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GD has scoliosis

(34 Posts)
aonk Sat 02-May-26 22:50:38

My GD who I’ll call R has just been diagnosed with adolescent idiopathic scoliosis. She is in year 7 and will be 13 in September. She told DD that her hip felt strange and DD noticed that something wasn’t right. She had seen a consultant and had an X-ray which showed a curvature of 40 degrees. She’s been measured for a brace and is waiting for it to be made. R is a sweet and very intelligent girl and she’s now very upset and anxious. DD doesn’t want to see anyone. I’ve only had one very brief phone call in 3 weeks. I know very little about this condition and wonder if anyone out there might have had experience of it. I know surgery has been mentioned as a possibility in the future and that she will have another X-ray in 6 months to see if the brace has made any difference. R is very unhappy about having to wear it.

MissAdventure Sun 03-May-26 18:22:17

Thats a great suggestion. smile

Charleygirl5 Sun 03-May-26 19:16:26

From a professional view I am well aware of scoliosis but I am 25 years out of daye and as nobody in my family developed it I had no reason to keep on top.

In those days a spinal fusion was carried out and a rod inserted. It did take many months to recover, but it was major surgery.

As you can see it hasn't affected Princess Eugenie at all, having had two lovely children.

The length of the wound can be a psychological problem but with time it fades.

"in my day" it was classed as everyday, normal surgery.

The RNOH hasn't chaned, I had both knees replaced there and the wards are astill tin huts!

silverlining48 Sun 03-May-26 19:25:05

By the strangest coincidence I was looking through my daughters books this morning and the first book I saw…was Deenie.

Charleygirl5 Sun 03-May-26 19:32:21

silverlining I am sorry, but you have lost me (not difficult) but I have no idea what Deenie means. I have never heard of it before.

JaneJudge Sun 03-May-26 20:02:05

I’ve sent you a PM
It corrected “brace” for “brave” ❤️Which most probably sums things up x

silverlining48 Mon 04-May-26 06:45:14

Charleygirl Deenie is a book about a young girl with scoliosis mentioned by someone a few posts back.

aonk Tue 05-May-26 12:08:42

Thank you for the helpful suggestion of a book about a girl with scoliosis. It’s an excellent idea. I googled the book Deenie and found that it has been criticised heavily for inappropriate content about sexuality and puberty. Sadly not suitable for my DGD.

silverlining48 Tue 05-May-26 12:50:55

I didn’t realise that aonk, but there will be other books on the subject.
I hope you are feeling a bit better about the situation now you have had some feedback but I remember when my dd was diagnosed we felt quite alone.