Burning Mouth Syndrome

I haven't had it ,but a relative did .
My memories of it are a bit hazy .
It was caused by diabetes and his blood sugar levels were often unbalanced .
He occasionally had oral thrush .
His breath could be unpleasant and sometimes smelt sour .
He couldn't eat spicy foods and had to take care choosing the right toothpaste and mouthwash - without alcohol .
The GP prescribed treatment for a vitamin B deficiency and amitryptalline for the nerve pain .

It was controlled ,but not cured .

I think that treatments are better these days.

I haven’t, but I had an acquaintance who did, it was a good while back and I can’t remember much, but I know she had a very unpleasant time, which I don’t remember being resolved and there wasn’t much to help it I’ve not come across it since.

I had it for years it would come and go the it was very painful and distracting my GP really only prescribed a mouthwash but it didn’t help I would suck ice cubes. I haven’t had a recurrence now for 4/5 yrs so fingers crossed it’s gone.

It's awful, indescribable pain because it makes you feel unreal, if you get what I mean. No sense of taste, no smell, no normal feeling, you just think that the roof of your mouth is literally on fire.

I had it for a few months after a course of strong antibiotics. All I could do was to suck frozen pieces of melon all day long. My doctor gave me a prescription for a thrush treatment but it was useless, my dentist had no answers.

It eventually disappeared after about 3 months. Never again, I hope. Sorry you're suffering, hang in there. 🤞

Thanks for the replies. Yes, it's horrid. I'd never heard of it before, so it's all been a shock. I've had it now for about six months. It improved slightly after Vitamin B12 injections, but my lips and the end of my tongue still feel on fire and I still haven't got a proper sense of taste. Thank goodness the dribbling has stopped. I used to love coffee, but it now tastes revolting. Unfortunately, the GP doesn't seem to have any answers.

Oh yes, I forgot the tongue sensation. It's a wonder you can actually talk properly when it's fizzing away, but thankfully my speech was unaffected.
I lost around a stone in weight.
You could try a nutritionist type practitioner?

I've got it, it drives me mad. I've tried all sorts even a lidocaine spray which was awful. I find the more I think about it the worse it gets. My sympathies.

I have burning in my mouth and have been told it’s due to acid reflux which brings up pepsins from the stomach into the throat and mouth. I try to eat a high ph diet. Sometimes it works. This may be completely different to what you have been diagnosed with though.

I'm amazed it's so common because I honestly hadn't heard of it. There seem to be many different theories about its causes. I read about acid reflux, so I tried gargling with Bicarbonate of soda - yuk! It's even been suggested that I've had Covid without being aware and this is a form of long Covid. Somebody else suggested it could be linked to my shingles vaccinations.

I only had mild symptoms of this, probably not the actual syndrome, plus lots of mouth sores, I found changing to a toothpaste that is free from sodium laurel sulphate has cleared the problem. Apparently it can help to alleviate symptoms of the syndrome you are suffering from. It might be worth checking your toothpaste. Sympathy for all you sufferers.

Never heard of it.
Come to think of it, I don’t think I’ve ever had cold sore.

Yes I have it too, ever since the menopause started aged 52 I’m 69 now and still suffer.
I suppose I’ve got used to it now, but it’s a nuisance. I drink lots of cold water and eat quite a few ice lollies.

Menopause can trigger it, there's lots of people with it especially those with autoimmune conditions, diabetes, fibromyalgia, neuropathy & aging. I had a spell of it,I took lots of omega 3 and sea buckthorn capsules and it went.

crazyH

Never heard of it.
Come to think of it, I don’t think I’ve ever had cold sore.

I was in the same situation as you a few months ago. I'd never heard of it and had never had anything like a cold sore. To be honest, I didn't even know what one looked like.

Don't count your chickens!