Never heard of diautonomia? No, neither had I until yesterday afternoon when I was told DGS, aged 13, has it
It is do with the automatic systems that regulate our body - heart function, bowels lungs, digestion etc. These become less reliable than they should be. DH has just had a pace maker fitted because his heart was not beating in a regular fashion - this is a an example of a disautonomic problem.
However a version also exists that affects pubescent children, mainly girls and manifests itself in sudden patches of extreme fatigue, nausea and vomiting, diaorrhea etc and various other vague complaints, which in girls is so often just seen as a mental health issue.
We are lucky that DGS, in old fashioned terms has always been a 'delicate child' health wise. He is, and has always been painfully thin and he has grown nearly a foot in the last year, so, when he began to get all these other problems, his medical history was such that his GP quickly referred him to a paediatrician and this was the diagnosis.
The problem is that it is not a very common problem and we all know little or nothing about it, so I just wondered whether someone on GN might have some experience of it in their family.
M0nica Sat 10-Feb-24 21:11:34
LauraNorderr Sat 10-Feb-24 22:09:23
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JaneJudge Sun 11-Feb-24 14:53:33
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icanhandthemback Sun 11-Feb-24 17:38:48
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