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How to get a prescription for prednisone?

(26 Posts)
snowberryZ Thu 19-May-22 21:16:12

I have a very painful condition that the (nhs) doctors think might be caused by an auto immune condition.
I'm having to push for tests and it's like wading through mud and each appointment I have to wait 3 weeks at a time.
They've prescribed over 5 different pain killers and NONE of them work.
One of the doctors did say that if it is this certain condition then painkillers won't work but prednisone would bring rapid relief.
But, they're insistent on testing for other things first. Which is taking a long time. In the meantime I am left in constant agony and have been for over 3 months.

I don't see why they can't prescribe me a short course of prednisone just to see if it has any effect, while I'm waiting for these other tests. But it's not happening. I never speak to the same doctor twice as it is and never get a face to face appointment.
So, I am going to try and get some over the Internet, or are there private doctors that would be willing to prescribe me a short course?
I know that prednisone has to be taken with care. All I want is one week's supply, just to see if it works and has an effect on the pain..
Any ideas?
(I wish people, especially doctors, could see pain)confused

snowberryZ Thu 19-May-22 21:29:34

Bumping for traffic

NotTooOld Thu 19-May-22 21:44:13

I just googled it. Try - they say they can prescribe short doses of prednisolone.

V3ra Thu 19-May-22 21:58:24

I've had two separate six day courses of Prednisolone since last November for a bad reaction to the coronavirus booster. Yes it cleared it up each time, but within a week I was back to square one 😕

snowberryZ Thu 19-May-22 22:17:11

Thanks for the ideas.
Am in agony.
It's frightening to think that even strong painkillers aren't touching it

Ellylanes1 Fri 20-May-22 00:50:14

Yes pain is so debilitating,but please don't go down the self medicating route via online.
The drug you wish to have may not what you get.
Prednisilone is a powerful drug I know, but can have strong side effects.
Hope you feel better soon, or at least get some understanding and pain relief.

pieinthesky Fri 20-May-22 01:09:10

I have an autoimmune condition which is PMR (Polymyalgia Rheumatica) and I should imagine that this is what your doctors may suspect. With this you get pain and stiffness particularly in shoulders and hips, often it’s difficult to raise your arms and even getting out of bed can be painful. There is no test that can prove it although you can often show elevated inflammatory levels in your blood. It is generally acknowledged that if you are given a short course of Prednisolone usually about 15-20mg per day and your symptoms improve then it is PMR. Painkillers do not work with PMR. Please do not be tempted to try and buy Prednisolone for yourself as it is a strong drug and should only be prescribed by a doctor. I do not understand why it is taking so long to diagnose you as after one blood test and listening to my symptoms my GP started me on Prednisolone straight away. Ask them if this is what they suspect and tell them how much pain you are in. Good luck,

Allsorts Fri 20-May-22 06:55:09

I think it wrong to recommend anyone to order drugs on line, Prednisone should only be taken with care and on recommendation of a doctor. If you are in extreme pain and it’s unbearable present yourself to A and E, that’s what they are there for, otherwise visit reception at your surgery telling them how you feel and something needs to be done.

Oopsadaisy1 Fri 20-May-22 06:59:51

I have an ‘emergency’ pack of Prednisalone for when I have an Asthma attack, it’s a short course but not always effective.

Please don’t take them unless you are prescribed them, next time you see a Health Professional ask them if they think that a short course of Steroids will help, then go by what they tell you.

Oopsadaisy1 Fri 20-May-22 07:05:45

PS, my ‘short course’ of Prednisalone is 8 tablets to be taken in one go, each day for 4 days, so for 3 days I’m usually full of energy ( even though I’m unwell and have a job to breathe) but can’t do anything and then I get the Steroid Low which plummets me down so all I can do is lay down for 2 days.
Steroids shouldn't be taken on a ‘let’s see what happens’ basis.

But I would do what someone suggested, bombard your GP /consultant with phone calls until you get a proper meeting to discuss your pain.

