question is how do I answer the question of "how is your Mum doing?".
I know it's kindly meant, but since a fall out of bed, Mum cannot stand or walk and is non verbal. She doesn’t recognise us now and barely eats. I know it's progressive so there is no happy ending but I don't know how to answer the question. She's still breathing? She's still existing?
What was your favourite board game as a child?
