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Health

How do I cope?

(20 Posts)
HappyBumbleBee Thu 11-Jun-26 15:27:26

In 2020 I was diagnosed with Neuroendocrine cancer. Had a tumour in my lung that was successfully removed and coasted along since.
I’ve not felt well for a long time, diagnosed with ibs, ibd, asthma, copd diverticulitis the list goes on but the long and short of it is it’s normal to be misdiagnosed with these ailments and more when you’ve Neuroendocrine cancer etc. I knew I’d always have it and will always have regular scans etc for life.
Last September I had a tumour removed off my head which turned out to be another NET (neuroendocrine tumor) I’ve a lump in a breast, a tumour in liver and my lymph nodes are enlarged at the entrance to lungs so am awaiting a biopsy - they were going to remove the liver tumour but now they’ve put that on hold and are now talking chemo once I’ve had the biopsy on the lymph nodes etc because there’s so much going on.
I was fine, I’d tell myself I could sit and cry but it won’t change anything, it’ll all still be there so what’s the point!
I’ve just spent almost three weeks in bed, got run down and a virus hit me like a brick wall.
After meeting with oncologist and talking to my cancer nurse this week is when I was told they’re not doing the liver op now and going for chemo etc x

Chemo doesn’t scare me as much as surgery - but today it’s hit me head on! I’m tired of being tired. Can’t stop crying feeling sorry for myself and all I want to do is crawl back into bed and sleep!
All I want to do is feel normal. I feel useless. I can’t look after my family - yes they’re all adults now and I’ve a beautiful grandson but I want to be able to at least do something!
I could talk to someone (counsellor) but they’ll tell me what I already know, what I’d say to anyone sat in front of me saying these things.
My daughter in law has done exactly that but I feel guilty because they’re all worried about me and they’ve their own stresses and pressures of life without me adding to them.
I don’t think anyone can help me, maybe just writing all this down and re reading it back to myself will help.
Anyone with any words of wisdom though I truly would appreciate it xx

GrannyGravy13 Thu 11-Jun-26 15:31:55

Didn’t want to read and run

Be kind to yourself, don’t expect too much from your mojo
One day at a time.

I hope writing it done has helped.

MissAdventure Thu 11-Jun-26 15:40:46

No wisdom from me, but I just wanted to say that you're more than entitled to "feel sorry for yourself".

It sounds like a game of wackamole for you- just as you sort one part out, up it pops elsewhere. .
If writing it down here helps, write away.

There is amazing empathy amongst people on gransnet.

winterwhite Thu 11-Jun-26 15:54:07

I don’t think I have any words of wisdom except not to feel ‘guilty’ about being a worry to your adult children.

When I’m up against it I find it helps to have a shower and get dressed in clothes I like, even to sit at home all day. Get in nice things to eat.

You have a very tough row to hoe. Put yourself first.

Sago Thu 11-Jun-26 15:54:28

Hi there, please don’t dismiss counselling, there are specialist counsellors you can use via McMillan.

You have every right to feel as you do and it is normal.
It’s a long time ago that I had cancer I had three children the youngest being 6, I felt totally despondent but got through it with help.

I will put you on my prayer list.

💐

MissAdventure Thu 11-Jun-26 15:58:59

I'm sure the virus hasn't helped at all with hw you're feeling.
They can knock the most healthy person flat, physically, and emotionally.

Smileless2012 Thu 11-Jun-26 16:03:13

I wish I had some words of wisdom for you HappyBumbleBee but as I haven't, I hope these flowers and a virtual (((hug))) will be of some comfort x

crazyH Thu 11-Jun-26 16:15:00

HappyBumbleBee - my thoughts are with you - be strong flowers

Magenta8 Thu 11-Jun-26 16:22:39

I can't tell you how sorry I feel for you. You have had well over your fair share of worry and illness. I just wish I could reach out to you in a better and more practical way.