BlueBelle Fri 20-May-22 07:07:21

So sorry youre experiencing such a lot of pain, like other posters before me I would never condone buying drugs online especially something you’ve no idea if it’s right for you or not
I know a lot of surgeries aren’t as good as mine but you really aren’t getting proper treatment at all
Can you change to another surgery?
Mine have a rule that they reply to any emails within two days the only two times I ve used them in the last 2 years they have answered the first time within an hour the second time within 15 minutes and I had an appointment 3 hours later

My friend was suspected of having Parkinson’s and was given a couple of weeks worth of a drug that would only work if it was Parkinson’s it worked and she’s now very well on the drug thats what you want and need it would certainly seem the answer for you I wonder why they don’t

Keep trying

Riverwalk Fri 20-May-22 07:37:37

Although similar, Prednisone and Prednisolone are DIFFERENT generic drugs. The can have different side effects and interactions with other medications.

If you have to, see a private doctor rather than buy off the internet.

snowberryZ Fri 20-May-22 08:30:14

Think I might go down the private route
But thanks for the advice and understanding.

Katie59 Fri 20-May-22 08:34:44

Because steroids suppress the immune system they make you vulnerable to a lot of other infections, respiratory infections in particular. Auto immune conditions like Rheumatoid Arthritis can be improved but use needs to be carefully monitored so don’t self medicate.

MawtheMerrier Fri 20-May-22 08:43:27

I would absolutely advise against trying to self-medicate with prescription drugs.
There is a reason doctors spend years and years qualifying.
To attempt to DIY is both dangerous and folly.

snowberryZ Fri 20-May-22 09:04:41

For those of you who suggested going private. Do private doctors see patients the same or next day? I would want to see one asap.and preferably local.
Not sure even where to start to arrange thisconfused

Riverwalk Fri 20-May-22 09:35:04

If you Google the NHS neurologist that you've already seen it will show his/her contact details, including those of the private secretary who will handle the private appointments.

snowberryZ Fri 20-May-22 09:41:18


If you Google the NHS neurologist that you've already seen it will show his/her contact details, including those of the private secretary who will handle the private appointments.

I havent seen a neurologist, only a GP.
I havent been referred to see any specialists, this is half the problem.

snowberryZ Fri 20-May-22 09:42:56

Still not sure how to go private'
Do I just Google private hospitals in my area and email one of them saying.
I want to see someone. Now. I'll pay.

annodomini Fri 20-May-22 10:24:07

i wouldn't dream of sef-prescribing a steroid drug. A few days of, say, 15-20mg per day would show whether or not it was an auto-immune disease. Like pieinthe sky I had PMR and was astounded how much better I felt after just two or three days. There are other auto-immune conditions such as Lichen Sclerosus which also might respond, but pred is not a panacea.

BTW, I was informed by my late sister who was a GP, that prednisolone and prednisone are one and the same. The longer spelling is what we use; prednisone is what it is called in US and New Zealand where my sister had her practice.

annodomini Fri 20-May-22 10:26:29

I should add that prednisolone is not a short-term remedy. It worked, as I said, miraculously, after 48 hours, but it took me almost six years to get my inflamatory markers under control.

Audi10 Fri 20-May-22 10:49:03

I’ve been and still am on prednisolone been on it for 15 years continuously taping down very very slowly, I have a rare autoimmune condition! There is no way I would ever self medicate so wouldn’t buy any online! If I was in very bad pain I would be ringing my Gp until I was seen or failing that I’d be off to A&E no one should be enduring 3 months of pain

crazyH Fri 20-May-22 11:02:09

My friend has Rheumatoid Arthritis, and very often gets prednisolone from a pharmacy in India. Over there it’s sold over the counter. She either buys it herself when she goes there or asks family/friends to pick them up. She only uses it when there’s a flare-up of her arthritis.
I’m not suggesting you do the same. She has suffered from this condition for 40 years .
Please do not buy it online. Get it through a Pharmacy whether hear or abroad

pieinthesky Fri 20-May-22 11:22:53

To see a private doctor you will probably still need a referral letter from your GP. You should look for a Rheumatologist preferably someone with an interest in autoimmmune conditions such as PMR.

Vito Fri 20-May-22 13:06:01

If you goggle "How to see a private doctor" I think you will find your answer. Good luck I understand what pain your in.