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Health

Haemochromotosis

(7 Posts)
EkwaNimitee Thu 29-Oct-26 15:29:20

Me too! Diagnosed some years ago from a routine blood test that found very high ferritin.
The surgery actually did nothing about those results so I sent off blood samples to an independent gene testing laboratory which found I had the relevant genes and eventually the surgery got me started on regular blood removal. Ferritin is normal now as I have also altered my diet.

The body absorbs too much iron with haemochromatosis and doesn't excrete the excess which then gets stored in the organs, primarily the liver and can eventually cause diseases like liver cancer. Regular 'blood lettings' get the ferritin down.
I was told to reduce consumption of red meats, not to take vitamin C supplements (vitamin C facilitates the uptake of iron) and not to consume breakfast cereals with added iron...that's most of them!
There are no symptoms until you get one of those diseases.
I think it's important to tell close family members in case they also have it.

I have a set of Irish great-grandparents and I blame them!

Borrheid55 Thu 29-Oct-26 10:52:32

It’s called the ‘Celtic’ disease. My sister ( one of 8 children) has it, my brother and his daughter carry the gene. I’ve not been gene tested but my ferritin levels are normal. I am Scottish with a lot of Irish ancestry. My sister has her levels tested and has vivisection when needed - once or twice a year. I think her diet has low iron content - less red meat, some veggies. No great health issues with it.

Ziggy62 Thu 29-Oct-26 10:43:46

Thank you

baubles Thu 29-Oct-26 09:20:23

Not me but several members of my family have it, all female including my sister. I’m not aware of it causing any great problems.

GrannySomerset Thu 29-Oct-26 08:22:56

My son has it too, a surprise gift from my Irish mother which bypassed me and my daughter. Monthly blood donation (he is 0 negative) seems to manage the condition, picked up when he had a major health check at 50. Doesn’t seem to cause any problems.

LadyGracie Thu 29-Oct-26 08:15:11

My SIL has this condition, he has regular blood tests and has blood taken when necessary.
The blood used to be destroyed but they now have developed a way of removing the excess iron so that his blood can be used for transfusion.
He has other close relatives with the condition.

Ziggy62 Thu 29-Oct-26 08:01:31

Does anyone here have this? Im waiting for test results.
I have many of the symptoms unfortunately and am also being tested for diabetes