Billy Caldwell

Billy Caldwell has suffered a second seizure, his mother is hopeful that they will be given back his medicine but the reason the government doesn’t want to do this is because it would open the door to hundreds of other sick children.

Richard Brandson has given his support I hope that will put more pressure on the government.

Signed and shared. Thanks grannyactivist

Signed. The petition seems to be doing well.

Signed.

Also signed

Alfie Dingly, the other little boy whose family is petioning for this drug, has a rare type of epilepsy that means he usually fits at night. So his mother has to stay awake and alert for these episodes, And once he starts fitting he often doesn’t stop and his mother has to drive him from her home in Kennilworth to Oxford for treatment. By herself (there is a younger sibling) sometimes 2-3 times a week, in the dark with her son fitting in the car.

Each episode cause more damage to Alfie.

The family took him to Holland for treatment and this drastically reduced his seizures. Last I heard they were back in the country trying to get this drug legalised.

These poor families.

Thank you grannyactivist

I have just signed the petition and sent it off to several friends. I do hope it makes an impact what an appalling situation for Billy’s mother to be in.

There is a petition about this here, please sign:
www.change.org/p/government-government-stops-northern-ireland-boy-medication

It has emerged that Teresa Mays husband works for a company that owns the largest stake in Britain’s only legal supplier of a marijuana medicine. Victoria Atkins a home office minister has stopped speaking on cannabis after it was revealed that her husband is responsible for GW pharmaceuticals marijuana farm

GW sells Sativax a cannabis extract spray at £125 a bottle and they have a monopoly

Ronnie Cowan MP said we should be asking is the government prioritising the interests of ‘big pharma’ monopoly profits over the health and well being of UK citizens.

This was a topic on The Wright Stuff this morning. It was stated that the UK is the world's biggest manufacturer and exporter of medical cannabis. And yet people like this young boy and MS sufferers who could benefit greatly from this apparently non-psychoactive treatment are denied it. The doctor on the panel said he is allowed to prescribe a form of heroin (Diamorphine) for the relief of pain and yet he can't prescribe medical cannabis. He thought it was a nonsense and a disgrace - as did the rest of the panel.

I don't know that anyone would want to take it unless it was to relieve or hold at bay severe symptoms because if it has no psychoactive ingredients what would be the point?

Billy’s oil is especially prescribed for him, it contains a tiny amount of THC which is why it is against the law.

Charlotte had all Billy’s trial details with her when she saw the minister, her doctor said that even if all the bottles of medicine were drunk it wouldn’t be possible to get high.

Alfie Dingly the other little boy with a similar condition is now living with his mother in Holland where he can get his medication. It shouldn’t be necessary for parents of sick children to have to move to other countries just to keep them alive.

Bridgeit
Exactly!! It reminds me of the days when we had to act like criminals ( which in law we were) to buy my friends drugs to relieve the pain of MS.
At least it's a lot easier now: delivered to your door.

Not only is it so sad, it’ s unbelievable in this day and age .

the stuff they sell isn't medical strength Bluebelle My daughter tried it and it is totally useless.She did get some medical strngth from a friend who works abroad where its leagal and the difference was amazing

I would like to know why she goes to Canada to get the oil.
Is there something very different from what we can buy here?
There obviously must be.

Well it is isn’t it they are selling cannabis oil in H and B or is this some extra strength one because I think you can get it in the NHS pain clinic too can’t you ?

it should be legalised as medication.So many conditions apparently get great relief from Cannabis ,MS,Parkinsons disease,and one ery close to me Fibromyalgia.The Scottish government voted in favour of legalising it bit as its not a devolved issue we cant go ahead without WM consent....and we wont get that .

I agree, there must be some way to make exceptions for medical use. My understanding is that the oil is quite different from illegal cannabis.

It is all so unfortunate. The law is a bit of an ass here - there must be some way it can be OK'd for genuine medical reasons.