Redrobin I had the same experience in regards to the assessors report. I knew she didn't listen to me. My solicitor who will go with me to the PIP tribunal asked for a copy of the report. Every paragraph multiple errors. Took me 2 days to go through it with a fine tooth comb and marked each error and sent a long email correcting the errors. Only page with out a mistake was the last page where she signed it and put how long it took her to write 38 mins . The phone assessment took hour and 46 mins.
The Brain Charity are funding the solicitor as I couldn't afford it. Next month it will be 35 years seen my health got worse.
I signed the petition to get the government to reassess how benefits where award . Had their reply in my email box. They have decided the present system doesn't need changing and they will not rely on medical evidence alone but will still use phone assessment to give a better picture of a person's needs.
I first applied for DLA in 1988 my GP told us to as with my medical history and how much worse I had gotten and in his opinion I would only get worse . Took months to get the forms in the end we had to go too a tribunal. Turned down. So didn't apply again for years.
Next time we applied was when my husband's cancer was terminal as the hospital told us to apply for DLA and careers allowance for him. This was 2003. My husband phoned up to query a question and the person who answered him asked how long he had been given 4 months to 2 years. She said don't bother applying as you have been given 2 years. Our McMillan nurse went mad and filled in the forms we got DLA and careers allowance my husband died just under the 4 months.
I had my mom live with me the last 18 months of her life. I applied for carers allowance. But was only allowed to have it for 6 months as they said she would get better. My mom had breast cancer grade 3 and dementia. There was no getting better. The last 4 months my mom became violent. But I couldn't put her into a home she was my mom . I was her sole carer . She was 90 when she died in 2017.
Over the years since my husband died my health has gotten worse but until mom died I had both my parents and mother in law to look after. I was very ill at times but they needed me so did what I had to too help them .
Every time I got turned down for any benefit since my husband died I was told no diagnosis no benefit.
I finally had my diagnosis in April last year . At the age of 64 found out I have a rare hereditary neurological condition. Two years before found out I was born with a hole in my heart. Since my PIP and MRN decisions where rejected that's when I got in touch with the Brain Charity. I didn't know about them when I first had the PIP forms so my daughter filled them out. As CAB said they couldn't help as they where swamped. Because of the time limit to fill and get the form back with all the evidence that's why my daughter did them. I had 45 pages of GP, neurologist and cardiologist letters. I sent.
The PIP decision was a joke. Said because I can get into a car I can get into a bath. Last time I had a bath I was 14 my arms collapsed and my mom had to get me out. After that my parents altered the bathroom this was in the 70's low fibreglass bath had come out . They got one with handles attached and had a shower fitted over it . The sort where you turned on the taps and pulled a knob to make the shower work.
My solicitor was told in September there where no tribunals before Christmas. Since August all the pain flares have taken its toll on my mobility. And I can no longer do tasks I could do in my own way. My daughter has been doing more for me. And I hate having to rely on her . She works and has to young sons. I can't get into a car unless someone lifts my legs in and out and can't always do up the seat belt. I use taxis but the drivers are lovely and help me.
Sorry this is a ramble but I am so fed up having to fight for something I should have had years ago. And people with lesser things wrong because they know how to work the system can get everything going. If I lived in a council I have been told I would have had benefits years ago. Because I owned our own house with my late husband and because of my health live in a bungalow I must be rich. People at end of a phone have told me this. I never get insulting or lose my temper but explain what it took to be able to buy our own home hard work and going without holidays expensive cars etc. I am of the generation when the mortgage rate went up to 15%. All the adaptions to my bungalow I have had to pay for out of my quicky depleting savings. I got the VAT back on my toilet,shower and handbasin . As I knew about it as we had to have our bathroom altered for me when my husband was alive.
There are a lot of people like me battling the system . Until disabled people write the disability benefits forms and disabled people assess them no one with either a physical or mental health or both will get treated fairly.
34 year old assisted euthanasia
Static caravan purchase is it worth buying