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Pulmonary Fibrosis

(8 Posts)
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Shelflife Sat 11-Jul-26 14:52:15

I am in need of a ' hug' . After 2 xrays and a CT scan I was told on Thursday I have Pulmonary Fibrosis! Urgent referral is in the pipeline to see a chest specialist. I am very anxious of course , no symptoms other than a persistent cough. My DH has Alzheimers Disease and I can't afford to be ill !!
I haven't told our 'children ' yet but have shared the news with 2 close friends and my sister.
Thankyou for reading it helps to write it down!

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nanaK54 Sat 11-Jul-26 15:33:03

Sending a huge hug x flowers

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HowVeryDareYou2 Sat 11-Jul-26 15:43:56

No advice, I'm afraid, but I wish you well.
The charity Action for Pulmonary Fibrosis, where you might get some online support from others with the same condition.

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LOUISA1523 Sat 11-Jul-26 15:57:34

My mum was diagnosed with this at 86 ( shes 90 now) .....like you diagnosed after persistent cough....the condition has progressed...but not as fast as we were first led to beleive....try not to Google as the prognosis will all take you to the worst case scenarios....my mum walked 3 miles with us the other day...no problems.....its just inclines she can't do any more .....but its not all doom ....everyone is different....take care...I wish you well

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Grannybags Sat 11-Jul-26 15:58:43

Hugs for you 🤗

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Cossy Sat 11-Jul-26 16:06:53

Sending you biggest virtual hug 🤗🤗

Also sending positive vibes as things may look brighter when you find out more thanks

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Iam64 Sat 11-Jul-26 16:14:33

It’s a rather scary diagnosis but it might not progress at speed

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PamelaJ1 Sat 11-Jul-26 16:25:35

When my DH was diagnosed about 6years ago I thought he would be dead in a year or two. He’s still fine and doesn’t appear to have deteriorated too much.
He saw the specialist who basically said that there wasn’t much that could be done and he hasn’t been back since.
Just keep as fit as possible. My DH still plays tennis although he’s not running about like he used to but then neither am I.
He’s 74 now.
Sending hugs

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