Don't worry about adding to your family's worries. Families are there to share problems and to be there in the bad times as well as the good times. I am sure that you have done a lot of things for your family over the years so don't feel guilty about accepting their support now.(((( ))))

dogsmother Thu 11-Jun-26 16:25:25

Go back into your bed and sleep whenever you feel like it and just take one day at a time. Each day is different sometimes you can feel more positive so look to those and snuggle up on the bad days. 💐

Chocolatelovinggran Thu 11-Jun-26 16:28:41

Well, HappyBumbleBee, I'm not surprised that you feel as you do. You have had more than enough to cope with, and are , understandably, looking at future treatments with trepidation.
Please, put yourself first, and if that means leaning on your nearest and dearest, so be it.
Buy yourself nice food, flowers, books, whatever lifts your spirits. Seek counselling if you think that would help.
Feel free to come to GN to shout, scream, or cry. We will understand, especially those who have travelled a similar road.
Sending you best healing wishes.

HappyBumbleBee Thu 11-Jun-26 17:09:30

Thankyou all for your replies, you’re ask saying exactly what I would say to anyone else if I was reading it ❤️
I sat in the garden for an hour after writing that, read it through a few times and tried to take joy in watching the birds and although it’s windy and rainy here it helped and just having written it down and your replies have helped too.
I guess I’ve just got to concentrate on putting one foot in front of the other for now x
Thankyou for this space and the kindness xx
💐

BlueBelle Thu 11-Jun-26 17:18:31

Can I send you a hug, I do really feel for you, that is an awful lot to handle I d be having a cry too, don’t push yourself.
Do consider talking to someone Macmillon are really good
Constant pain pulls you down so much, do what you can and no more. don’t turn down help, companionship, chatting, can you start a new hobby music, making things, a bit of art something to while away time, but not energy.
Lots of good wishes sent from me 💐

HelterSkelter1 Thu 11-Jun-26 17:30:47

Gosh you have had a lot on your plate and a recent virus as well. No wonder you feel as you do.
I second talking to the MacMillan help line or, if your specific cancer has an association, contact them for support and advice
.
Take one day at a time. That got me through chemo and out the other side. Are you on your own at home? Do your adult children live near or far?

You havent got a plan of action yet. I found once I had that it was easier to face up to. Your children will worry of course. As you would if it were them. I found setting up a group chat on messenger/whatsapp so that every bit of news they needed to hear I could send to all at the same time and not make several phone calls and have to answer lots of questions.

I also found that once chemo started, for me, my anaemia improved and I was less tired. I also had a blood transfusion which helped a great deal.

Treat yourself kindly. You will find strength to cope...you sound like a coper! But accept all and any help offered and make life as easy as is possible for yourself.

Shelflife Thu 11-Jun-26 17:44:01

Sending you strength and thinking about you. 🌸💐🌼

Horatia Thu 11-Jun-26 17:58:26

Please be as kind and caring to yourself as I'm sure you are to others. You deserve it.

pably15 Thu 11-Jun-26 18:01:59

no wonder you feel as you do, take all the help you can get ,if you don't feel like it don't do it,.Put your feet up and watch something on telly that can take your mind off your problems for a while. wishing you well .

Sparklefizz Thu 11-Jun-26 18:04:43

Sending you a hug and much love HappyBumbleBee
flowers

Rocketstop2 Thu 11-Jun-26 18:09:38

You WILL pick yourself up, dust yourself off and come out fighting again, but you have so much going on, there's no wonder you are feeling defeated.The virus won't have helped as they can make you feel depressed even if you DIDN'T have other health issues.
I think it sounds as though you've done great and been really brave.Don't be afraid to say to your family that you're feeling downtrodden by all this, yes they have their own worries, but it will worry them much more if they feel unable to help you . To you it feels like your protecting them, but to them it could feel like you are shutting them out. Accept any help that's offered and be kind to yourself, it's alright to feel fed up and scared and worried.All I can do is send you Good wishes and strength , and you're not alone on here, come back to talk when you want, always somebody to listen on here.

JaneJudge Thu 11-Jun-26 18:11:17

It sounds lie you are coping really well and are just overwhelmed, quite rightly so flowers

It is horrible having so much health stuff going on and feeling out of control

Just carry on putting one foot in front of the other. Enjoy today for today xx